Skip to main content

Table 3 Statements, factor arrays, explained variance and eigenvalues

From: Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver’ support needs

StatementsProfiles
1234
1Looking after my relative gives me a good feeling322*−3**
2It is difficult to set your own boundaries and stand up for yourself3112
3I need more support with practical help in the home0−10−1
4I need more support with my financial, legal or work issues−10**−2−2
5I appreciate it when someone asks me how I am myself2211
6The help that my relative needs rests too heavily on my shoulders1−2**0**1
7I became closer to my relative during the period that I was providing care0**3**1**−1**
8Healthcare professionals take sufficient time to answer my questions−12**−10*
9My relative’s situation is a constant preoccupation2333
10I find it difficult to acknowledge that I also need support or help0112
11I need more support in maintaining my social contacts0−1−2−2
12I need more support with getting a break from caring overnight0*1*0*−2**
13I need more support with equipment to help care for my relative−20−1−2
14I can do it myself, I don’t need support from healthcare professionals or volunteers−11**−3**−1
15There is room and attention for my relative’s habits and my own habits−12**−20**
16It would be good if you could talk to home-care staff and/or volunteers separately, not in the presence of the sick relative1011
17The arrangements for the support of family caregivers fit my needs well−2**1*00
18My independence is suffering00−1*1
19My involvement with my relative means that I feel very tied1112
20Healthcare professionals listen to my relative’s wishes and my own wishes0**2**−2**1**
21Combining the responsibility for my relative and for my job and/or family is not easy1100
22I need more support with managing my relative’s symptoms, including giving medicines−3**03**0
23I always have to be available for my relative2−2**23**
24I need more support with understanding my relative’s illness−3−22**0**
25I want more support in dealing with (family) conflicts−10**−1− 1
26I need more support with providing personal care for my relative (e.g. dressing, washing, toileting)−1− 10*−3**
27I want to be more involved in decisions regarding the care for my relative0−3*−1− 1
28I need more support with talking with my relative about his or her illness−2− 221
29I would like to be better prepared for what is going to happen in the future, so I will know how to react to situations0−12**− 1
30I need more support with having time off1**−1−22**
31Generally speaking I felt very pressured because of the situation of my relative10**12
32I need more support with dealing with my feelings and worries1−3**01
33It would help me to get in touch with people in a similar situation through a platform−1−100
34I need more support with looking after my own health0−1−10
35I would like an assigned contact person who I can ask for advice if necessary2−110
36I want more coordination between family members, friends or acquaintances, so I can better share the care tasks with others−20−1− 1
37I think it is important to get appreciation and recognition for my role and know-how2**000
38I want more information about what will happen after my relative dies−10−1−2
39I need more support with my beliefs or spiritual concerns−2− 2−3**−1
40I appreciate it if someone asks me if I can carry on caring for him/her like this1101
Explained variance (%)1011109
Eigenvalue4.104.514.103.69
  1. Note: Profile 1 = Wants appreciation and contact person, 2 = Wishes for supportive relationships, 3 = Wants guidance, information and practical/medical support, 4 = Needs more time off. Distinguishing statements are marked as follows: *P < 0.05, **P < 0.01. A factor array of “+ 3” indicates that a family caregiver in that profile would most agree with that statement and a factor array of “-3” score that he or she would most disagree with that statement. The statements with factor arrays in italics did not distinguish between any pair of factors (these are the consensus items)