TY - STD TI - Guo Q, Jacelon CS, Marquard JL. An Evolutionary Concept Analysis of Palliative Care. J Palliative Care Med. 2012;2:127. https://doi.org/10.4172/2165-7386.1000127. ID - ref1 ER - TY - JOUR AU - Meghani, S. H. PY - 2004 DA - 2004// TI - A concept analysis of palliative care in the United States JO - J Adv Nurs VL - 46 UR - https://doi.org/10.1111/j.1365-2648.2003.02975.x DO - 10.1111/j.1365-2648.2003.02975.x ID - Meghani2004 ER - TY - JOUR AU - Foster, T. PY - 2007 DA - 2007// TI - Pediatric palliative care revisited. A vision to add life JO - J Hosp Palliat Nurs VL - 9 UR - https://doi.org/10.1097/01.NJH.0000280234.56535.5f DO - 10.1097/01.NJH.0000280234.56535.5f ID - Foster2007 ER - TY - STD TI - WHO Expert Committee on Cancer Pain Relief and Active Supportive Care & World Health Organization. Cancer pain relief and palliative care : report of a WHO expert committee [ meeting held in Geneva from 3 to 10 July 1989]. Geneva: World Health Organization; 1990. ID - ref4 ER - TY - JOUR AU - Schmidt, K. PY - 2011 DA - 2011// TI - Pediatric palliative care: starting a hospital-based program JO - Pediatr Nurs VL - 37 ID - Schmidt2011 ER - TY - STD TI - World Health Organization. National cancer control programmes: policies and managerial guidelines, 2nd ed. Geneva: World Health Organization; 2002. ID - ref6 ER - TY - BOOK AU - Randall, F. AU - Downie, R. S. PY - 2006 DA - 2006// TI - The philosophy of palliative care: critique and reconstruction PB - Oxford University Press CY - Oxford UR - https://doi.org/10.1093/acprof:oso/9780198567363.001.0001 DO - 10.1093/acprof:oso/9780198567363.001.0001 ID - Randall2006 ER - TY - JOUR AU - Stayer, D. PY - 2012 DA - 2012// TI - Pediatric palliative care: a conceptual analysis for pediatric nursing practice JO - J Pediatr Nurs VL - 27 UR - https://doi.org/10.1016/j.pedn.2011.04.031 DO - 10.1016/j.pedn.2011.04.031 ID - Stayer2012 ER - TY - JOUR PY - 2006 DA - 2006// TI - Standards for paediatric palliative care in europe JO - Eur J Palliat Care VL - 14 ID - ref9 ER - TY - STD TI - Association for Children's Palliative Care. A Guide to the Development of Children’s Palliative Care Services. Bristol: Together for Short Lives; 2009. ID - ref10 ER - TY - JOUR AU - Bona, K. i. r. a. AU - Wolfe, J. o. a. n. n. e. PY - 2017 DA - 2017// TI - Disparities in Pediatric Palliative Care: An Opportunity to Strive for Equity JO - Pediatrics VL - 140 UR - https://doi.org/10.1542/peds.2017-1662 DO - 10.1542/peds.2017-1662 ID - Bona2017 ER - TY - JOUR AU - Rosenberg, A. R. AU - Wolfe, J. PY - 2017 DA - 2017// TI - Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions JO - Lancet Child Adolesc Health VL - 1 UR - https://doi.org/10.1016/S2352-4642(17)30014-7 DO - 10.1016/S2352-4642(17)30014-7 ID - Rosenberg2017 ER - TY - JOUR AU - Levine, D. R. AU - Mandrell, B. N. AU - Sykes, A. AU - Pritchard, M. AU - Gibson, D. AU - Symons, H. J. PY - 2017 DA - 2017// TI - Patients' and Parents' needs, attitudes, and perceptions about early palliative care integration in pediatric oncology JO - JAMA Oncol VL - 3 UR - https://doi.org/10.1001/jamaoncol.2017.0368 