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Table 3 Adaptations made in statements from Berghout et al. (2015) and Cramm et al. (2015)

From: Views of professionals and volunteers in palliative care on patient-centred care: a Q-methodology study in the Netherlands

Original statement Final statement after adaptation Why adaptation is made
5. Patients are supported in setting and achieving their own treatment goals. 5. Patients are supported to set and achieve their own goals In palliative care it is not about ‘treatment goals’ anymore, because patients will not get better. However, they can have other ‘goals’, for example; they still want to tell something to a family member before they die.
New statement 6. Healthcare professionals pay attention to the spiritual and psychosocial needs of patients. In a pilot interview, there was indicated that spiritual and psychosocial needs of patients are important in the last phase of life.
18. The hospital is accessible for all patients. 19. The building is accessible for all patients. In this study it is not only about a hospital, but also about a hospice. Therefore we changed this to ‘building’.
19. Clear directions are provided to and inside the hospital. Removed This is not very important in the last phase of life, since a hospice is a rather small building.
20. Appointment scheduling is easy. 20. It is easy to schedule a conversation with a doctor or nurse. Appointment is changed to conversation, since almost all appointments will be a conversation.
21. Waiting times for appointments are acceptable. 21. Waiting times for a request of a patient (for example: a treatment, medication or food) is acceptable Same as before, appointment is changed in request, since request are more suitable in a palliative care setting than appointments.
22. Language is not a barrier to access to care. 22. Language is not a barrier for access to qualitative good care. Often patients do have access to care, regardless of their language. However, language could be a barrier for qualitative good care.
New statement 23. Low cognitive functioning (for example: dementia) is not a barrier for receiving good quality of care. Low cognitive functioning is a very common in the last phase of life and therefore a statement about this is important.
25. Patients receive skilled advice about care and support at home after hospital discharge. Removed Patients are not discharged anymore in last phase of life.