Table 3 Exemplifying case descriptions by spiritual caregivers. Cases are anonymized
R15 Case: ‘Mr. A. needed reflection in the form of conversations about his life. Since his incurable illness many questions arose about the purpose and meaning of life and how he could be significant in this stage of life.’ What went well: ‘A good connection led to strong relationship of trust. Because of this, Mr. A. could openly talk about his life, his questions and his doubts.’ What could have gone better: ‘There was no communication between me and the general practitioner and I missed that in being able to adjust to each other.’ | |
R11 Case: ‘Mr. B. was bedridden, and had a lot of visitors. I listened to his stories a lot, which went further than daily worries and occurrences.’ What went well: ‘He enjoyed talking about more serious topics now and then. He slowly came to some sort of acceptance of what was happening to him.’ What could have gone better: ‘Sometimes he wanted to speak freely, and sometimes just a short visit. I could have realized that last part a bit better so I wouldn’t have stayed too long and have the nurse telling me I should visit less often.’ | |
R09 Case: ‘Mr. C. had attacks of severe pain, itch and dyspnoea. He didn’t want this anymore and talked with the general practitioner about euthanasia, but couldn’t make a decision, because of an inner conflict with his religious values. In conversation with Mr. C., his partner and daughter, I clarified the situation, values and (religious) coping style of Mr. C., after which he could come to an informed decision.’ What went well: ‘The opinions and values of Mr. C. were openly discussed, without any pressure into a certain direction. As well as the concern for his wife and daughter, and the burden Mr. C. thought to be, as a possible factor in the decision-making process. Also, good communication with the general practitioner.’ What could have gone better: ‘Prior information on an alternative, palliative sedation, could have been more clear.’ |