DO - 10.1001/jamaoncol.2017.0368 ID - Levine2017 ER - TY - JOUR AU - Ranallo, L. a. u. r. e. n. PY - 2017 DA - 2017// TI - Improving the Quality of End-of-Life Care in Pediatric Oncology Patients Through the Early Implementation of Palliative Care JO - Journal of Pediatric Oncology Nursing VL - 34 UR - https://doi.org/10.1177/1043454217713451 DO - 10.1177/1043454217713451 ID - Ranallo2017 ER - TY - JOUR AU - Hilden, J. PY - 2016 DA - 2016// TI - It is time to let in pediatric palliative care JO - Pediatr Blood Cancer VL - 63 UR - https://doi.org/10.1002/pbc.25877 DO - 10.1002/pbc.25877 ID - Hilden2016 ER - TY - JOUR AU - Wolfe, J. AU - Grier, H. E. AU - Klar, N. AU - Levin, S. B. AU - Ellenbogen, J. M. AU - Salem-Schatz, S. PY - 2000 DA - 2000// TI - Symptoms and suffering at the end of life in children with cancer JO - N Engl J Med VL - 342 UR - https://doi.org/10.1056/NEJM200002033420506 DO - 10.1056/NEJM200002033420506 ID - Wolfe2000 ER - TY - JOUR AU - Baker, J. N. AU - Levine, D. R. AU - Hinds, P. S. AU - Weaver, M. S. AU - Cunningham, M. J. AU - Johnson, L. PY - 2015 DA - 2015// TI - Research priorities in pediatric palliative care JO - J Pediatr VL - 167 UR - https://doi.org/10.1016/j.jpeds.2015.05.002 DO - 10.1016/j.jpeds.2015.05.002 ID - Baker2015 ER - TY - BOOK PY - 1998 DA - 1998// TI - Cancer pain relief and palliative care in children PB - WHO CY - Geneva ID - ref18 ER - TY - JOUR AU - Kaye, E. C. AU - Friebert, S. AU - Baker, J. N. PY - 2016 DA - 2016// TI - Early integration of palliative Care for Children with high-risk Cancer and their families JO - Pediatr Blood Cancer VL - 63 UR - https://doi.org/10.1002/pbc.25848 DO - 10.1002/pbc.25848 ID - Kaye2016 ER - TY - STD TI - De Clercq E, Rost M, Pacurari N, Elger B, Wangmo T. Aligning guidelines and medical practice: literature review on pediatric palliative care guidelines. Palliat Support Care. 2016;15(4):474–89. ID - ref20 ER - TY - JOUR AU - Kaye, E. C. AU - Snaman, J. M. AU - Baker, J. N. PY - 2017 DA - 2017// TI - Pediatric palliative oncology: bridging silos of care through an embedded model JO - J Clin Oncol VL - 35 UR - https://doi.org/10.1200/JCO.2017.73.1356 DO - 10.1200/JCO.2017.73.1356 ID - Kaye2017 ER - TY - JOUR AU - Cherny, N. I. PY - 2009 DA - 2009// TI - Stigma associated with "palliative care": getting around it or getting over it JO - Cancer. VL - 115 UR - https://doi.org/10.1002/cncr.24212 DO - 10.1002/cncr.24212 ID - Cherny2009 ER - TY - JOUR AU - Ahmed, N. AU - Bestall, J. C. AU - Ahmedzai, S. H. AU - Payne, S. A. AU - Clark, D. AU - Noble, B. PY - 2004 DA - 2004// TI - Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals JO - Palliat Med VL - 18 UR - https://doi.org/10.1191/0269216304pm921oa DO - 10.1191/0269216304pm921oa ID - Ahmed2004 ER - TY - JOUR AU - Fadul, N. AU - Elsayem, A. AU - Palmer, J. L. AU - Fabbro, E. AU - Swint, K. AU - Li, Z. PY - 2009 DA - 2009// TI - Supportive versus palliative care: what's in a name?: a survey of medical oncologists and midlevel providers at a comprehensive cancer center JO - Cancer. VL - 115 UR - https://doi.org/10.1002/cncr.24206 