Table 3 Content Code Evolution: Care Preferences

Directed

"I want to know all about my condition and treatment process" (“John”, 87)

Being Informed (All the details)

Decision Making

"I would prefer that I have control in decision making process" (“Brett”, 52)

Shared Decisions: Health Team (A say in every decision)

"Most my family know what I want. Respect my decision. Go along with my decisions." (“Jim”, 76)

SDM Flexibility (Do exactly what I’ve said)

Family/Friend Involvement

"I want my family around me, soft classical music. Have comfortable area for my family around me." (“Geoff”, 86)

Bedside Company (Surrounded by loved ones)

"It is important that my family is aware of my health condition." (“Julie”, 69)

Sharing Information (Know everything)

"Quality is more important than quantity of time" (“Bette”, 92)

Quantity vs Quality of Life (Quality > Quantity)

Treatment Care

"I remember my husband's EOL and I don't want to be in that situation, in and out of the hospital 3 times and it was unpleasant" (“Becca”, 82)

Treatment Care (Overly aggressive care)

"I want it to be pain free and want to be at home at the end-of-life" (“John”, 87)

Death Location (At home/LTC)

Emergent

"I just want to thank them for doing their best to help me" (“Martha”, 68)

Saying Thank-You

Interpersonal Communication

"Saying good bye to the ones that I love" (“Ellen”, 88)

Saying Good-bye

"last rights" (“Mary”, 76)

Deathbed Religious Rituals

Religious & Cultural

"[I want to be sure to say] that I am leaving this life here to be with my Saviour, Jesus, who loves and cares for us all." (“Luke”, 88)

Valuing Heaven

"making sure my will is in order and my finances will go to my oldest son for emergencies" (“Jane”, 70)

Estate Planning

Post-Mortem Preparations

"No memorial service" (“Stuart”, 81)

Funeral Planning