Table 2 Cross-sectional comparisons of patients’ psychosocial and spiritual problems during O-SPC vs. I-SPC
At initiation of SPC (T0) (N = 425) | During SPC (T1) (N = 167) | |||||||
|---|---|---|---|---|---|---|---|---|
Whole sample (N = 425) | O-SPC (N = 285) | I-SPC (N = 140) | Whole sample (N = 167) | O-SPC (N = 125) | I-SPC (N = 42) | |||
Psychosocial and spiritual problems (PNPCQ-sv) | n (%) yes | n (%) yes | n (%) yes | p a | n (%) yes | n (%) yes | n (%) yes | p a |
Daily activities | ||||||||
Body care, washing, dressing, or toilet | 299 (70.4) | 204 (72.9) | 95 (67.9) | .286 | 112 (67.1) | 84 (67.2) | 28 (66.7) | .949 |
Transportation | 378 (88.9) | 261 (92.9) | 117 (84.2) | .005 | 141 (85.5) | 109 (76.2) | 32 (88.6) | .049 |
Doing light housework | 349 (82.1) | 244 (87.1) | 105 (76.1) | .004 | 134 (81.7) | 102 (82.9) | 32 (78.0) | .484 |
Autonomy | ||||||||
Difficulties in continuing the usual activities | 378 (88.9) | 256 (91.1) | 122 (88.4) | .382 | 139 (85.3) | 105 (85.4) | 34 (85.0) | .955 |
Difficulty to give tasks out of hands | 232 (54.6) | 154 (55.0) | 78 (57.4) | .650 | 88 (53.3) | 62 (50.0) | 26 (63.4) | .136 |
Being dependent of others | 351 (82.6) | 235 (82.5) | 116 (83.5) | .798 | 130 (30.6) | 97 (77.6) | 33 (80.5) | .679 |
Experiencing loss of control over one’s life | 272 (64.0) | 180 (64.1) | 92 (68.1) | .412 | 93 (56.0) | 65 (52.4) | 28 (66.7) | .108 |
Social issues | ||||||||
Problems in the relationship with life companion | 85 (20.0) | 65 (23.2) | 20 (14.6) | .040 | 24 (14.5) | 15 (12.1) | 9 (21.4) | .137 |
Difficulties in talking about the disease with life companion | 128 (30.1) | 94 (33.5) | 34 (24.6) | .066 | 34 (20.5) | 24 (19.2) | 10 (24.4) | .475 |
Finding it difficult to talk about the disease, because of not wanting to burden others | 225 (52.9) | 156 (55.9) | 69 (50.7) | .320 | 67 (40.1) | 49 (39.2) | 18 (42.9) | .676 |
Finding others not receptive to talking about the disease | 153 (36.0) | 105 (37.2) | 48 (35.0) | .661 | 46 (28.0) | 27 (22.0) | 19 (46.3) | .003 |
Difficulties in finding someone to talk to | 145 (34.1) | 100 (35.5) | 45 (32.6) | .564 | 45 (27.4) | 33 (26.8) | 12 (29.3) | .762 |
Psychological issues | ||||||||
Depressed mood | 188 (44.3) | 131 (46.5) | 57 (41.3) | .319 | 64 (38.6) | 48 (38.7) | 16 (38.1) | .944 |
Difficulty coping with the unpredictability of the future | 291 (68.5) | 200 (71.4) | 91 (66.4) | .296 | 111 (67.3) | 84 (67.7) | 27 (65.9) | .823 |
Difficulties to show emotions | 212 (49.9) | 143 (50.7) | 69 (50.0) | .891 | 71 (43.6) | 49 (39.8) | 22 (55.0) | .093 |
Spiritual issues | ||||||||
Difficulties to be engaged usefully | 206 (48.5) | 144 (52.0) | 62 (44.9) | .175 | 86 (52.4) | 66 (53.2) | 20 (50.0) | .722 |
Difficulties to be of avail of others | 233 (54.8) | 160 (58.0) | 73 (53.3) | .366 | 96 (58.5) | 68 (55.3) | 28 (68.3) | .143 |
Difficulties concerning the meaning of death | 192 (45.2) | 138 (49.8) | 54 (39.7) | .053 | 60 (37.3) | 46 (38.0) | 14 (35.0) | .732 |
Difficulties to accept the disease | 233 (54.8) | 168 (59.2) | 65 (47.1) | .019 | 83 (50.9) | 61 (49.6) | 22 (55.0) | .522 |
Financial problems | ||||||||
Extra expenditures because of the disease | 125 (29.4) | 85 (30.5) | 40 (29.2) | .791 | 40 (27.4) | 29 (23.8) | 11 (27.5) | .635 |
Loss of income because of the disease | 71 (16.7) | 39 (14.1) | 32 (23.7) | .015 | 28 (17.5) | 20 (16.7) | 8 (20.0) | .631 |
Need of information | ||||||||
Insufficient information, e.g. about the disease and its treatment, aids and agencies that can provide help, alternative healing methods. | 140 (32.9) | 105 (37.9) | 35 (25.4) | .011 | 38 (23.5) | 27 (22.1) | 11 (27.5) | .487 |
Score “Extent of psychosocial and spiritual problems” (0–22)c, M (SD) | 11.7 (4.9) | 11.7 (4.9) | 11.1 (4.0) | .039 b | 10.5 (4.7) | 11.2 (4.9) | .278 b | |