DO - 10.1002/cncr.24206 ID - Fadul2009 ER - TY - JOUR AU - Mahon, M. M. AU - McAuley, W. J. PY - 2010 DA - 2010// TI - Oncology nurses' personal understandings about palliative care JO - Oncol Nurs Forum VL - 37 UR - https://doi.org/10.1188/10.ONF.E141-E150 DO - 10.1188/10.ONF.E141-E150 ID - Mahon2010 ER - TY - JOUR AU - Dalal, S. AU - Palla, S. AU - Hui, D. AU - Nguyen, L. AU - Chacko, R. AU - Li, Z. PY - 2011 DA - 2011// TI - Association between a name change from palliative to supportive care and the timing of patient referrals at a comprehensive cancer center JO - Oncologist. VL - 16 UR - https://doi.org/10.1634/theoncologist.2010-0161 DO - 10.1634/theoncologist.2010-0161 ID - Dalal2011 ER - TY - JOUR AU - Wentlandt, K. AU - Krzyzanowska, M. K. AU - Swami, N. AU - Rodin, G. M. AU - Le, L. W. AU - Zimmermann, C. PY - 2012 DA - 2012// TI - Referral practices of oncologists to specialized palliative care JO - J Clin Oncol VL - 30 UR - https://doi.org/10.1200/JCO.2012.44.0248 DO - 10.1200/JCO.2012.44.0248 ID - Wentlandt2012 ER - TY - JOUR AU - Maciasz, R. M. AU - Arnold, R. M. AU - Chu, E. AU - Park, S. Y. AU - White, D. B. AU - Vater, L. B. PY - 2013 DA - 2013// TI - Does it matter what you call it? A randomized trial of language used to describe palliative care services JO - Support Care Cancer VL - 21 UR - https://doi.org/10.1007/s00520-013-1919-z DO - 10.1007/s00520-013-1919-z ID - Maciasz2013 ER - TY - JOUR AU - Hui, D. AU - Kim, Y. J. AU - Park, J. C. AU - Zhang, Y. AU - Strasser, F. AU - Cherny, N. PY - 2015 DA - 2015// TI - Integration of oncology and palliative care: a systematic review JO - Oncologist. VL - 20 UR - https://doi.org/10.1634/theoncologist.2014-0312 DO - 10.1634/theoncologist.2014-0312 ID - Hui2015 ER - TY - JOUR AU - Zimmermann, C. AU - Swami, N. AU - Krzyzanowska, M. AU - Leighl, N. AU - Rydall, A. AU - Rodin, G. PY - 2016 DA - 2016// TI - Perceptions of palliative care among patients with advanced cancer and their caregivers JO - Can Med Assoc J VL - 188 UR - https://doi.org/10.1503/cmaj.151171 DO - 10.1503/cmaj.151171 ID - Zimmermann2016 ER - TY - JOUR AU - Collins, A. AU - McLachlan, S. A. AU - Philip, J. PY - 2017 DA - 2017// TI - Initial perceptions of palliative care: an exploratory qualitative study of patients with advanced cancer and their family caregivers JO - Palliat Med VL - 31 UR - https://doi.org/10.1177/0269216317696420 DO - 10.1177/0269216317696420 ID - Collins2017 ER - TY - JOUR AU - Twamley, K. AU - Craig, F. AU - Kelly, P. AU - Hollowell, D. R. AU - Mendoza, P. AU - Bluebond-Langner, M. PY - 2014 DA - 2014// TI - Underlying barriers to referral to paediatric palliative care services: knowledge and attitudes of health care professionals in a paediatric tertiary care Centre in the United Kingdom JO - J Child Health Care VL - 18 UR - https://doi.org/10.1177/1367493512468363 DO - 10.1177/1367493512468363 ID - Twamley2014 ER - TY - JOUR AU - Davies, B. AU - Sehring, S. A. AU - Partridge, J. C. AU - Cooper, B. A. AU - Hughes, A. AU - Philp, J. C. PY - 2008 DA - 2008// TI - Barriers to palliative care for