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Table 1 Sociodemographic characteristics of the sample

From: The effect of neuropalliative care on quality of life and satisfaction with quality of care in patients with progressive neurological disease and their family caregivers: an interventional control study

  Patients with PND Family caregivers
interventional N = 98 control N = 53 total N = 151 interventional N = 93 control N = 47 total N = 140
Age N (%)
 mean (SD) 62.6 (13.4) 66.3 (11.5) 63.9 (12.8) 52.7 (14.9) 58.1 (14.4) 54.5 (14.9)
 Min–max 38–90 43–91 38–91 22–84 26–85 22–85
Gender N (%)
 Man 39 (39.8) 22 (41.5) 61 (40.4) 38 (41.3) 17 (36.2) 55 (39.6)
 Women 59 (60.2) 31 (58.8) 90 (59.6) 55 (58.7) 30 (63.8) 85 (60.4)
Marital status N (%)
 Single 11 (11.2) 3 (5.7) 14 (9.3) 18 (19.6) 6 (12.8) 24 (17.3)
 Married 48 (49.0) 31 (58.5) 79 (52.3) 67 (71.7) 33 (70.2) 100 (71.2)
 Divorced 20 (20.4) 6 (11.3) 26 (17.2) 6 (6.5) 7 (14.9) 13 (9.4)
 Widow/er 19 (19.4) 13 (24.5) 32 (21.2) 2 (2.2) 1 (2.1) 3 (2.2)
Education N (%)
 Elementary 17 (17.3) 11 (20.8) 28 (18.5) 4 (4.3) 10 (21.3) 14 (10.0)
 Secondary 69 (70.4) 38 (71.6) 107 (70.8) 62 (66.6) 28 (59.6) 90 (64.3)
 Higher 3 (3.1) 0 (0.0) 3 (2.0) 15 (16.1) 5 (10.6) 20 (14.3)
 Tertiary 9 (9.2) 4 (7.5) 13 (8.6) 12 (12.9) 4 (8.5) 16 (11.4)
Employment N (%)
 Employee 3 (3.1) 2 (3.8) 5 (3.3) 58 (62.4) 20 (41.3) 78 (55.7)
 Unemployed 0 (0) 0 (0.0) 0 (0.0) 1 (1.1) 2 (4.3) 3 (2.1)
 Invalid pensioner 48 (49.0) 21 (39.6) 69 (45.7) 2 (2.2) 3 (6.5) 5 (3.6)
 Old-age pensioner 47 (48.0) 30 (56.6) 77 (51.0) 3 (3.2) 18 (39.1) 21 (15.0)
 Other 0 (0) 0 (0.0) 0 (0.0) 29 (31.1) 4 (6.5) 33 (23.6)
Children N (%)
 Yes 84 (85.7) 48 (90.6) 132 (87.4) 74 (79.6) 41 (87.2) 115 (82.1)
Length of diseases/care
 Mean (SD) 16.4 (11.6) 10.1 (7.7) 14.1 (10.8) 10.2 (8.8) 7.33 (8.5) 9.21 (8.7)
 Min-max 2–37 years 2–30 years 2–37 years 1–25 years 0–22 years 0–25 years
Disease
 Multiple sclerosis 54 (55.1) 34 (64.2) 88 (58.3) 51 (54.8) 31 (65.9) 82 (58.7)
 Parkinson’s 42 (42.9) 16 (30.2) 58 (38.4) 40 (43.0) 13 (27.7) 53 (37.6)
 Motor neuron 2 (2.0) 3 (5.6) 5 (3.3) 2 (2.2) 3 (6.4) 5 (3.7)
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