Table 2 Caregivers’ self-rated knowledge about various palliative care knowledge prior to and after provision of the booklet (1 = good; 2 = moderate; 3 = poor)
Knowledge prior to provision of booklet | Knowledge after provision of booklet | |
|---|---|---|
1. Symptoms, course of dementia, prognosis | 1.42 ± 0.60 | 1,17 ± 0.45 |
2. Goals of palliative care; palliative/ hospice care services | 2.24 ± 0.82 | 1,44 ± 0.65 |
3. Tasks of legal representative | 1.55 ± 0.67 | 1,17 ± 0.38 |
4. Life prolonging measures: e.g. tube feeding admission to hospital, resuscitation; consequences for the patient | 1.66 ± 0.71 | 1,14 ± 0.49 |
5. Pharmacological, non-pharmacological symptom relief (e.g. dyspnea, pain, agitation, anxiety, delirium) | 1.84 ± 0.71 | 1,42 ± 0.60 |
6. Dying, death (what is to be expected when the patient is dying) | 1.57 ± 0.65 | 1,36 ± 0.59 |
Sum Score | 10.12 ± 2.78 | 7.69 ± 2.34 |