children: perceptions of pediatric health care providers JO - Pediatrics. VL - 121 UR - https://doi.org/10.1542/peds.2006-3153 DO - 10.1542/peds.2006-3153 ID - Davies2008 ER - TY - JOUR AU - Rost, M. AU - Clercq, E. AU - Wangmo, T. AU - Elger, B. S. PY - 2017 DA - 2017// TI - The need for a shared understanding: domains of care and composition of team in pediatric palliative care guidelines JO - J Hosp Palliat Nurs VL - 19 ID - Rost2017 ER - TY - JOUR AU - Haines, E. R. AU - Frost, A. C. AU - Kane, H. L. AU - Rokoske, F. S. PY - 2018 DA - 2018// TI - Barriers to accessing palliative care for pediatric patients with cancer: a review of the literature JO - Cancer. VL - 124 UR - https://doi.org/10.1002/cncr.31265 DO - 10.1002/cncr.31265 ID - Haines2018 ER - TY - JOUR AU - Knapp, C. AU - Thompson, L. PY - 2012 DA - 2012// TI - Factors associated with perceived barriers to pediatric palliative care: a survey of pediatricians in Florida and California JO - Palliat Med VL - 26 UR - https://doi.org/10.1177/0269216311409085 DO - 10.1177/0269216311409085 ID - Knapp2012 ER - TY - JOUR AU - Bogetz, J. F. AU - Root, M. C. AU - Purser, L. AU - Torkildson, C. PY - 2019 DA - 2019// TI - Comparing health care provider-perceived barriers to pediatric palliative care fifteen years ago and today JO - J Palliat Med VL - 22 UR - https://doi.org/10.1089/jpm.2018.0367 DO - 10.1089/jpm.2018.0367 ID - Bogetz2019 ER - TY - JOUR AU - Ruch, C. PY - 2013 DA - 2013// TI - Wer ist eigentlich Palliative Care? JO - Palliative Ch VL - 2 ID - Ruch2013 ER - TY - JOUR AU - Bergsträsser, E. PY - 2018 DA - 2018// TI - Pädiatrische Palliative Care: was ist bei Kindern anders als bei Erwachsenen? JO - Ther Umsch VL - 75 UR - https://doi.org/10.1024/0040-5930/a000973 DO - 10.1024/0040-5930/a000973 ID - Bergsträsser2018 ER - TY - JOUR AU - Rost, M. i. c. h. a. e. l. AU - Acheson, E. l. a. i. n. e. AU - Kühne, T. h. o. m. a. s. AU - Ansari, M. a. r. c. AU - Pacurari, N. a. d. i. a. AU - Brazzola, P. i. e. r. l. u. i. g. i. AU - Niggli, F. e. l. i. x. AU - Elger, B. e. r. n. i. c. e. S. AU - Wangmo, T. e. n. z. i. n. PY - 2018 DA - 2018// TI - Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records JO - Supportive Care in Cancer VL - 26 UR - https://doi.org/10.1007/s00520-018-4100-x DO - 10.1007/s00520-018-4100-x ID - Rost2018 ER - TY - CHAP AU - Simon, C. M. AU - Mosavel, M. ED - Jacoby, L. ED - Siminoff, L. A. PY - 2008 DA - 2008// TI - Ethical design and conduct of focus groups in bioethics research BT - Empirical methods for bioethics: a primer PB - Elsevier CY - New York ID - Simon2008 ER - TY - JOUR AU - Dalberg, T. AU - Jacob-Files, E. AU - Carney, P. A. AU - Meyrowitz, J. AU - Fromme, E. K. AU - Thomas, G. PY - 2013 DA - 2013// TI - Pediatric oncology providers' perceptions of barriers and facilitators to early integration of pediatric palliative care JO - Pediatr Blood Cancer VL - 60 UR - https://doi.org/10.1002/pbc.24673 DO - 10.1002/pbc.24673 ID - Dalberg2013 ER - TY - JOUR AU - Pope, C. AU - Royen, P. AU - Baker, R. PY - 2002 DA - 2002// TI - Qualitative methods in research on healthcare