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Table 1 Patient cases

From: The relationship between proxy agency and the medical decisions concerning pediatric patients in palliative care: a qualitative study

Case

Setting

Family

Social Security (SS) & support services

Observations

Medical Diagnosis

B

Urban

Extense family (6 members)

With SS & Foundation support services

The mother and the grandmother in psychology and social work meetings

Meningoencephalitis viral etiology (chicken pox)

Severe consequences & focal epilepsy by management.

Ca

Urban

Nuclear family (four members)

Mother: head of the family

Without SS nor support services

The mother in social work meetings.

Malignant brain tumor. Resection and brain swelling.

A

Urban

Extense family (10 members)

With SS & Foundation support services

The mother and the patient in psychology meetings.

Primary Embryonal Synovial Sarcoma in pelvis, with metastasis in abdominal peritoneum & lungs.

Ja

Urban

Extense family (8 members)

Without SS nor support services

The mother and the father in psychology meetings.

Gastroschisis with first intention closure

G

Rural

Nuclear family (5 members)

With SS

The mother in pediatric and social work meetings.

Tricuspid atresia

MB

Urban

Nuclear family (4 members)

Without SS, Toddler’s milk support.

Parents workshop with the psychologist

Pierre Lobin syndrome.

Cornelia de Lange syndrome.

Phocomelia.

Pulmonary hypertension.

Poor swallowing mechanics.

Central apnea.

R

Urban

Nuclear family (5 members)

With SS & social support service

The mother and the patient in psychology and social work meetings.

Brain tumor

Y

Urban

Nuclear family (5 members).

With SS

 

Regressive syndrome. Bilateral hypoacousis.

J

Urban

Extense family (11 members)

With SS

The father in psychology meeting

Non- convulsive status epilepticus.

Structural epilepsy & corpus callosum hypoplasia.

Congenital laryngomalacia.

CNa

Urban

Nuclear family (4 members). (The family is identified as indigenous at least in part)

With SS

The mother and the patient in psychology and social work meetings.

Congenital Glioblastoma multiforme .

S

Urban

Nuclear family (6 members).

With SS

The mother in psychology meetings and social work meetings.

Congenital neutropenia

M

Urban

Nuclear family (5 members).

With SS

The mother and the father in psychology meetings.

Lung deficiency & heart disease.

JP

Urban

Nuclear family (3 members).

 

The mother and the patient in psychology meetings.

Hipotonic syndrome, breathing problems

  1. a Children who passed away before the article publication