Table 2 Results on depressive and anxiety symptoms, family caregiver satisfaction, palliative care outcome and utilization of psychosocial support services for the whole sample (N = 232) and separated for gender (N = 229)
Whole sample (N = 232) | Family caregiver’s gender (N = 229) | |||
|---|---|---|---|---|
Male (n = 79) | Female (n = 150) | p | ||
Distress (DT) | ||||
Total score (M, SD, Range) | 7.9 (1.8); 0–10 | 7.7 (1.8); 3–10 | 8.0 (1.8); 2–10 | .402 a |
Clinically relevant distress (n, %) | ||||
Cut off < 5 | 11 (4.7) | 5 (6.3) | 6 (4.0) | .519 b |
Cut-off ≥ 5 | 221 (95.3) | 74 (93.7) | 144 (96.0) | |
“Severe distress” (n, %) | ||||
Cut off < 8 | 79 (34.1) | 26 (32.9) | 52 (34.7) | |
Cut-off ≥ 8 | 153 (65.9) | 53 (67.1) | 98 (65.3) | |
Anxiety symptoms (GAD-7) | ||||
Total score (M, SD, Range) | 9.4 (5.1); 0–21 | 8.1 (4.9); 0–20 | 10.0 (5.2); 0–21 | .008 a |
Symptom severity (n, %) | ||||
None | 48 (21.4) | 22 (28.6) | 26 (18.1) | .032 c |
Mild | 70 (31.3) | 29 (37.7) | 40 (27.8) | |
Moderate | 65 (29.0) | 17 (22.1) | 46 (31.9) | |
Severe | 41 (18.3) | 9 (11.7) | 32 (22.2) | |
Depressive symptoms (PHQ-9) | ||||
Total score (M, SD, Range) | 9.0 (5.7); 0–27 | 7.4 (5.2); 0–23 | 9.9 (5.8); 0–27 | .001 a |
Symptom severity (n, %) | ||||
None | 49 (21.7) | 24 (30.4) | 25 (17.4) | .008 c |
Mild | 90 (39.8) | 36 (45.6) | 52 (36.1) | |
Moderate | 46 (20.4) | 10 (12.7) | 36 (25.0) | |
Severe | 41 (18.1) | 9 (11.4) | 31 (21.5) | |
Family caregiver satisfaction (FAMCARE-2) | ||||
Total score (M, SD, Range) | 73.7 (9.6); 44–85 | 73.5 (9.9); 44–85 | 73.7 (9.5); 49–85 | .919 a |
Subscales (M, SD, Range) | ||||
Symptom relief | 22.3 (2.9); 12–25 | 22.4 (2.9); 13–25 | 22.2 (2.9); 12–25 | .658 a |
Information | 16.5 (3.0); 7–20 | 16.5 (3.0); 7–20 | 16.5 (3.1); 10–20 | .867 a |
Family caregiver support | 17.0 (2.8); 8–20 | 16.9 (2.9); 8–20 | 17.0 (2.7); 10–20 | .813 a |
Patient’s psychosocial care | 17.9 (2.3); 10–20 | 17.7 (2.5); 10–20 | 17.9 (2.2); 11–20 | .627 a |
Palliative care outcome (IPOS) | ||||
Total score (M, SD, Range) | 37.9 (7.7); 12–58 | 38.3 (6.9): 16–55 | 37.7 (8.3); 12–58 | .595 a |
Subscales (M, SD, Range) | ||||
Physical symptoms | 22.2 (5.4); 6–36 | 22.5 (5.2); 6–36 | 22.1 (5.6); 7–36 | .638 a |
Emotional symptoms | 11.2 (2.9); 2–16 | 11.4 (2.6); 6–16 | 11.1 (2.0); 2–16 | .424 a |
Communication/practical needs | 4.1 (2.4); 0–11 | 4.1 (2.6); 0–11 | 4.1 (2.4): 0–11 | .934 a |
Utilization of psychosocial support services | ||||
Utilization of at least one source of information or support prior admission to the SIPC ward (n, %) | ||||
Yes | 58 (25.0) | 14 (17.7) | 43 (28.7) | .069 c |
No | 174 (75.0) | 65 (82.3) | 107 (71.3) | |
Barriers for service utilization (multiple answers possible) (n, % yes) | ||||
Sufficient informal support (N = 196) | 159 (81.1) | 54 (79.4) | 104 (81.9) | .674 c |
Missing subjective need (N = 189) | 119 (63.0) | 44 (64.7) | 75 (62.0) | .710 c |
Missing time capacities (N = 181) | 75 (41.4) | 25 (36.8) | 49 (43.8) | .356 c |
Preferring support by treating physicians (N = 181) | 76 (42.0) | 34 (52.3) | 41 (35.7) | .029 c |
No expectation of subjective benefit (N = 177) | 62 (35.0) | 27 (40.3) | 34 (31.2) | .218 c |
No knowledge on psychosocial services (N = 188) | 59 (31.4) | 22 (32.4) | 36 (30.3) | .765 c |
Services too far away (N = 177) | 33 (18.6) | 9 (13.4) | 24 (21.8) | .165 c |
Potential burden to family/partnership (N = 182) | 7 (3.8) | 4 (6.0) | 3 (2.6) | .426 b |
Attitudes towards psychosocial support services (n, %) | ||||
Mainly/very positive | 90 (38.8) | 22 (27.8) | 68 (45.3) | .073 b |
Rather positive | 48 (20.7) | 19 (24.1) | 28 (18.7) | |
Undecided | 50 (21.6) | 20 (25.3) | 30 (20.0) | |
Rather negative | 12 (5.2) | 7 (8.9) | 5 (3.3) | |
Very/mainly negative | 16 (6.9) | 7 (8.9) | 8 (5.3) | |