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Table 2 Additional Survey Responses

From: Perceptions of palliative care in a South Asian community: findings from an observational study

Respondents on whether they have heard of Palliative Care
 Yes 10 (30.3%)
 No 23 (69.7%)
If yes to above, level of knowledgea
 Slightly Knowledgeable 8 (80%)
 Moderately Knowledgeable 1 (10%)
 Very Knowledgeable 1 (10%)
Participant understanding of the term – Palliative Care
 Stopping medical treatment only 1
 Comfort measures only 10
 Total care of a patient with a life limiting illness 9
 Symptom management of a life limiting illness 5
 Medical assisted aid in dying 2
Other:
 Pain Management 2
 End of Life 2
 Invalidatedc 1
Source of information regarding Palliative Care prior to receiving this survey b
 Not applicable 17
 Family Physician / Primary care provider discussed it 9
 Close friend or relative’s experience with Palliative Care 4
 Know of someone involved or received Palliative Care 2
 Conversation with friend / family / acquaintance 0
 Employment in health care 0
 Media (Radio, Television, Newspaper, Magazine, Website, Social media) 0
 Other 4
Perceived benefits associated with palliative careb
 Better quality of life 17
 Less suffering 18
 Longer life span 11
 More resources provided for patient and family 15
 Hastened death 0
 Other (Don’t know/Unspecified) 5
Perceived risks associated with palliative care b
 Worsened quality of life 3
 More suffering 3
 Shorter life span 4
 Stopping treatment 1
 Giving up hope 1
 Other (Don’t know/Unspecified) 19
 Invalidatedc 6
Perceived setting to receive palliative careb
 Home 29
 Hospice 2
 Hospital 14
 Nursing home / Long-Term Care residence 2
 Other 0
Perceived medical professional responsible for providing palliative careb
 Nurse 21
 Doctor 24
 Family/Partners/Relatives 12
 Homecare Providers/Caregivers/Personal Support Worker 7
 Other 2
Perceived most responsible decision maker for Palliative Care Decisions
 Family Member 10
 Family Doctor 4
 Patients 7
 Specialist 2
 Multiple Responses 11
Time point in illness trajectory that participants consider ideal to receive information about Palliative Care
 I would not want information at any point 1
 I would like more information to be generally available 25
 I would only want information to be provided if diagnosed with a life threatening illness 3
 I would only want information if a life threatening illness became a terminal diagnosis 4
 Invalidatedc 1
Discussion about death and dying in the community
 Not enough 23 (67.6%)
 About the right amount 5 (14.7%)
 Too much 6 (17.6%)
Whether Palliative Care aligns with cultural values and/or faith/spiritual beliefs
 Yes 9 (26.5%)
 No 15 (44.1%)
 Unsure 10 (29.4%)
Importance of religion or spiritual belief to participants in Palliative Care
 Not important 5 (14.7%)
 Important 22 (64.7%)
 Unsure 7 (20.6%)
  1. a Subset of Patients who answered yes to question “Have you heard of Palliative Care?”
  2. b Patients selected as many options as applicable to them, therefore total number of responses is greater than number of participants
  3. c Invalidated – no response, or multiple selections nullifying response