From: Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study
 | Age | Highest level of education | Relationship with the patient | Religion | Country of birth informal caregiver | Country of birth patient | Care setting patient | Disease / Syndrome patient | Interview setting | Gives daily care themselves |
---|---|---|---|---|---|---|---|---|---|---|
1 | 56–60 | Primary school | Husband | Islam | Turkey | Turkey | At home | Paralysis due to cerebral infarction | Relative and patient together | Yes, completely, together with children |
2 | 51–55 | Inter-mediate professional education | Daughter-in-law | Islam | Turkey | Turkey | Nursing home | Muscle disease | Relatives and patient together | Yes, together with care professionals |
3 | 51–55 | Secondary school | Son | Islam | Turkey | Turkey | Nursing home | Muscle disease | Relatives and patient together | Helps his wife (respondent #2) |
4 | 46–50 | Inter-mediate professional education | Daughter | Islam | Turkey | Turkey | Nursing home | Dementia | Relative and patient together | No, but had done it before |
5 | 66–70 | Secondary school | Husband | Islam | Turkey | Turkey | Nursing home | Parkinson | Relative and patient together | No, but had done it before |
6 | 50–55 | Inter-mediate professional education | Daughter | Islam | Turkey | Turkey | Home near nursing home | Parkinson and dementia | Relative only | Yes, together with care professionals |
7 | 50–55 | Secondary school | Daughter | Islam | Turkey | Turkey | Nursing home | (Vascular) Dementia, Diabetes | Relative only | No, but had done it before. |
8 | 70–75 | Secondary school | Wife | Islam | Turkey | Turkey | At home | Cancer, Diabetes | Relative of deceased patient | Yes, completely for daily care |
9 | 46–50 | Secondary school | Daughter | Islam | Turkey | Turkey | At home and hospice | Cancer, Kidney failure | Relative of deceased patient | Yes, completely |
10 | 41–45 | Inter-mediate professional education | Wife | Islam | Morocco | Morocco | At home | Cancer | Relative and patient together | No, but had done it before together with other family members |
11 | 36–40 | Higher professional education | Daughter | Islam | Netherlands | Morocco | Nursing home | Paralysis due to cerebral haemorrhage | Relative only | Yes, completely |
12 | 41–45 | Unknown | Daughter | Islam | Netherlands | Morocco | At home | Cancer | Relative only | Yes, completely |
13 | 46–50 | University | Daughter | Islam | Morocco | Morocco | At home | Cancer | Relative of deceased patient | Yes, completely |
14 | 61–65 | University | Daughter | Evangelical Brotherhood Church | Suriname | Suriname | At home | Heart disease | Relative and patient seperately | No, not needed yet but would do it |
15 | Unknown | Unknown | Daughter | None | Unknown | Suriname | Nursing home | Dementia | Relative and patient together | No, but had done it before together with other family members |
16 | 41–45 | Inter-mediate professional education | Daughter | None | Netherlands | Suriname | Nursing home | Dementia | Relative and patient together | No |
17 | 56–60 | University | Son | None | Netherlands | Suriname | Nursing home | Dementia | Relative and patient together | No |
18 | 61–65 | Secondary school | Daughter | None | Suriname | Suriname | Nursing home | Dementia | Relative only | No |
19 | Unknown | Unknown | Daughter | Unknown | Unknown | Suriname | Nursing home | Paralysis due to cerebral infarction | Relative only | No, but assists care professionals |
20 | Unknown | University | Daughter | Hinduism | Suriname | Suriname | At home | Dementia | Relative of deceased patient | Yes, completely |