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Table 3 Outcome themes for healthcare professionals (HCP [31]) and family carers

From: Context, mechanisms and outcomes in end-of-life care for people with advanced dementia: family carers perspective

Theme Sub-theme Reported by:
HCP Family carers
Psychosocial and spiritual care Beyond meeting basic physical needs  
Person-centred approach
Spending time with residents
Treated with dignity and respect
Being seen by a religious figure e.g. priest
Resident is not alone, is engaged and has comforting physical contact  
Is comfortable, warm, content and feels secure; death is quick and peaceful  
Addressing physical needs Symptom management (particularly for pain)
Reducing burdensome interventions, hospitalisation and resuscitation
Basic care needs are understood and met; e.g., clean, not smelling, hearing aids in place  
Has improvements in health, increased life expectancy  
Good food and support for adequate nutrition and hydration  
Harm is minimised (e.g., falls, bruises)  
Supporting and developing relationship with family carers Collaboration between family and care home staff
CH staff getting to know the family and obtaining trust
CH staff helping (supporting) family carers to prepare for their relative’s death and discussing grief
CH staff providing support
Family carers feeling prepared with plans in place, involved and informed; not making decisions under pressure  
Family carers feeling that the right decisions have been made  
Continuity, integration and multidisciplinary care Good working relationships across services
Regular staff who get to know individual needs of residents
EOL care provided at home/homelike environment Home or homelike environment makes it more familiar, relaxed and safe and therefore more comfortable for person with dementia and family  
Care homes more homely and preferable to hospital  
  1. Note. Bold, italicised text indicates additional detail to sub-themes added after analysis of family carer interviews