Table 3 Response of family caregivers to the ZBI-22 items

0

(never)

1

(rarely)

2

(sometimes)

3

(quite frequently)

4

(nearly always)

1. Do you feel that your relative asks for more help than he/she needs?

218

133 (61)

22 (10.1)

35 (16.1)

24 (11)

4 (1.8)

0.83 (1.2)

2. Do you feel that because of the time you spend with your relative that you don’t have enough time for yourself?

218

117 (53.7)

26 (11.9)

49 (22.5)

23 (10.6)

3 (1.4)

0.94 (1.2)

3. Do you feel stressed between caring for your relative and trying to meet other responsibilities for your family or work?

217

86 (39.6)

23 (10.6)

59 (27.2)

41 (18.9)

8 (3.7)

1.36 (1.3)

4. Do you feel embarrassed over your relative’s behaviour?

218

184 (84.4)

15 (6.9)

15 (6.9)

3 (1.4)

1 (0.5)

0.27 (0.7)

5. Do you feel angry when you are around your relative?

217

194 (89.4)

14 (6.5)

8 (3.7)

1 (0.5)

0

0.15 (0.5)

6. Do you feel that your relative currently affects your relationship with other family members or friends in a negative way?

217

162 (74.7)

19 (8.8)

30 (13.8)

6 (2.8)

0

0.45 (0.8)

7. Are you afraid what the future holds for your relative?

216

35 (16.2)

7 (3.2)

46 (21.3)

101 (46.8)

27 (12.5)

2.36 (1.2)

8. Do you feel your relative is dependent upon you?

217

15 (6.9)

16 (7.4)

46 (21.2)

94 (43.3)

46 (21.2)

2.65 (1.1)

9. Do you feel strained when you are around your relative?

217

156 (71.9)

21 (9.7)

31 (14.3)

7 (3.2)

2 (0.9)

0.52 (0.9)

10. Do you feel your health has suffered because of your involvement with your relative?

217

150 (69.1)

26 (12)

29 (13.4)

12 (5.5)

0

0.55 (0.9)

11. Do you feel that you don’t have as much privacy as you would like, because of your relative?

217

151 (69.6)

29 (13.4)

25 (11.5)

11 (5.1)

1 (0.5)

0.54 (0.9)

12. Do you feel that your social life has suffered because you are caring for your relative?

217

132 (60.8)

23 (10.6)

47 (21.7)

13 (6)

2 (0.9)

0.76 (1.1)

13. Do you feel uncomfortable about having friends over, because of your relative?

216

167 (77.3)

21 (9.7)

18 (8.3)

9 (4.2)

1 (0.5)

0.41 (0.9)

14. Do you feel that your relative seems to expect you to take care of him/her, as if you were the only one he/she could depend on

215

37 (17.2)

12 (5.6)

42 (19.5)

89 (41.4)

35 (16.3)

2.34 (1.3)

15. Do you feel that you don’t have enough money to care for your relative, in addition to the rest of your expenses?

218

43 (19.7)

15 (6.9)

59 (27.1)

81 (37.2)

20 (9.2)

2.1 (1.3)

16. Do you feel that you will be unable to take care of your relative much longer?

217

163 (75.1)

26 (12)

25 (11.5)

3 (1.4)

0

0.39 (0.7)

17. Do you feel you have lost control of your life since your relative’s illness?

217

124 (57.1)

26 (12)

46 (21.2)

19 (8.8)

2 (0.9)

0.84 (1.1)

18. Do you wish you could just leave the care of your relative to someone else?

218

184 (84.4)

18 (8.3)

13 (6)

3 (1.4)

0

0.24 (0.6)

19. Do you feel uncertain about what to do about your relative?

216

115 (53.2)

19 (8.8)

61 (28.2)

20 (9.3)

1 (0.5)

0.95 (1.1)

20. Do you feel you should be doing more for your relative?

218

51 (23.4)

19 (8.7)

63 (28.9)

74 (33.9)

11 (5)

1.89 (1.3)

21. Do you feel you could do a better job in caring for your relative?

218

35 (16.1)

13 (6)

83 (38.1)

77 (35.3)

10 (4.6)

2.1 (1.1)

0

(not at all)

1

(a little)

2

(moderately)

3

(quite a bit)

4

(extremely)

22. Overall, how burdened do you feel in caring for your relative?

218

120 (55)

37 (17)

37 (17)

22 (10.1)

2 (0.9)

0.85 (1.1)