Skip to main content

Table 3 Quality of Life Focus for Older Persons, Family, and Navigators

From: Implementing volunteer-navigation for older persons with advanced chronic illness (Nav-CARE): a knowledge to action study

Older Person Quality of Life Concerns Family Quality of Life Concerns Navigator Quality of Life Focus
1. Pain levels and other symptoms (E.g. SOB, confusion, dizziness etc.)
2. Changes to eyesight, hearing, and taste
3. Energy levels
4. Concerns for family and pets
5. Financial matters
6. Relocation/housing
7. Companion and/or assistance with groceries, shopping
8. Treatment side effects
9. Healthcare professionals
10. Own or others’ accomplishments
11. Faith/spirituality
12. Outlook on life and death
13. Uncertainty of illness trajectory
14. Special occasions/Visits/Trips
15. Home healthcare products/devices
16. Level of independence
17. Home and vehicle maintenance
18. Meals and food choice
19. Homecare
20. Advance care planning/future planning
21. Issues with elimination (e.g. incontinence, bowel irregularity)
22. Weather
23. Ability to participate in recreation/hobbies
24. Spousal or family illness
25. Physical therapies and complementary therapies
26. Relationships/Friendship
27. Phone and TV connection
28. Mobility
29. Transportation
30. Direct care needs
31. Mental health
32. Caregiver respite
33. Meaningful connection and reflection
1. Respite time
2. Caregiver burnout
3. Supporting client’s changing needs
4. Keeping realistic expectations
5. Interpersonal conflict
6. Too many people involved in client’s care
7. Emotional impact of caregiving
8. Social isolation
9. Future planning
10. Financial concerns
11. Concern about client’s symptoms/illness
12. Managing or accessing help with household chores and errands
13. Concern for client’s care arrangements
14. Balancing own health concerns with caregiving
15. Anticipatory grief
16. Finding appropriate resources/answers from HCPs
17. Transportation
18. Self-care
1. General social support
2. Access to home medical equipment and supplies
3. Financial assistance
4. Transportation
5. Easy access to appropriate healthcare personnel and medications
6. Open communication/planning for end of life
7. Companion or other solution for outings or errands
8. Ability to participate in hobbies
9. Assistance with maintaining home
10. Better symptom control
11. Support for/knowledge of client’s specific condition
13. Ability to “get out and about”
14. Mental health support
15. Means to communicate (e.g. phone line)
16. Assistance with meals
17. Emergency/short notice contact
18. Meaningful connection/source of meaning-making.