quality JO - Qual Saf Health Care VL - 11 UR - https://doi.org/10.1136/qhc.11.2.148 DO - 10.1136/qhc.11.2.148 ID - Pope2002 ER - TY - JOUR AU - Daniels, K. AU - Loewenson, R. AU - George, A. AU - Howard, N. AU - Koleva, G. AU - Lewin, S. PY - 2016 DA - 2016// TI - Fair publication of qualitative research in health systems: a call by health policy and systems researchers JO - Int J Equity Health VL - 15 UR - https://doi.org/10.1186/s12939-016-0368-y DO - 10.1186/s12939-016-0368-y ID - Daniels2016 ER - TY - JOUR AU - Ziebland, S. AU - Hunt, K. PY - 2014 DA - 2014// TI - Using secondary analysis of qualitative data of patient experiences of health care to inform health services research and policy JO - J Health Serv Res Policy VL - 19 UR - https://doi.org/10.1177/1355819614524187 DO - 10.1177/1355819614524187 ID - Ziebland2014 ER - TY - JOUR AU - Rost, M. AU - Wangmo, T. AU - Niggli, F. AU - Hartmann, K. AU - Hengartner, H. AU - Ansari, M. AU - Brazzola, P. AU - Rischewski, J. AU - Beck-Popovic, M. AU - Kühne, T. AU - Elger, B. PY - 2017 DA - 2017// TI - Parents’ and Physicians’ Perceptions of Children’s Participation in Decision-making in Paediatric Oncology: A Quantitative Study JO - Journal of Bioethical Inquiry VL - 14 UR - https://doi.org/10.1007/s11673-017-9813-x DO - 10.1007/s11673-017-9813-x ID - Rost2017 ER - TY - JOUR AU - Tenzin, W. AU - Eva, D. e. C. l. e. r. c. q. AU - Katharina, R. AU - Maja, B. -. P. AU - Johannes, R. AU - Regula, A. AU - Marc, A. AU - Elger, B. S. PY - 2017 DA - 2017// TI - Better to know than to imagine: Including children in their health care JO - AJOB Empirical Bioethics VL - 8 UR - https://doi.org/10.1080/23294515.2016.1207724 DO - 10.1080/23294515.2016.1207724 ID - Tenzin2017 ER - TY - JOUR AU - De Clercq, E. AU - Elger, B. S. AU - Wangmo, T. PY - 2017 DA - 2017// TI - Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology JO - European Journal of Cancer Care VL - 26 UR - https://doi.org/10.1111/ecc.12651 DO - 10.1111/ecc.12651 ID - De Clercq2017 ER - TY - JOUR AU - Michael, R. AU - Elaine, A. AU - Thomas, K. AU - Marc, A. AU - Nadia, P. AU - Pierluigi, B. AU - Felix, N. AU - Elger, B. S. AU - Tenzin, W. PY - 2018 DA - 2018// TI - Palliative care in Swiss pediatric oncology settings: a retrospective analysis of medical records JO - Supportive Care in Cancer VL - 26 UR - https://doi.org/10.1007/s00520-018-4100-x DO - 10.1007/s00520-018-4100-x ID - Michael2018 ER - TY - BOOK AU - Guest, G. S. AU - MacQueen, K. M. AU - Namey, E. E. PY - 2011 DA - 2011// TI - Applied thematic analysis PB - Sage CY - London ID - Guest2011 ER - TY - JOUR AU - Wolfe, J. AU - Orellana, L. AU - Ullrich, C. AU - Cook, E. F. AU - Kang, T. I. AU - Rosenberg, A. PY - 2015 DA - 2015// TI - Symptoms and distress in children with advanced Cancer: prospective patient-reported outcomes from the PediQUEST study JO - J Clin Oncol VL - 33 UR - https://doi.org/10.1200/JCO.2014.59.1222 DO - 10.1200/JCO.2014.59.1222 ID - Wolfe2015 ER - TY - BOOK AU - Borasio, G. D. PY - 2013 DA - 2013// TI - Saper morire. Cosa possiamo fare, come possiamo prepararci PB - Bollati