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Table 2 Outcomes and outcome measures of ACP+ trial

From: Implementing the theory-based advance care planning ACP+ programme for nursing homes: study protocol for a cluster randomised controlled trial and process evaluation

OutcomeRespondentNo. of itemsItem example(s)
Knowledge of ACPNursing home care staff (primary outcome)11 items*“A resident can only assign a family member as his/her legal representative”
Self-efficacy towards ACPNursing home care staff (primary outcome)12 items†“Point out how much confidence you have in your own skills with regard to the following activities/roles: To explain the role of a legal representative to residents and family”
Support staff3 items†“Point out how much confidence you have in your own skills with regard to the following activities/roles: To talk about wishes regarding future care with family members and residents”
Volunteer3 items†Same as above
Attitudes towards ACPNursing home care staff12 items‡“GPs should be involved actively to help residents draft an advance directive”
ACP practicesNursing home care staff8 items“Did you start an ACP conversation the past six months?”
Support staff2 itemsE.g. 1: “In the past six months, did you talk with a resident about the next themes: future care and his/her related wishes, dying and death, advance directives?”
E.g. 2: “In the past six months, did you talk with a family member or next-of-kin of a residents, about the next themes: future care and his/her related wishes, dying and death, advance directives?”
Volunteer2 itemsSame as above
Demographic and background informationNursing home care staff Age, gender, date of today, number of years working experience in direct patient care, number of years employment in nursing home sector, current function in the facility, highest education, number of hours working in the nursing home per week, whether or not they received training in palliative care or ACP, average number of residents for which they care on regular working day.
Support staff Age, gender, date of today, number of years working experience in direct patient care, number of years employment in nursing home sector, current function in the facility, highest education, number of hours working in the nursing home per week, whether they received training regarding one of the following themes: vision and values of the nursing home, palliative care, communication skills, information transfer about resident to other care staff, ACP, other; if they had a personal conversation with a resident that has dementia or Alzheimer’s.
Volunteer7 itemsAge, gender, date of today, employment status, highest education, number of years active as volunteer, number of years active as volunteer in this nursing home
Structural facility-level characteristicsKey contact person in nursing home21 itemsType of facility, number of beds recognized by government, number of beds available, number of beds occupied, number of residents per KATZ scale category, umbrella organisation, with which electronic resident file system they work (e.g. GERACC, Care Solutions or others), number of residents died over past six months, average time of stay, availability of specific written guidelines available about palliative care or ACP, availability of patient-specific forms regarding ACP, % of residents died in nursing home, % of residents that has an up-to-date plan regarding end-of-life care, number of residents with written AD, regular multidisciplinary team meetings, number of staff: FTE and heads, number of volunteers registered in nursing home, number of hours per week the coordinating advisory physician is present in facility, number of GPs involved with patients in nursing home
  1. ACP advance care planning; GP general practitioner; FTE full-time equivalent; AD advance directive; KATZ index of independence in activities in daily living; GERACC software package for nursing homes in Belgium
  2. *Response categories: ‘True’, ‘False’ or ‘I don’t know’
  3. †Response categories: 10-point Likert scale, ranging from ‘little confidence’ (=0) to ‘a lot of confidence’ (=10) and ‘not applicable’
  4. ‡Response categories: 5-point Likert scale ranging from ‘Completely disagree’ (=0) to ‘Completely agree’ (=5)
  5. §Response categories: ‘Yes’ or ‘No’