Variable domain (relating subsystem or suprasystem) | Variable (range of response alternatives/index) | % responses | Description (mean [SD]; range) or percent | Wald valuesa for individual variable | Relation-ship |
---|---|---|---|---|---|
II. Patient characteristics (SUBSYSTEM: Family member -Closest family) | Patient demographics | ||||
Patient’s age (in years) | 94 | 68.5 [13.77]; (20–94) | 0.53 | ||
Patient’s gender: male/ female | 94 | 39%/ 55% | 1.29 | ||
Patient native born in Sweden | 99 | 88% | 0.30 | ||
Patient’s living conditions | |||||
Alone | 98 | 27% | 2.07 | ||
With wife/husband/co-habitant | 98 | 65% | 0.04 | ||
With child | 98 | 5% | 4.40 | neg | |
With other | 98 | 8% | 3.44 | ||
Geographical distance between housing of patient and family member | 99 | 0.44 | |||
Same household/ 5–60 min distance/More than 1 h | 62%/ 30%/ 6% | ||||
Patient illness | |||||
Patient having difficulties with memory (1 (never) – 5 (very often) | 99 | 2.16 [1.27]; (1–5) | 0.48 | ||
Patient having changed behaviour (1 (never) - 5 (very often)) | 99 | 2.39 [1.18];(1–5) | 5.09 | neg | |
Malignant diagnoses | |||||
Gastro-intestinal | 94 | 30 | 0.02 | ||
Respiratory | 94 | 11% | 2.85 | ||
Breast | 94 | 11% | 0.29 | ||
Gynaecological | 94 | 6% | 0.21 | ||
Urological | 94 | 13% | 0.19 | ||
Haematological | 94 | 6% | 1.69 | ||
Other malignancies | 94 | 10% | 0.72 | ||
Non-malignant diagnosesb | 94 | 7% | 0.18 | ||
Time since diagnosis (in months) | 99 | 35.0 [44.89];1–240) | 0.03 | ||
III. Other more distant family members’ support to the interviewed family member (SUBSYSTEM: Family member - Other more distant family member) s | Support to family member from other family members than the closest family (1 (never) - 6 (always)) | 98 | 4.68 [1.16];(2–6) | 50.24 | pos |
IV. Other family members’ support to patient (SUBSYSTEM: Patient – Other family members (than the interviewed family member) | Support to patient from other family members, relatives or friends (1 (never) - 6 (always)) | 97 | 4.57 [1.25];(1–6) | 43.97 | pos |
V. Sense of security in palliative home care (SUPRASYSTEM: Family member - Palliative home care unit) | The family members’ sense of security with palliative care: Care interaction subscale (SEC-Rc; 1 (never) - 6 (always)) | 99 | 5.12 [0.70];(1–6) | 4.55 | pos |
Mastery subscale (SEC-R; 1 (never) - 6 (always)) | 100 | 4.20 [0.96];(1.6) | 8.42 | pos | |
Patient situation subscale (SEC-R; 1 (never) - 6 (always)) | 100 | 4.82 [0.76];(1–6) | 21.17 | pos | |
Time from commencement of palliative home care to the interview with the family member (days) | 93 | 187 [377.7];(11–4256) | 1.72 |