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Table 4 The main characteristics of the four profiles

From: Profiles of family caregivers of patients at the end of life at home: a Q-methodological study into family caregiver’ support needs

ComponentProfile 1
Appreciation and contact person
Profile 2+
Supportive relationships
Profile 2-
Omission of supportive relationships
Profile 3
Guidance, information and practical/medical support
Profile 4
More time off
Support needs to enable caregiver to provide care (co-worker)Assigned contact person to coordinate careSharing care and shared decision-makingSharing care and shared decision-makingInformation and guidance (care coordination and illness trajectory) and practical/medical support (managing symptoms and medication)Minimal; refrains from asking for help
Support needs for caregivers themselves
Advice and listening earTake over care at nightSupport with own feelings and worries, and take over care at nightNo support needs expressedMore time off
Experienced supportFeels undervalued and wants more appreciationPositive. Receives sufficient support from multiple sourcesNegative. Feels neglected by healthcare professionalsCritical: wishes are not fulfilled by healthcare professionalsCritical: involvement of more professionals is at the expense of own privacy and quality of care
Experiences with caregivingProviding care feels goodCare enhances relationship with relativeFeels overwhelmed and aloneProviding care is satisfying but not always easyCare is demanding, and struggling with changing relationship with relative
Caregiver capacityCan cope well with care, but needs empowermentCan cope well with care and manages care pretty wellStruggling with care on their ownCan cope with care, but needs support to continue caregivingCan hardly cope with care and experiences a heavy burden