Table 3 Statements, factor arrays, explained variance and eigenvalues
Statements | Profiles | ||||
|---|---|---|---|---|---|
1 | 2 | 3 | 4 | ||
1 | Looking after my relative gives me a good feeling | 3 | 2 | 2* | −3** |
2 | It is difficult to set your own boundaries and stand up for yourself | 3 | 1 | 1 | 2 |
3 | I need more support with practical help in the home | 0 | −1 | 0 | −1 |
4 | I need more support with my financial, legal or work issues | −1 | 0** | −2 | −2 |
5 | I appreciate it when someone asks me how I am myself | 2 | 2 | 1 | 1 |
6 | The help that my relative needs rests too heavily on my shoulders | 1 | −2** | 0** | 1 |
7 | I became closer to my relative during the period that I was providing care | 0** | 3** | 1** | −1** |
8 | Healthcare professionals take sufficient time to answer my questions | −1 | 2** | −1 | 0* |
9 | My relative’s situation is a constant preoccupation | 2 | 3 | 3 | 3 |
10 | I find it difficult to acknowledge that I also need support or help | 0 | 1 | 1 | 2 |
11 | I need more support in maintaining my social contacts | 0 | −1 | −2 | −2 |
12 | I need more support with getting a break from caring overnight | 0* | 1* | 0* | −2** |
13 | I need more support with equipment to help care for my relative | −2 | 0 | −1 | −2 |
14 | I can do it myself, I don’t need support from healthcare professionals or volunteers | −1 | 1** | −3** | −1 |
15 | There is room and attention for my relative’s habits and my own habits | −1 | 2** | −2 | 0** |
16 | It would be good if you could talk to home-care staff and/or volunteers separately, not in the presence of the sick relative | 1 | 0 | 1 | 1 |
17 | The arrangements for the support of family caregivers fit my needs well | −2** | 1* | 0 | 0 |
18 | My independence is suffering | 0 | 0 | −1* | 1 |
19 | My involvement with my relative means that I feel very tied | 1 | 1 | 1 | 2 |
20 | Healthcare professionals listen to my relative’s wishes and my own wishes | 0** | 2** | −2** | 1** |
21 | Combining the responsibility for my relative and for my job and/or family is not easy | 1 | 1 | 0 | 0 |
22 | I need more support with managing my relative’s symptoms, including giving medicines | −3** | 0 | 3** | 0 |
23 | I always have to be available for my relative | 2 | −2** | 2 | 3** |
24 | I need more support with understanding my relative’s illness | −3 | −2 | 2** | 0** |
25 | I want more support in dealing with (family) conflicts | −1 | 0** | −1 | − 1 |
26 | I need more support with providing personal care for my relative (e.g. dressing, washing, toileting) | −1 | − 1 | 0* | −3** |
27 | I want to be more involved in decisions regarding the care for my relative | 0 | −3* | −1 | − 1 |
28 | I need more support with talking with my relative about his or her illness | −2 | − 2 | 2 | 1 |
29 | I would like to be better prepared for what is going to happen in the future, so I will know how to react to situations | 0 | −1 | 2** | − 1 |
30 | I need more support with having time off | 1** | −1 | −2 | 2** |
31 | Generally speaking I felt very pressured because of the situation of my relative | 1 | 0** | 1 | 2 |
32 | I need more support with dealing with my feelings and worries | 1 | −3** | 0 | 1 |
33 | It would help me to get in touch with people in a similar situation through a platform | −1 | −1 | 0 | 0 |
34 | I need more support with looking after my own health | 0 | −1 | −1 | 0 |
35 | I would like an assigned contact person who I can ask for advice if necessary | 2 | −1 | 1 | 0 |
36 | I want more coordination between family members, friends or acquaintances, so I can better share the care tasks with others | −2 | 0 | −1 | − 1 |
37 | I think it is important to get appreciation and recognition for my role and know-how | 2** | 0 | 0 | 0 |
38 | I want more information about what will happen after my relative dies | −1 | 0 | −1 | −2 |
39 | I need more support with my beliefs or spiritual concerns | −2 | − 2 | −3** | −1 |
40 | I appreciate it if someone asks me if I can carry on caring for him/her like this | 1 | 1 | 0 | 1 |
Explained variance (%) | 10 | 11 | 10 | 9 | |
Eigenvalue | 4.10 | 4.51 | 4.10 | 3.69 | |