|
Female (n, %)
|
8 (67%)
|
|
Age in years (mean, range)
|
52 (27 to 80)
|
|
Married or living with partner (n, %)
|
8 (67%)
|
|
Number of children (mean, range)
|
2.3 (0 to 6)
|
|
Health care use (n, %)
|
|
Outpatient clinic
|
7 (58%)
|
|
Day care and outpatient clinic
|
3 (25%)
|
|
Assisted living facility and outpatient clinic
|
1 (8%)
|
|
Nursing home (without outpatient clinic)
|
1 (8%)
|
|
Familiar with HD before they were diagnosed (n, %)
|
8 (67%)
|
|
Chose to undergo predictive genetic testing (n, %)
|
4 (50%)
|
|
Time since predictive genetic testing (according to patient) in years (mean, range)
|
14 (10 to 25)
|
|
Diagnosed with HD (according to patient) (n, %)
|
11 (92%)
|
|
Time since diagnosis (according to patient) in years (mean, range)
|
5.4 (0.2 to 15)
|
