Table 4 Perceptions of the sense of security in palliative home care of patient and relative dyads; care received and subjective importance by dimensions and items, Context-specific scales with aspects and items
| Perceived reality (PR) | Subjective importance (SI) | |||
|---|---|---|---|---|
|
Patients (n = 32) |
Relatives (n = 32) |
Patients (n = 32) |
Relatives (n = 32) | |
| Mean (SD) | Mean (SD) | Mean(SD) | Mean (SD) | |
| Dimensions and items | ||||
| Medical-technical competence | ||||
| I (the patient) receive(s) the best possible help for pain | ||||
| I (the patient) receive(s) the best possible help for symptoms | ||||
| I (the patient) receive(s) the best possible care | ||||
| I (the patient) receive(s) the best possible medical treatment | ||||
| I (the patient) receive(s) correct doses of medication | ||||
| I (the patient) receive(s) medications in time | ||||
| I (the patient) receive(s) the best possible help with personal hygiene | ||||
| Physical – technical competence | ||||
| I have (the patient has) access to necessary equipment | ||||
| Identity-oriented approach | ||||
| I have (the patient has) a good opportunity to participate in decisions that apply to my (the patient’s) care | ||||
| I have (the patient has) a good opportunity to participate in decisions that apply to my (the patient’s) medical treatment | ||||
| I have (the patient has) a good opportunity to participate in (the patient’s) decisions that apply to the place where I (the patient) receive(s) treatment and care | ||||
| I (the patient) receive(s) useful information on my (the patient’s) illness and symptoms | ||||
| I (the patient) receive(s) useful information about what I (the patient) may expect of my (the patient’s) illness. and functional ability | ||||
| I (the patient) receive(s) useful information on how tests and treatment will take place | ||||
| I (the patient) receive(s) useful information on tests and treatment results | ||||
| I (the patient) receive(s) useful information on how I (the patient’s) should take medication | ||||
| I (the patient) receive(s) useful information on which physician is responsible for my (his/her) medical care | ||||
| I (the patient) receive(s) useful information on which RN is responsible for my (his/her) care | ||||
| I (the patient) get(s) honest answers to my (his/her) questions | ||||
| I am (the patient is) met with respect by | ||||
| - Carers | ||||
| - Physician | ||||
| I am (the patient is) welcome to talk to the personnel about what is important for me (him/her) | ||||
| I (the patient) experience(s) that the personnel understand how I (he/she) feels | ||||
| - Carers | ||||
| - Physicians | ||||
| I (the patient) experience(s) that the personnel show me (him/her) thoughtfulness | ||||
| - Carers | ||||
| - Physicians | ||||
| Context-specific scales; aspects and items | ||||
| Aspect: Competence | ||||
| The nurses’ knowledge is sufficient to give me (the patient) good care | ||||
| The physician’s knowledge is sufficient to give me (the patient) good medical treatment | ||||
| The knowledge of other personnel is sufficient to give me (the patient) good care | ||||
| The personnel know how to carry out procedures | ||||
| Aspect: Continuity | ||||
| I (the patient) experience(s) mostly being cared for by the same carer) | ||||
| I (the patient) experience(s) knowing in advance which carer is coming to me (the patient) | ||||
| I (the patient) experience(s) knowing at what time the carer will come | ||||
| I (the patient) experience(s) mostly receiving medical treatment from the same physician | ||||
| Aspect: Coordination and cooperation | ||||
| My (the patient’s) medical treatment from different physicians is well coordinated | ||||
| The care is well coordinated | ||||
| The care and treatment between carers and physicians is well coordinated | ||||
| The cooperation between home care and institutions is good | ||||
| Aspect: Availability | ||||
| I have (the patient has) access to qualified help when needed | ||||
| I have (the patient has) access to an institution when needed | ||||
| I have (the patient has) access to care promised by carers | ||||
| I have (the patient has) access to medical treatment promised by physicians | ||||
| I (the patient) experience(s) that the personnel/staff have time for me (him/her) | ||||
| - Carers | ||||
| - Physicians | ||||
