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Table 1 Characteristics of participants

From: Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study

 

Age

Highest level of education

Relationship with the patient

Religion

Country of birth informal caregiver

Country of birth patient

Care setting patient

Disease / Syndrome patient

Interview setting

Gives daily care themselves

1

56–60

Primary school

Husband

Islam

Turkey

Turkey

At home

Paralysis due to cerebral infarction

Relative and patient together

Yes, completely, together with children

2

51–55

Inter-mediate professional education

Daughter-in-law

Islam

Turkey

Turkey

Nursing home

Muscle disease

Relatives and patient together

Yes, together with care professionals

3

51–55

Secondary school

Son

Islam

Turkey

Turkey

Nursing home

Muscle disease

Relatives and patient together

Helps his wife (respondent #2)

4

46–50

Inter-mediate professional education

Daughter

Islam

Turkey

Turkey

Nursing home

Dementia

Relative and patient together

No, but had done it before

5

66–70

Secondary school

Husband

Islam

Turkey

Turkey

Nursing home

Parkinson

Relative and patient together

No, but had done it before

6

50–55

Inter-mediate professional education

Daughter

Islam

Turkey

Turkey

Home near nursing home

Parkinson and dementia

Relative only

Yes, together with care professionals

7

50–55

Secondary school

Daughter

Islam

Turkey

Turkey

Nursing home

(Vascular) Dementia, Diabetes

Relative only

No, but had done it before.

8

70–75

Secondary school

Wife

Islam

Turkey

Turkey

At home

Cancer, Diabetes

Relative of deceased patient

Yes, completely for daily care

9

46–50

Secondary school

Daughter

Islam

Turkey

Turkey

At home and hospice

Cancer, Kidney failure

Relative of deceased patient

Yes, completely

10

41–45

Inter-mediate professional education

Wife

Islam

Morocco

Morocco

At home

Cancer

Relative and patient together

No, but had done it before together with other family members

11

36–40

Higher professional education

Daughter

Islam

Netherlands

Morocco

Nursing home

Paralysis due to cerebral haemorrhage

Relative only

Yes, completely

12

41–45

Unknown

Daughter

Islam

Netherlands

Morocco

At home

Cancer

Relative only

Yes, completely

13

46–50

University

Daughter

Islam

Morocco

Morocco

At home

Cancer

Relative of deceased patient

Yes, completely

14

61–65

University

Daughter

Evangelical Brotherhood Church

Suriname

Suriname

At home

Heart disease

Relative and patient seperately

No, not needed yet but would do it

15

Unknown

Unknown

Daughter

None

Unknown

Suriname

Nursing home

Dementia

Relative and patient together

No, but had done it before together with other family members

16

41–45

Inter-mediate professional education

Daughter

None

Netherlands

Suriname

Nursing home

Dementia

Relative and patient together

No

17

56–60

University

Son

None

Netherlands

Suriname

Nursing home

Dementia

Relative and patient together

No

18

61–65

Secondary school

Daughter

None

Suriname

Suriname

Nursing home

Dementia

Relative only

No

19

Unknown

Unknown

Daughter

Unknown

Unknown

Suriname

Nursing home

Paralysis due to cerebral infarction

Relative only

No, but assists care professionals

20

Unknown

University

Daughter

Hinduism

Suriname

Suriname

At home

Dementia

Relative of deceased patient

Yes, completely