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Clinicians and patients potentially concerned or distressed about the term ‘advanced cancer’ used in the approved (by our PPI and the REC) study recruitment materials.
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The term ‘advanced cancer’ removed from materials and replaced with ‘cancer’.
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Amendment approved month 5 of recruitment
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The study was hard to quickly introduce and explain in a busy clinic environment
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A quick-read bi-fold summary leaflet was prepared, worded and laid out according to PPI feedback, attached to the outside of the recruitment pack.
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Amendment approved month 5 of recruitment
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Most potential participants were taking a recruitment pack in clinic, but not responding to the research team.
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Telephone follow up by the research nurse teams at the recruiting sites added.
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Amendment approved month 9 of recruitment.
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Cancer centre clinics may not be the most appropriate place to recruit participants for this type of study.
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Hospices added as recruitment sites
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Amendment approved month 11 of recruitment.
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