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Table 3 Cohort characteristics by pain severity in the last 30 days of life

From: Severe pain at the end of life: a population-level observational study

 

No severe daily pain

(%)

Severe daily pain

(%)

All

N

N

N

ADLSa

 Independent

3180

83.2%

641

16.8%

3821

 Supervision required

1475

82.4%

316

17.6%

1791

 Limited impairment

3113

83.1%

633

16.9%

3746

 Extensive assistance required (I)

1900

83.2%

383

16.8%

2283

 Extensive assistance required (II)

3017

83.4%

602

16.6%

3619

 Dependent

2760

80.5%

667

19.5%

3427

 Total dependence

1399

84.2%

263

15.8%

1662

IADLsb

 No difficulty in any of three IADLs

97

93.3%

7

6.7%

104

 Some difficulty in one IADL but no difficulty in the other two

158

88.3%

21

11.7%

179

 Some difficulty in two IADLs but no difficulty in the other one

474

85.3%

82

14.7%

556

 Some difficulty in all three IADLs

94

89.5%

11

10.5%

105

 Great difficulty in one IADL but less than great difficulty in the other two

1240

82.0%

273

18.0%

1513

 Great difficulty in two IADLs but less than great difficulty in the other one

7373

79.9%

1856

20.1%

9229

 Great difficulty in all three IADLs

7408

85.5%

1255

14.5%

8663

Cognitive Performance Scale (CPS)

 Intact

3230

79.7%

824

20.3%

4054

 Borderline intact

2260

79.2%

595

20.8%

2855

 Mild impairment

5853

82.1%

1275

17.9%

7128

 Moderate impairment

2395

86.3%

381

13.7%

2776

 Moderate/severe impairment

722

88.4%

95

11.6%

817

 Severe impairment

1352

88.1%

183

11.9%

1535

 Very severe impairment

1032

87.2%

152

12.8%

1184

Caregiver Stress

 Yes

7383

81.7%

1652

18.3%

9035

 No

9461

83.6%

1853

16.4%

11,314

Where Lived at Time of Referral

 Missing

8659

83.2%

1747

16.8%

10,406

 Private home/apt. With no home care services

5184

81.8%

1156

18.2%

6340

 Private home/apt. With home care services

1803

82.5%

383

17.5%

2186

 Board and care/assisted living/group home

768

84.1%

145

15.9%

913

 Residential care facility

241

85.5%

41

14.5%

282

 Other

189

85.1%

33

14.9%

222

Who Lived with at Time of Referral

 Missing

8659

83.2%

1747

16.8%

10,406

 Lived alone

2300

82.9%

476

17.1%

2776

 Lived with spouse only

2798

81.6%

633

18.4%

3431

 Lived with spouse and other(s)

666

81.0%

156

19.0%

822

 Lived with child (not spouse)

1105

81.3%

254.0

18.7%

1359

 Lived with other(s) (not spouse or children)

572

84.5%

105

15.5%

677

 Lived in group setting with non-relative(s)

744

84.7%

134

15.3%

878

Disease Trajectoryc

 Frailty

3317

87.3%

481

12.7%

3798

 Organ Failure

7596

85.0%

1344

15.0%

8940

 Sudden Death

671

83.4%

134

16.6%

805

 Undetermined

323

83.0%

66

17.0%

389

 Other

531

79.5%

137

20.5%

668

 Terminal Illness

4406

76.6%

1343

23.4%

5749

  1. aActivities of Daily Living
  2. Extensive assistance—Client performed part of activity on own (50% or more of subtasks), but help of following type(s) were provided 3 or more times:
  3. (I) Weight-bearing support—OR—
  4. (II) Full performance by another during part (but not all) of last 3 days
  5. Dependent—Client involved and completed less than 50% of subtasks on own (includes 2+ person assist), received weight bearing help
  6. Total dependence—Full performance of activity by another
  7. bInstrumental Activities of Daily Living
  8. cDisease trajectories - frailty (e.g., dementia), organ failure (e.g., congestive heart failure), terminal illness (e.g., cancer)