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Table 1 Characteristics of participants (n = 18)

From: Combining paid work and family care for a patient at the end of life at home: insights from a qualitative study among caregivers in the Netherlands

#

Gender

Age

Education

Employment

Sector

Work a

Care a

Care recipient

Type of illness

Duration of illness

Other caregivers involved

Contact frequency

1

Female

50-55

Middle

Employed

Health and social care

36

15

Parents (in-law)

Dementia / cancer, other b

4 - 5 years

Family, home care staff, adult day care

Weekly

2

Female

35-40

Middle

Employed

Health and social care

16

12

Partner

Cancer

3 - 12 months

Family, district nurse

Lives in same house

3

Female

40-45

Middle

Employed

Health and social care

36

5

Parents (in-law)

Cancer / dementia

3 - 12 months

Family, home care staff

Daily

4

Female

50-55

Middle

Employed

Health and social care

24

25

Partner

Progressive neurodegenerative disorder

1 - 2 years

No

Lives in same house

5

Female

55-60

High

Employed

Business

39

14

Parents (in-law)

Dementia, stroke, other / organ failure, other b

1 - 2 years

Family, home care staff

Daily

6

Male

50-55

Middle

Employed

Health and social care

20

30

Partner

Organ failure; dementia; other b

> 5 years

No

Lives in same house

7

Female

60-65

Middle

Employed

Public services

18

90

Partner

Progressive neurodegenerative disorder; organ failure

> 5 years

Family, household help

Lives in same house

8

Female

55-60

Middle

Employed

Health and social care

32

8

Parent (in-law)

Dementia; cancer

1 - 2 years

No

Daily

9

Female

50-55

High

Employed

Health and social care

28

35

Partner

Cancer

< 3 months

No

Lives in same house

10

Female

40-45

Low

Self-employed

Creative arts

40

15

Parents (in-law)

Dementia / stroke

1 - 2 years

Family, 24 hours home care

Daily

11

Male

65-70

High

Employed / Self-employed

Business + FMCG c

12

28

Partner / parent (in-law)

Stroke / organ failure

> 5 years

Home care staff, household help

Lives in same house

12

Male

40-45

High

Employed

Education

40

16

Parent (in-law)

Cancer

2 - 3 years

Family

Daily

13

Female

55-60

High

Employed

Education

24

10

Parent (in-law) / other family member

Cancer / dementia

1 - 2 years

Family, household help, volunteer

Weekly

14

Female

35-40

High

Employed

Health and social care

24

50

Child

Cancer

3 - 12 months

Family

Lives in same house

15

Female

50-55

High

Employed

Public services

28

25

Partner

Progressive neurodegenerative disorder

1 - 2 years

Family, home care staff

Lives in same house

16

Female

50-55

Middle

Employed

Health and social care

20

10

Parents (in-law)

Progressive neurodegenerative disorder / other b

3 - 12 months

Family

Daily

17

Male

30-35

High

Employed

Public services

36

12

Parent (in-law)

Cancer

2 - 3 years

Family

Daily

18

Male

30-35

High

Employed

Public services

36

15

Partner

Cancer

2 - 3 years

Home care staff

Lives in same house

  1. Notes: a in hours per week; b other included: rheumatism, psychiatric disorder, frailty, disability; C Fast-moving consumer goods