Table 7 Advance Care Planning Reflection and Communication: Open Ended Workbook Responses
From: Using a self-directed workbook to support advance care planning with long term care home residents
Category | Participants | Excerpt Examples |
|---|---|---|
Reflection | 43 | |
Vague | 31 | “I would want to know if [a particular decision] was best for me; I trust certain people; you never know what is going to happen” “[at the end-of-life] happiness [matters most]” “I think my [loved ones] know [the role that I want them to have]” |
Specific | 41 | “Being able to recognize my child, if in the hospital receiving excellent nursing care & being able to say good-bye to the ones I loved & being comfortable [is what matters most]” “I remember my husband’s EOL and I don’t want to be in that situation, in an out of the hospital three times and it was unpleasant” “If I am totally useless, I would need to be guided in my choices because even though I am cognisant, we don’t know what I'll be. If I couldn't make up my mind as to what I wanted, I'd really need help deciding and planning from my sister” |
Preparing for Communication | 20 | “[I want] information on medically assisted dying” “[When I have conversations with loved ones, I want to] ask their advice to me, when they know me well. Tell them I love them.” “[I want to] incorporate my daughter-in-law in the whole process” |
Reflecting on Communication | 24 | “[after the conversation I felt] good because everyone knows what they gotta do” “This conversation written here has been difficult. I would prefer not to dwell on my experiences and feelings that make me sad here” “I would just like to continue the conversation with my sister” |