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Table 1 Demographic details of the participants

From: Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

Demographics Participants
Female (n, %) 8 (67%)
Age in years (mean, range) 52 (27 to 80)
Married or living with partner (n, %) 8 (67%)
Number of children (mean, range) 2.3 (0 to 6)
Health care use (n, %)
 Outpatient clinic 7 (58%)
 Day care and outpatient clinic 3 (25%)
 Assisted living facility and outpatient clinic 1 (8%)
 Nursing home (without outpatient clinic) 1 (8%)
Familiar with HD before they were diagnosed (n, %) 8 (67%)
 Chose to undergo predictive genetic testing (n, %) 4 (50%)
 Time since predictive genetic testing (according to patient) in years (mean, range) 14 (10 to 25)
Diagnosed with HD (according to patient) (n, %) 11 (92%)
 Time since diagnosis (according to patient) in years (mean, range) 5.4 (0.2 to 15)