Table 1 Semi-structure interview topic guides with prompts
Topic | Patients | Family members | Physicians |
|---|---|---|---|
Early integration of PC | Could you please tell me what you thought when the haematologist proposed you this intervention? Did you talk with anyone about it? How did you experience it? | Could you please tell me what you thought when the haematologist proposed to your loved-one this intervention? | Could you please tell me what you thought about this intervention when you heard about it? |
Relationship | Could you please tell me how is the relationship with the hematologist? And what about the palliativist? | Could you please tell me what is your relationship with the hematologist? And what about the palliativist? | How is your relationship as a physician with the patients in the study? |
Perceived benefits/strengths | Regarding your participation in this study, could you please tell me what was good for you? What can be the positive aspects of this? | Regarding the participation in this study, could you please tell me what was good for you as caregiver? What can be the positive aspects of this? | Regarding this study, could you please tell me what the strengths of this intervention are, according to your opinion? If it impacted on your usual job, how did it do? |
Concerns/weaknesses | Could you please tell me if you had concerns about the intervention? What can be the negative aspects of this? | Could you please tell me if you had concerns about the intervention? What can be the negative aspects of this? | Regarding this study, could you please tell me what the weaknesses of this intervention are? |
Feelings | In general, could you please tell me how you felt during this study? Is there any example you would like to share? What about the support you received? | In general, could you please tell me how you felt during this study? Is there any example you would like to share? What about the support you received? And what about the support your loved-one received? | As professional caregiver, could you please tell me how you felt? How did you experience the relationship with the palliativist? And with the patients and their family members? |
Decision-making and advance care planning | Could you please tell me how you made the decisions this intervention required? What did you think when you have been involved in the advance care planning? | Could you please tell me how the decision-making process went? What did you think when you have been involved in the advance care planning of your loved-one? | Could you please tell me your opinion about the decision-making process with patients and caregivers during the intervention? How did it go? What are you opinions/prerogatives about/in advance care planning? |