Boringhieri CY - Torino ID - Borasio2013 ER - TY - JOUR AU - Remke, S. S. AU - Schermer, M. M. PY - 2012 DA - 2012// TI - Team collaboration in pediatric palliative care JO - J Social Work End-Life Palliat Care VL - 8 UR - https://doi.org/10.1080/15524256.2012.735551 DO - 10.1080/15524256.2012.735551 ID - Remke2012 ER - TY - JOUR AU - Morstad, B. A. AU - Yusuf, F. AU - Himelstein, B. P. PY - 2006 DA - 2006// TI - Perceptions of the term palliative care JO - J Palliat Med VL - 9 UR - https://doi.org/10.1089/jpm.2006.9.1128 DO - 10.1089/jpm.2006.9.1128 ID - Morstad2006 ER - TY - JOUR AU - Gaille, M. AU - Horn, R. PY - 2016 DA - 2016// TI - The role of 'accompagnement' in the end-of-life debate in France: from solidarity to autonomy JO - Theor Med Bioeth VL - 37 UR - https://doi.org/10.1007/s11017-016-9389-1 DO - 10.1007/s11017-016-9389-1 ID - Gaille2016 ER - TY - JOUR AU - Al-Awamer, A. PY - 2015 DA - 2015// TI - Physician-assisted suicide is not a failure of palliative care JO - Can Fam Physician VL - 61 ID - Al-Awamer2015 ER - TY - JOUR AU - Pastrana, T. AU - Junger, S. AU - Ostgathe, C. AU - Elsner, F. AU - Radbruch, L. PY - 2008 DA - 2008// TI - A matter of definition--key elements identified in a discourse analysis of definitions of palliative care JO - Palliat Med VL - 22 UR - https://doi.org/10.1177/0269216308089803 DO - 10.1177/0269216308089803 ID - Pastrana2008 ER - TY - JOUR AU - Friebert, S. PY - 2012 DA - 2012// TI - Best practice in pediatric palliative care: giving voice to the voiceless JO - Prog Palliat Care VL - 20 UR - https://doi.org/10.1179/0969926012Z.00000000049 DO - 10.1179/0969926012Z.00000000049 ID - Friebert2012 ER - TY - STD TI - Bergstraesser E. Pediatric Palliative care: a reflection on terminology. Palliat Care Res Treat. 2013;7:31–36. ID - ref59 ER - TY - JOUR AU - McNamara, B. AU - Rosenwax, L. PY - 2007 DA - 2007// TI - The mismanagement of dying JO - Health Sociol Rev VL - 16 UR - https://doi.org/10.5172/hesr.2007.16.5.373 DO - 10.5172/hesr.2007.16.5.373 ID - McNamara2007 ER - TY - JOUR AU - Martin, S. PY - 2017 DA - 2017// TI - Word-of-mouth in the health care sector: a literature analysis of the current state of research and future perspectives JO - Int Review Public Nonprofit Marketing VL - 14 UR - https://doi.org/10.1007/s12208-016-0154-y DO - 10.1007/s12208-016-0154-y ID - Martin2017 ER - TY - JOUR AU - Gysels, M. AU - Evans, N. AU - Menaca, A. AU - Higginson, I. J. AU - Harding, R. AU - Pool, R. PY - 2013 DA - 2013// TI - Diversity in defining end of life care: an obstacle or the way forward? JO - PLoS One VL - 8 UR - https://doi.org/10.1371/journal.pone.0068002 DO - 10.1371/journal.pone.0068002 ID - Gysels2013 ER - TY - STD TI - Hennink M, International Focus Group Research. A handbook for the health and social sciences. Cambridge: Cambridge University Press; 2007. ID - ref63 ER - TY - JOUR AU - Berry, L. L. AU - Castellani, R. AU - Stuart, B. PY - 2016 DA - 2016// TI - The branding of palliative care JO - J Oncol Pract VL - 12 UR - https://doi.org/10.1200/JOP.2015.008656 DO - 10.1200/JOP.2015.008656 ID - Berry2016 ER -