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Table 2 Description of the quality of life in life-threatening illness - family carer/caregiver version (QOLLTI-F v2)

From: Measuring quality of life in life-threatening illness – content validity and response processes of MQOL-E and QOLLTI-F in Swedish patients and family carers

Item no.

Dimension

Item content

Single item

Overall QoL

Overall QoL

1

Environment

Satisfaction with place of care

2

Privacy

3

Patient condition

Distress related to patient condition

4

Carers own state

Control over life

5

Time to take care of oneself

6

Clarity of thought

7

Physical state

8

Emotional state

9

Carers outlook

Feeling about caring for the family member (patient)

10

Comfort from outlook, faith or spirituality

11

Meaning in life

12

Quality of care

Agreement with decision making process for patient

13

Availability of health carea

14

Quality of care

15

Relationships

Interaction with patient

16

Interaction with the other important people

17

Financial worries

Stress due to financial situation

  1. a Item 13 is excluded from the final version of QOLLTI-F v3