Skip to main content

Table 5 Summary of testing completed and next steps for development of the QCECI and QCPCI

From: Factor structure of the Quality of Children’s Palliative Care Instrument (QCPCI) when completed by parents of children with cancer

Domain name QCECI QCPCI
Tested with 128 mothers of children who died from any cause Next steps Tested with 532 mothers and fathers of children living with cancer Next steps
Connect with Families 16-item subscaleb Use reduced number of items (from QCPCI) and test as part of a single measure 4 item subscalec Continue testing as part of a single measure
Involve Parents 8-item subscaleb Use reduced number of items (from QCPCI) and test as part of a single measure 5 item subscalec Continue testing as part of a single measure
Share Information with Parents 9-item subscaleb Reduce number of items and test as part of single measure Not tested Reduce number of items and test as part of single measure
Share Information Among Health Professionals 4-item subscaleb Use reduced number of items (from QCPCI) and test as part of a single measure 3 item subscalec Continue testing as part of a single measure
Support the Child 10 ‘stand-alone’ items with content and face validity Continue to include as ‘stand-alone’ items Not tested Relevant for inclusion in future testing as ‘stand-alone’ items
Support Siblings 3 ‘stand-alone’ items with content and face validity Test as part of a single measure 3 item subscalec Continue testing as part of a single measure
Support Parents 11-item subscaleb Test as part of a single measure Not tested Some items relevant and should be tested as part of a single measure
Provide Care at Death 7-item subscaleb Test as part of a single measure Not Applicable Not Applicable
Provide Bereavement Follow-up 7-‘stand-alone’ items with content and face validity Continue to include as ‘stand-alone’ items Not Applicable Not Applicable
Structures of Care 7-‘stand-alone’ items with content and face validity Continue to include as ‘stand-alone’ items Not tested Relevant for inclusion in future testing as ‘stand-alone’ items
Additional itemsa 8 items on overall satisfaction for each domain
4 other outcome items
1 item rating overall care quality
Consider removing 8 items on satisfaction 1 item rating overall care quality Continue inclusion
  1. aAdditional items were assessed for content and face validity and were used in the assessment of construct validity for individual subscales or the overall measure
  2. bEach subscale tested individually as a unique scale rather than testing the subscales together as a single measure
  3. cSubscales tested as a single measure