Skip to main content

Table 2 Characteristics of study participants (n = 41)

From: Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver’ support needs

 n (%)
Sex (female)35 (85.4)
Age [range 26–81] (M, SD)61.1 (±12.5)
Educational level (primary, secondary, tertiary)5 (12.2)/ 12 (29.3)/ 24 (58.5)
Cultural background
 Dutch (native)31 (75.6)
 Non-Dutch (Western)6 (14.6)
 Non-Dutch (non-Western)4 (9.8)
Has provided family care in the past26 (63.7)
Currently provides family care15 (36.3)
Provides/provided care for
 Partner20 (48.8)
 Parent16 (39)
 Other5 (12.2)
Type of illness
 Cancer16 (39)
 Dementia16 (39)
 Organ failure13 (31.7)
 Stroke (CVA)5 (12.2)
 Other a8 (19.5)
Contact frequency with care recipient
 Lives in same house23 (56.1)
 Daily contact16 (39)
 Weekly contact2 (4.9)
Received support from
 Own network28 (68.3)
 Home-care staff30 (73.2)
 Volunteers6 (14.6)
 Other b5 (12.2)
 No support2 (4.9)
Paid work when family care started (yes)23 (56.1)
Work hours per week [range 10–66] (M, SD)32.2 (±12.7)
Adjusted work situation because of family care (yes) c14 (60.9)
 Quit job10 (43.5)
 Work adjustments d7 (30.4)
 Care/sick leave4 (17.4)
  1. Note: a Other diseases or problems that were mentioned included progressive neurologic disorder, prolapse, dehydration, urinary infection, delirium, open wounds, multiple falling accidents and posttraumatic stress disorder (war trauma). b Other support included dementia support groups, case managers and privately paid caregivers. c Percentage of working family caregivers. d Work adjustments included reduced working hours, flexible working hours and working from home