Table 3 Perceived facilitators & barriers for palliative care for persons with PD
Themes | Barriers | Facilitators |
|---|---|---|
Addressing needs of persons with PD and family caregivers | A persons cognitive deficits and communication problems Tension between needs from a person and his/her family caregivers A lack of time in interaction with family caregivers | Early speaking about wishes and needs with person, family and health care professionals |
Disease management | Lack of clear responsibilities and roles in (introducing) palliative care Limited resources; lack of time, high workloads and financials | More evidence and guidance in offering adequate disease management |
Professionals need for training | A lack of competences and specifically for the spiritual domain | Training helps in feeling more confident Communication skills; an open and sensitive attitude |
Connection between services | Limited communication between health care professionals | Availability of specialized palliative care services Care coordination; need for a central figure to coordinate palliative care |