From: Role of norms in variation in cancer centers’ end-of-life quality: qualitative case study protocol
Data Collection Method | Rationale |
---|---|
Direct observation | To learn about EOL care for minority patients with advanced cancer, specifically how it is influenced by: |
1. Organizational and provider practice norms | |
2. Provider decision making heuristics | |
3. Patient and family expectations | |
Semi-structured interviews | |
Leadership | To probe organization-level: |
1. Norms, including resources, programs, and policies | |
2. Site-specific workflows and scheduling logistics | |
Providers | To explore individual-level: |
1. Motivations, decision heuristics, and/or rationalizations | |
2. Unconscious beliefs and assumptions that structure advanced cancer decision making, using case vignettes to prime mental models | |
Patients, family members, caregivers | To probe individual-level: |
1. Preferences for cancer care | |
2. Past, current, and future decisions related to cancer care | |
Artifact collection | To learn how the organization standardizes workflows, marketing/informational materials, orientation guidelines, quality reporting, and communication documents used in the cancer center, and how this impacts: |
1. Local organizational and provider practice norms | |
2. Provider decision making heuristics | |
3. Patient and family expectations |