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Table 1 Sociodemographic characteristics of the sample

From: The effect of neuropalliative care on quality of life and satisfaction with quality of care in patients with progressive neurological disease and their family caregivers: an interventional control study

 

Patients with PND

Family caregivers

interventional N = 98

control N = 53

total N = 151

interventional N = 93

control N = 47

total N = 140

Age N (%)

 mean (SD)

62.6 (13.4)

66.3 (11.5)

63.9 (12.8)

52.7 (14.9)

58.1 (14.4)

54.5 (14.9)

 Min–max

38–90

43–91

38–91

22–84

26–85

22–85

Gender N (%)

 Man

39 (39.8)

22 (41.5)

61 (40.4)

38 (41.3)

17 (36.2)

55 (39.6)

 Women

59 (60.2)

31 (58.8)

90 (59.6)

55 (58.7)

30 (63.8)

85 (60.4)

Marital status N (%)

 Single

11 (11.2)

3 (5.7)

14 (9.3)

18 (19.6)

6 (12.8)

24 (17.3)

 Married

48 (49.0)

31 (58.5)

79 (52.3)

67 (71.7)

33 (70.2)

100 (71.2)

 Divorced

20 (20.4)

6 (11.3)

26 (17.2)

6 (6.5)

7 (14.9)

13 (9.4)

 Widow/er

19 (19.4)

13 (24.5)

32 (21.2)

2 (2.2)

1 (2.1)

3 (2.2)

Education N (%)

 Elementary

17 (17.3)

11 (20.8)

28 (18.5)

4 (4.3)

10 (21.3)

14 (10.0)

 Secondary

69 (70.4)

38 (71.6)

107 (70.8)

62 (66.6)

28 (59.6)

90 (64.3)

 Higher

3 (3.1)

0 (0.0)

3 (2.0)

15 (16.1)

5 (10.6)

20 (14.3)

 Tertiary

9 (9.2)

4 (7.5)

13 (8.6)

12 (12.9)

4 (8.5)

16 (11.4)

Employment N (%)

 Employee

3 (3.1)

2 (3.8)

5 (3.3)

58 (62.4)

20 (41.3)

78 (55.7)

 Unemployed

0 (0)

0 (0.0)

0 (0.0)

1 (1.1)

2 (4.3)

3 (2.1)

 Invalid pensioner

48 (49.0)

21 (39.6)

69 (45.7)

2 (2.2)

3 (6.5)

5 (3.6)

 Old-age pensioner

47 (48.0)

30 (56.6)

77 (51.0)

3 (3.2)

18 (39.1)

21 (15.0)

 Other

0 (0)

0 (0.0)

0 (0.0)

29 (31.1)

4 (6.5)

33 (23.6)

Children N (%)

 Yes

84 (85.7)

48 (90.6)

132 (87.4)

74 (79.6)

41 (87.2)

115 (82.1)

Length of diseases/care

 Mean (SD)

16.4 (11.6)

10.1 (7.7)

14.1 (10.8)

10.2 (8.8)

7.33 (8.5)

9.21 (8.7)

 Min-max

2–37 years

2–30 years

2–37 years

1–25 years

0–22 years

0–25 years

Disease

 Multiple sclerosis

54 (55.1)

34 (64.2)

88 (58.3)

51 (54.8)

31 (65.9)

82 (58.7)

 Parkinson’s

42 (42.9)

16 (30.2)

58 (38.4)

40 (43.0)

13 (27.7)

53 (37.6)

 Motor neuron

2 (2.0)

3 (5.6)

5 (3.3)

2 (2.2)

3 (6.4)

5 (3.7)