Answered EORTC QLQ-C15-PAL | ||||
---|---|---|---|---|
Yes | No | |||
N | % | N | % | |
All | 24,589 | 100 | 24,718 | 100 |
Age | ||||
Mean | 68.5 | 69.2 | ||
Median | 69 | 70 | ||
Range | 19–101 | 18–105 | ||
Gender | ||||
Women | 12,150 | 49.4 | 12,695 | 51.4 |
Men | 12,439 | 50.6 | 12,023 | 48.6 |
Cancer site/diagnosis | ||||
Head and neck | 765 | 3.1 | 730 | 3.0 |
Esophagus | 844 | 3.4 | 738 | 3.0 |
Stomach | 772 | 3.1 | 700 | 2.8 |
Small Intestine | 177 | 0.7 | 160 | 0.7 |
Colon and rectum | 2984 | 12.1 | 2795 | 11.3 |
Liver and intrahepatic bile ducts | 828 | 3.4 | 887 | 3.6 |
Pancreas | 1878 | 7.6 | 1735 | 7.0 |
Lung, bronchus and trachea | 6381 | 26.0 | 6250 | 25.3 |
Melanoma | 518 | 2.1 | 549 | 2.2 |
Breast | 2003 | 8.2 | 1986 | 8.0 |
Cervix | 248 | 1.0 | 246 | 1.0 |
Uterus | 277 | 1.1 | 311 | 1.3 |
Ovary | 886 | 3.6 | 870 | 3.5 |
Prostate | 1843 | 7.5 | 1629 | 6.6 |
Bladder | 617 | 2.5 | 710 | 2.9 |
Kidney, renal pelvis, ureter | 753 | 3.1 | 700 | 2.8 |
Brain and central nervous system | 637 | 2.6 | 1091 | 4.4 |
Lymphoma | 158 | 0.6 | 225 | 0.9 |
Myelomatosis | 205 | 0.8 | 210 | 0.9 |
Leukaemia | 225 | 0.9 | 331 | 1.3 |
Sarcomas and other soft tissues | 298 | 1.2 | 281 | 1.1 |
Other cancer site | 767 | 3.1 | 831 | 3.4 |
Unknown cancer site | 525 | 2.1 | 753 | 3.1 |
Specialized palliative care service | ||||
Palliative care teams | 18,207 | 74.0 | 12,880 | 52.1 |
Hospice | 6382 | 26.0 | 11,838 | 47.9 |
Survival time from start of specialized palliative care to death (days) | ||||
Mean | 94.0 | 64.5 | ||
Median | 42 | 20 | ||
Range | 0–2126 | 0–2101 | ||
Year of admission | ||||
2010 | 2716 | 11.0 | 4172 | 16.9 |
2011 | 3400 | 13.8 | 4528 | 18.3 |
2012 | 4364 | 17.7 | 4164 | 16.8 |
2013 | 4929 | 20.0 | 4054 | 16.4 |
2014 | 5019 | 20.4 | 4076 | 16.5 |
2015 | 4161 | 16.9 | 3724 | 15.1 |
Response ratea | ||||
< 20% | 602 | 2.5 | 5501 | 22.3 |
20.0–29.9% | 1282 | 5.2 | 3957 | 16.0 |
30.0–39.9% | 2145 | 8.7 | 4183 | 16.9 |
40.0–49.9% | 2926 | 11.9 | 3537 | 14.3 |
50.0–59.9% | 3442 | 14.0 | 2795 | 11.3 |
≥ 60.0% | 14,192 | 57.7 | 4745 | 19.2 |
Number of questionnaires completed per patientb | ||||
1 | 20,285 | 90.5 | – | – |
2 | 2102 | 9.4 | – | – |
3 | 32 | 0.1 | – | – |
4 | 1 | 0.0 | – | – |
EORTC scale-scores (mean, range) | ||||
Pain | 56.4 (0.0–100.0) | – | – | |
Dyspnea | 58.0 (0.0–100.0) | – | – | |
Sleeplessness | 37.0 (0.0–100.0) | – | – | |
Appetite loss | 58.3 (0.0–100.0) | – | – | |
Constipation | 33.3 (0.0–100.0) | – | – | |
Fatigue | 75.9 (0.0–100.0) | – | – | |
Nausea/vomiting | 24.8 (0.0–100.0) | – | – | |
Emotional function | 64.8 (0.0–100.0) | – | – | |
Physical function | 27.4 (0.0–93.3) | – | – | |
Overall quality of life | 39.0 (0.0–100.0) | – | – |