Valuing end-of-life care: translation and content validation of the ICECAP-SCM measure

BMC Palliative Care

Table 1 ICECAP-SCM domains

ICECAP-SCM domain	Formulation in ICECAP-SCM
Choice	Having a say: Your ability to influence where you would like to live or be cared for, the kind of treatment you receive, the people who care for you.
Love and affection	Being with people who care about you: Being with family, friends or caring professionals.
Physical suffering	Physical suffering: Experiencing pain or physical discomfort which interferes with your daily activities
Emotional suffering	Emotional suffering: Experiencing worry or distress, feeling like a burden.
Dignity and self-respect	Dignity: Being treated with respect, being spoken to with respect, having your religious or spiritual beliefs respected, being able to be yourself, being clean, having privacy.
Support	Being supported: Having help and support.
Preparation	Being prepared: Having financial affairs in order, having your funeral planned, saying goodbye to family and friends, resolving things that are important to you, having treatment preferences in writing or making a living will.

There is the possibility to tick one of 4 attributes in each domain, i. e. always (4), often (3), sometimes (2), rarely (1) or most of the time (4), some of the time (3), only a little of the time (2), never (1). Thereby it will be checked to what extent the respective statement applies to the current situation

ISSN: 1472-684X