Table 2 Topics in the interview guides
Caregiver interviews: • Situation and disease process of the patient, (changed) relationship with the patient • A (non) typical day and caregiving ◦ In case of bereaved caregiver: last weeks and time after the patient’s death • Meaning of relationships with others and support • Taking care of oneself, needs, support • Saying goodbye, talking about death, future Patient interviews: • Situation and disease process, meaning of being ill, (changed) relationship with the caregiver • Being cared for, a (non) typical day • Meaning of relationships with others • Saying goodbye, talking about death, future |