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Table 2 Effective Practice and Organisation of Care (EPOC) Taxonomy “Implementation Strategies” and “Financial Arrangements” Fitting the “Taking Care of You” (TCY) Program Strategy and Objectives

From: Advancing pediatric palliative care in a low-middle income country: an implementation study, a challenging but not impossible task

Subcategory

TCY strategy

Strategy objective

Implementation Strategies

Interventions designed to bring about changes in healthcare organizations, the behavior of healthcare professionals or the use of health services by healthcare recipients

Category: Interventions targeted at healthcare workers

A. Communities of Practice

Local advocacy to convene capacity building

Train a specialized PPC team through graduate programs abroad

B. Educational Materials

Design and create written, and online evidence-based information material

Supply healthcare professionals with key objective topics and information on PPC

C. Educational Meetings

Local, and national educational courses and workshops

Create a successful method to favor mass training and raising awareness on PPC approach and principles for healthcare professionals

D. Interprofessional Education

Coach national multidisciplinary courses and participation in postgraduate university courses

Increase national multidisciplinary knowledge on palliative philosophy

E. Patient-Mediated Interventions

Medical, psychological and social work evaluation of the patient and family to discuss as part of multidisciplinary medical board meetings

Provide a psychosocial and medical perspective of the patient and family prior to multidisciplinary decision-making meetings

Financial Arrangements

Changes in how funds are collected, insurance schemes, how services are purchased, and the use of targeted financial incentives or disincentives

Category: Collection of funds

F. External Funding

Apply for funding through a research grant

Promote and sustain pediatric palliative care in a middle-income country

Category: Insurance schemes

G. Community-Based Health Insurance

Held Advocacy Reunions with health care providers locally

Lower access barriers for patients and families of MIC

Category: Mechanisms for the payment of health services

H. Payment Methods for Health Workers

Reunions with the board of directors and decision-makers emphasizing the added value of PPC, based on enhancing patient and family satisfaction, patient experience, health humanization, and resource optimization

Obtain institutional support to consolidate the team and decrease the access barrier

Delivery Arrangements

Changes in how, when, and where healthcare is organized and delivered, and who delivers healthcare.

Category: Where care is provided and changes to the healthcare environment

I. Site of service delivery

Promote patient attention in the outpatient scenario through medical order

Since most of the patients are referred to the program from hospitalization, we make sure they can continue attention in the outpatient ward

Category: Who provides care and how the healthcare workforce is managed

J. Role expansion or task shifting

Coached local interdisciplinary team meetings, educational meetings among the general PC group.

Guide the conformation of the Pediatric Palliative Care team

Category: Coordination of care and management of care processes

K. Care pathways

Held institutional multidisciplinary meetings with local health care providers

Contextualize life-limiting-and-threatening disease

L. Case management

Participated in multidisciplinary board meetings with treating specialist and several homecare services

Coordinate and guarantee an integrative followup to improve patients care

M. Communication between providers

Coached local interdisciplinary team meetings, support for clinical improvement plans of the team and regional educational meetings

Facilitating and establishing communication and developing an improved dialogue.

N. Continuity of care

While in hospitalization we hold medical board meetings with interdisciplinary teams and promote continuity through outpatient setting followup

Ensuring the responsibility of care and bereavement followup

O. Disease management

Coached educational team meetings, regional meetings with health care professionals and healthcare providers

Promote adequate quality of life during the health-disease-attention process

P. Patient-initiated appointment systems

Providing phone advisory 24 h 7 days a week

Around-the-clock availability for care consultation to direction the family and bereavement care

Q. Referral systems

Coached educational sessions with the hospital’s pediatric departments

Educating about the importance of involving comprehensive care and patients with complex chronic diseases who are candidates for referral to the PPC team

R. Shared decision-making

Meetings and constant communication is held with TCYteam, treating specialist and the family

Establish individualized management goals

S. Teams

Coached local interdisciplinary team meetings, support for clinical improvement plans, and regional educational meetings

Establishing a multidisciplinary team that provides organizational status, coordinated care, and capability based on individualized relevance and effectivity

T. Transition of Care

Interdisciplinary meetings between treating specialist, our team and the family

Provide objective information to the family when a patient’s treatment changes from curative to palliative

  1. PPC Pediatric Palliative Care, MIC Middle Income Country, TCY “Taking Care of You”, MIC Middle-Income countries