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Table 2 Additional Survey Responses

From: Perceptions of palliative care in a South Asian community: findings from an observational study

Respondents on whether they have heard of Palliative Care

 Yes

10 (30.3%)

 No

23 (69.7%)

If yes to above, level of knowledgea

 Slightly Knowledgeable

8 (80%)

 Moderately Knowledgeable

1 (10%)

 Very Knowledgeable

1 (10%)

Participant understanding of the term – Palliative Care

 Stopping medical treatment only

1

 Comfort measures only

10

 Total care of a patient with a life limiting illness

9

 Symptom management of a life limiting illness

5

 Medical assisted aid in dying

2

Other:

 Pain Management

2

 End of Life

2

 Invalidatedc

1

Source of information regarding Palliative Care prior to receiving this survey b

 Not applicable

17

 Family Physician / Primary care provider discussed it

9

 Close friend or relative’s experience with Palliative Care

4

 Know of someone involved or received Palliative Care

2

 Conversation with friend / family / acquaintance

0

 Employment in health care

0

 Media (Radio, Television, Newspaper, Magazine, Website, Social media)

0

 Other

4

Perceived benefits associated with palliative careb

 Better quality of life

17

 Less suffering

18

 Longer life span

11

 More resources provided for patient and family

15

 Hastened death

0

 Other (Don’t know/Unspecified)

5

Perceived risks associated with palliative care b

 Worsened quality of life

3

 More suffering

3

 Shorter life span

4

 Stopping treatment

1

 Giving up hope

1

 Other (Don’t know/Unspecified)

19

 Invalidatedc

6

Perceived setting to receive palliative careb

 Home

29

 Hospice

2

 Hospital

14

 Nursing home / Long-Term Care residence

2

 Other

0

Perceived medical professional responsible for providing palliative careb

 Nurse

21

 Doctor

24

 Family/Partners/Relatives

12

 Homecare Providers/Caregivers/Personal Support Worker

7

 Other

2

Perceived most responsible decision maker for Palliative Care Decisions

 Family Member

10

 Family Doctor

4

 Patients

7

 Specialist

2

 Multiple Responses

11

Time point in illness trajectory that participants consider ideal to receive information about Palliative Care

 I would not want information at any point

1

 I would like more information to be generally available

25

 I would only want information to be provided if diagnosed with a life threatening illness

3

 I would only want information if a life threatening illness became a terminal diagnosis

4

 Invalidatedc

1

Discussion about death and dying in the community

 Not enough

23 (67.6%)

 About the right amount

5 (14.7%)

 Too much

6 (17.6%)

Whether Palliative Care aligns with cultural values and/or faith/spiritual beliefs

 Yes

9 (26.5%)

 No

15 (44.1%)

 Unsure

10 (29.4%)

Importance of religion or spiritual belief to participants in Palliative Care

 Not important

5 (14.7%)

 Important

22 (64.7%)

 Unsure

7 (20.6%)

  1. a Subset of Patients who answered yes to question “Have you heard of Palliative Care?”
  2. b Patients selected as many options as applicable to them, therefore total number of responses is greater than number of participants
  3. c Invalidated – no response, or multiple selections nullifying response