Table 3 Quality of Life Focus for Older Persons, Family, and Navigators

1. Pain levels and other symptoms (E.g. SOB, confusion, dizziness etc.)

2. Changes to eyesight, hearing, and taste

3. Energy levels

4. Concerns for family and pets

5. Financial matters

6. Relocation/housing

7. Companion and/or assistance with groceries, shopping

8. Treatment side effects

9. Healthcare professionals

10. Own or others’ accomplishments

11. Faith/spirituality

12. Outlook on life and death

13. Uncertainty of illness trajectory

14. Special occasions/Visits/Trips

15. Home healthcare products/devices

16. Level of independence

17. Home and vehicle maintenance

18. Meals and food choice

19. Homecare

20. Advance care planning/future planning

21. Issues with elimination (e.g. incontinence, bowel irregularity)

22. Weather

23. Ability to participate in recreation/hobbies

24. Spousal or family illness

25. Physical therapies and complementary therapies

26. Relationships/Friendship

27. Phone and TV connection

28. Mobility

29. Transportation

30. Direct care needs

31. Mental health

32. Caregiver respite

33. Meaningful connection and reflection

1. Respite time

2. Caregiver burnout

3. Supporting client’s changing needs

4. Keeping realistic expectations

5. Interpersonal conflict

6. Too many people involved in client’s care

7. Emotional impact of caregiving

8. Social isolation

9. Future planning

10. Financial concerns

11. Concern about client’s symptoms/illness

12. Managing or accessing help with household chores and errands

13. Concern for client’s care arrangements

14. Balancing own health concerns with caregiving

15. Anticipatory grief

16. Finding appropriate resources/answers from HCPs

17. Transportation

18. Self-care

1. General social support

2. Access to home medical equipment and supplies

3. Financial assistance

4. Transportation

5. Easy access to appropriate healthcare personnel and medications

6. Open communication/planning for end of life

7. Companion or other solution for outings or errands

8. Ability to participate in hobbies

9. Assistance with maintaining home

10. Better symptom control

11. Support for/knowledge of client’s specific condition

13. Ability to “get out and about”

14. Mental health support

15. Means to communicate (e.g. phone line)

16. Assistance with meals

17. Emergency/short notice contact

18. Meaningful connection/source of meaning-making.