Table 4 Agreement reached for the outcome dimensions following rounds 1 and 2 of the Delphi survey and consensus day voting
Emotional issues | 70% | 80% | Shortlisted Consensus Day | Wellbeing | 70% | 80% | Shortlisted Consensus Day | Health | 70% | 80% | Shortlisted Consensus Day | Support | 70% | 80% | Shortlisted Consensus Day |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Feelings of loneliness and emptiness | ✓ | ✓ | ✓ | Ability to participate in worka | ✓ | ✓ | Anxiety (feelings of tension, nervousness, panic and distress) | ✓ | ✓ | ✓ | Relationships with friends and family | ✓ | ✓ | ||
Preoccupation with thoughts of the deceased person | ✓ | ✓ | Ability to participate in social or other activities | ✓ | ✓ | ✓ | Depression (a sense of hopelessness, pessimism, periods of crying) | ✓ | ✓ | ✓ | Relationships with health and social care professional(s) | X | X | ||
Avoidance of reminders of the deceased person | X | X | Ability to perform daily tasks | ✓ | ✓ | Related physical symptoms (e.g. pain or sickness) | ✓ | Finding comfort, meaning or strength in religious or spiritual beliefs | X | X | |||||
Avoidance and denial of distress, grief or other problems | ✓ | ✓ | Involvement in home management and housework | X | X | Problems with memory, concentration, making decisions, speech | ✓ | ✓ | Accessing practical support if needed | ✓ | ✓ | ✓ | |||
Intensity of grief experienced around time of death | ✓ | ✓ | Financial security and material wellbeing | ✓ | Suicidal thoughts | ✓ | ✓ | Accessing financial/material support if neededb | ✓ | ✓ | |||||
Overwhelming thoughts and/or nightmares about loss | ✓ | ✓ | Ability to function as part of a family | ✓ | ✓ | Irritation and bad mood | ✓ | Accessing emotional support if needed | ✓ | ✓ | |||||
Hallucinations about the deceased person | X | X | Sense of identity and role | ✓ | ✓ | Sleep-related problems | ✓ | Ability to express feelings openly and honestly | ✓ | ✓ | |||||
Feelings of shame and/or stigma | X | X | Sense of meaning and purpose in life | ✓ | ✓ | ✓ | Tiredness and fatigueb | ✓ | ✓ | Accessing guidance if needed | ✓ | ||||
Feelings of detachment and distancing | ✓ | Optimism and hopefulness | ✓ | ✓ | Hyperactivity and inability to slow downc | ✓ | Feeling understood by and connected with other bereaved peopleb | ✓ | ✓ | ✓ | |||||
Feelings of blame, guilt, anger, bitterness, regret | ✓ | ✓ | Satisfaction with home, neighbourhood and community environment | X | X | Paranoia or obsessive thoughtsc | ✓ | X | |||||||
Acceptance of grief experiences as normal | ✓ | ✓ | ✓ | Symptoms of phobias | X | X | |||||||||
Acceptance of loss | ✓ | ✓ | Behaviours such as eating disorders or substance abuse | ✓ | |||||||||||
Understanding and finding meaning of loss | ✓ | ✓ | Self-esteem | ✓ | |||||||||||
Positive reminiscence and remembering of the deceaseda | ✓ | ✓ | ✓ | General health problems (e.g. infections, blood pressure, loss of sex drive, other illness)b | ✓ | ✓ | |||||||||
Regulation and control of feelings and behaviours | ✓ | ✓ | Use of health care services | X | X | ✓ | |||||||||
Ability to find balance and channel grief | ✓ | ✓ | ✓ | ||||||||||||
Ability to take control (e.g. look ahead and start to move forward with life) | ✓ | ✓ | ✓ |