Table 4 Comparison of PaPaS between the pediatric palliative care and primary clinical teams
Domain and item number | Palliative care team (mean, SD) | Primary clinical team (mean, SD) | p-value |
|---|---|---|---|
≥1 year old | |||
Sum | 22.0 (5.3) | 20.4 (6.7) | < 0.001 |
Domain 1. Trajectory of disease and impact on daily activities of the child | |||
Q1.1 Trajectory of disease and impact on daily activities of the child | 2.6 (1.2) | 2.3 (1.4) | 0.011 |
Q1.2 Increase of hospital admission | 2.8 (0.7) | 2.1 (1.4) | < 0.001 |
Domain 2. Expected outcome of treatment directed at the disease and burden of this treatment | |||
Q2.1 Treatment directed at the disease | 1.1 (1.2) | 1.4 (1.4) | < 0.001 |
Q2.2 Burden of treatment | 2.8 (1.0) | 2.5 (1.1) | < 0.001 |
Domain 3. Symptom and problem burden | |||
Q3.1 Symptom intensity or difficulty of symptom control | 2.5 (1.1) | 2.4 (1.3) | 0.083 |
Q3.2 Psychological distress of patient related to symptoms | 2.5 (1.0) | 2.3 (1.1) | 0.145 |
Q3.3 Psychological distress of parents or family related to symptoms and suffering of the child | 2.9 (1.0) | 2.7 (1.1) | 0.073 |
Domain 4. Preferences/needs of patient or parents, preference of health professional | |||
Q4.1 Patient/parents wish to receive palliative care or formulated needs than are best met by palliative care | 3.0 (1.8) | 2.3 (2.0) | 0.005 |
Q4.2 You/your team feel that this patient would benefit from palliative care | 4.0 (0) | 3.8 (0.9) | 0.331 |
Domain 5. Estimated life expectancy | |||
Q5.1 Estimated life expectancy | 0.6 (1.1) | 0.7 (1.2) | 0.348 |
Q5.2 “Would you be surprised if this child were to suddenly die in 6 months’ time?” | 0.3 (0.7) | 0.2 (0.6) | 0.181 |
< 1 year old | |||
Sum | 14.2 (4.0) | 13.5 (4.5) | 0.256 |
Domain 2. Expected outcome of treatment directed at the disease and burden of this treatment | |||
Q2.1 Trajectory of disease and impact on daily activities of the child | 2.1 (1.5) | 2.3 (1.6) | 0.332 |
Domain 3. Symptom and problem burden | |||
Q3.1 Symptom intensity or difficulty of symptom control | 3.2 (1.0) | 2.9 (1.1) | 0.096 |
Q3.3 Psychological distress of parents or family related to symptoms and suffering of the child | 3.2 (1.0) | 2.6 (1.1) | 0.046 |
Domain 4. Preferences/needs of patient or parents, preference of health professional | |||
Q4.1 Patient/parents wish to receive palliative care or formulated needs than are best met by palliative care | 3.5 (1.3) | 2.1 (2.1) | 0.009 |
Q4.2 You/your team feel that this patient would benefit from palliative care | 4 (0) | 4 (0) | n/a |
Domain 5. Estimated life expectancy | |||
Q5.1 Estimated life expectancy | 1.2 (1.5) | 1.3 (1.6) | 0.668 |
Q5.2 “Would you be surprised if this child were to suddenly die in 6 months’ time?” | 0.9 (1.0) | 0.7 (1.0) | 0.588 |