Table 2 Data extraction of the identified studies
Domains used to measure quality of care | Items used to measure quality of care | Target group where item is assessed | ||
|---|---|---|---|---|
Patients | Informal caregivers | Formal caregivers | ||
Emotional support | Getting to know patient is essential to understanding their wishes and needs [16] | + | ||
Emotional support [1] | # | # | # | |
Emotional support and empathy [1] | + | + | + | |
Respect and empathy [19] | #+ | |||
Honesty [19] | #++ | |||
Meaningfulness [19] | # | |||
Identity-orientation approach [19] | # | |||
Spiritual and existential [19] | # (++ lowest score) | |||
Emotional wellbeing [17] | # | # | ||
Enjoyment, entertainment and well-being [18] | # | |||
Spirituality [18] | # | |||
Promotion of dignity [18] | # | |||
Promotion of autonomy [18] | # | |||
Physical support | Pleasant and safe atmosphere [19] | #++ | ||
Safety and order [18] | # | |||
Social support | Difficulties with access to community services and equipment [16] | + | ||
Sociocultural atmosphere [19] | # | |||
Relatives and friends [19] | #++ | |||
Social functioning [17] | # | # | ||
Nature of relatives’ involvement [17] | + | + | ||
Care home environment and culture [17] | + | + | ||
Meaningful social interaction [18] | # | |||
Care | Nursing [1] | # | ||
Medical treatment [1] | # | |||
Multidisciplinary care [1] | # | |||
Treatment [1] | # | # | ||
Care [1] | # | # | ||
Medical care [19] | #+ | |||
Participation [19] | # (++ lowest score) | |||
Continuity [19] | # (+ lowest score) | |||
Care provision [17] | + | + | ||
Care content | Personal hygiene [19] | #++ | ||
Access to help, food and equipment [19] | #+ | |||
Symptom relief [19] | # | |||
Exhaustion [19] | # (++ lowest score) | |||
Physical functioning [17] | # | # | ||
Cognitive functioning [17] | # | # | ||
Functional variation [17] | + | + | ||
Nutrition [18] | # | |||
Functional competence [18] | # | |||
Comfort [18] | # | |||
Expertise | Highlighted importance of teamwork and shared expertise [16] | + | ||
Not always possible to identify the dying phase [16] | + | |||
Expertise [1] | # | |||
Clustering of PD patients [1] | # | # | # | |
Staff knowledge on PD-related issues [1] | + | + | + | |
Neurologist involvement [1] | + | + | + | |
Specialized PD nurse [1] | + | + | + | |
Clustering of residents into specialized PD units [1] | + | + | + | |
Medical technical competence of caregiver [19] | # | |||
Lack of PD information [17] | + | + | ||
Communication | Complexity of the conditions prove a challenge for care, particularly in terms of communication [16] | + | ||
Information [19] | # (+ lowest score) | |||
Communication [18] | # | |||
Organization of care | Elements of a good death include limiting transfers to hospital [16] | + | ||
Suggestions for improvement [1] | # | # | # | |
Budget and staff occupation [1] | + | + | + | |
Physical technical conditions of the care organization [19] | # | |||
Planning and cooperation [19] | # | |||
Care management [17] | # | # | ||