Skip to main content

Table 3 Detrimental external factors that led to emotional burden among family caregivers in the context of a difficult decision-making process (Path 1)

From: Ethical challenges in family caregivers of patients with advanced cancer – a qualitative study

External factors that led to emotional burden

Insufficient Time

• To make the decision

• To confront the situation

• To reevaluate the situation

• To prepare for what is to come

Insufficient Information

• About the consequences of the decision for their loved ones and their suffering

• About the length of time

• Discrepancy: “For a long time nothing is said, and then come sudden announcements”

Insufficient Support

• From the social environment

• From the family

• From physicians / specialist outpatient palliative care teams

• From the patient