Table 4 Perceptions of the sense of security in palliative home care of patient and relative dyads; care received and subjective importance by dimensions and items, Context-specific scales with aspects and items

  I (the patient) receive(s) the best possible help for pain

  I (the patient) receive(s) the best possible help for symptoms

  I (the patient) receive(s) the best possible care

  I (the patient) receive(s) the best possible medical treatment

  I (the patient) receive(s) correct doses of medication

  I (the patient) receive(s) medications in time

  I (the patient) receive(s) the best possible help with personal hygiene

  I have (the patient has) access to necessary equipment

  I have (the patient has) a good opportunity to participate in decisions that apply to my (the patient’s) care

  I have (the patient has) a good opportunity to participate in decisions that apply to my (the patient’s) medical treatment

  I have (the patient has) a good opportunity to participate in (the patient’s) decisions that apply to the place where I (the patient) receive(s) treatment and care

  I (the patient) receive(s) useful information on my (the patient’s) illness and symptoms

  I (the patient) receive(s) useful information about what I (the patient) may expect of my (the patient’s) illness. and functional ability

  I (the patient) receive(s) useful information on how tests and treatment will take place

  I (the patient) receive(s) useful information on tests and treatment results

  I (the patient) receive(s) useful information on how I (the patient’s) should take medication

  I (the patient) receive(s) useful information on which physician is responsible for my (his/her) medical care

  I (the patient) receive(s) useful information on which RN is responsible for my (his/her) care

  I (the patient) get(s) honest answers to my (his/her) questions

  I am (the patient is) met with respect by

   - Carers

   - Physician

  I am (the patient is) welcome to talk to the personnel about what is important for me (him/her)

  I (the patient) experience(s) that the personnel understand how I (he/she) feels

   - Carers

   - Physicians

  I (the patient) experience(s) that the personnel show me (him/her) thoughtfulness

   - Carers

   - Physicians

  The nurses’ knowledge is sufficient to give me (the patient) good care

  The physician’s knowledge is sufficient to give me (the patient) good medical treatment

  The knowledge of other personnel is sufficient to give me (the patient) good care

  The personnel know how to carry out procedures

  I (the patient) experience(s) mostly being cared for by the same carer)

  I (the patient) experience(s) knowing in advance which carer is coming to me (the patient)

  I (the patient) experience(s) knowing at what time the carer will come

  I (the patient) experience(s) mostly receiving medical treatment from the same physician

  My (the patient’s) medical treatment from different physicians is well coordinated

  The care is well coordinated

  The care and treatment between carers and physicians is well coordinated

  The cooperation between home care and institutions is good

  I have (the patient has) access to qualified help when needed

  I have (the patient has) access to an institution when needed

  I have (the patient has) access to care promised by carers

  I have (the patient has) access to medical treatment promised by physicians

  I (the patient) experience(s) that the personnel/staff have time for me (him/her)

   - Carers

   - Physicians