Table 2 Search strategy

Searches

AND

AND

palliative care/ or terminal care/

adolescent/ or child/ or child, preschool/ or infant/ or infant, newborn/ or infant, low birth weight/ or infant, small for gestational age/ or infant, very low birth weight/ or infant, extremely low birth weight/ or infant, premature/ or infant, extremely premature/

limit 18 to (yr = “1982 -Current” and (Danish or English or Norwegian or Swedish))

Advance Care Planning/

adolescent health/ or child health/ or infant health/

Terminally Ill/ (palliative or palliation or terminal care or end of life care).tw.

Pediatrics/ family/ or family relations/ or parent-child relations/ or parenting/ or sibling relations/ or grandparents/ or single-parent family/

home care services/ or home care services, hospital-based/ or home nursing/

parents/ or fathers/ or mothers/ or single parent/ or siblings/

(home or homecare or familiar surrounding* or familiar environment).tw.

Caregivers/ (child* or paediatric or pediatric or neonat* or newborn or infant* or adolescent* or youth or juvenile or family or families or parent* or sibling* or mother* or father* or brother* or sister* or grandparent* or relative* or next of kin or care giver* or caregiver* or uncle* or aunt*).tw.