Table 1 Study variables and analyses
From: Support received by family members before, at and after an ill person’s death
Items | Response alternatives | Analysis |
|---|---|---|
Overall, do you feel that you and your family got as much help and support from health and social services as you needed when caring for him/her? | - Yes, we got as much support as we needed/yes - We got some support, but not as much as we wanted - No, although we tried to get more help - No, but we did not try to get more help - We did not need help | Quantitative descriptive |
Please feel free to make comments in the space below | Open-ended question | Qualitative – interpretive description |
Were you contacted soon enough to give you time to be with him/her before he/she died? | - Yes - No - I was already there - It was not clear he/she was going to die soon - I couldn’t have got there anyway - I was not contacted | Quantitative descriptive |
Were you or his/her family given enough help and support by the healthcare team at the actual time of his/her death? | - Yes, definitely - Yes, to some extent - No, not at all - Don’t know | Quantitative descriptive |
Were you or his/her family treated with respect by the staff after he/she had died? | - Yes - No - Don’t know - Does not apply, I had no contact with the staff | Quantitative descriptive |
Please feel free to make comments in the space below | Open-ended question | Qualitative – interpretive description |
Since he/she died, have you talked to anyone from health and social services, or from a bereavement service, about your feelings about his/her illness and death? | - Yes - No, but I would have liked to - No, but I did not want to anyway - Unsure | Quantitative descriptive |
Please use the space below if there is anything else you would like to tell us about the care and support you received | Open-ended question | Qualitative – interpretive description |
What, if anything, was good about the care? | Open-ended question | Qualitative – interpretive description |
What, if anything, was bad about the care? | Open-ended question | Qualitative – interpretive description |