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Table 1 Participant profiles

From: Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study

Carer

Gender

Relationship to patient

Living together

Patient survival from diagnosis, m

SPCa

Time post bereavement (months)

1

F

wife

Y

6

No

8

2

M

grandson

N

8

No

23

3

F

daughter

Y

13

No

23

4

F

wife

Y

11

No

23

5

M

husband

Y

9

No

7

6

F

daughter

Y

7

No

12

7

F

daughter

N

10

No

13

8

M

husband

Y

41

No

15

9

M

husband

Y

42

Yes – SPC Nurse/ Day hospice

18

10

F

wife

Y

36

Yes - SPC Nurse

14

11

M

husband

Y

10

Yes - Hospice (Inpatient)

18

12

F

wife

Y

100

Yes - Hospice (Inpatient)

18

13

F

wife

Y

30

Yes - SPC Nurse

24

  1. aSPC, Specialist palliative care involvement