Table 3 Cross-sectional comparisons of patients’ need for additional professional psychosocial and spiritual support during O-SPC vs. I-SPC

Need for additional psychosocial and spiritual support (PNPCQ-sv)

n (%) yes

n (%) yes

n (%) yes

p

n (%) yes

n (%) yes

n (%) yes

p

 Body care, washing, dressing, or toilet

121 (28.5)

96 (34.7)

25 (18.0)

<.001 ^a

19 (12.0)

13 (11.0)

6 (15.0)

.503 ^a

 Transportation

172 (40.5)

121 (45.0)

51 (38.6)

.228 ^a

35 (24.0)

23 (21.5)

12 (30.8)

.245 ^a

 Doing light housework

163 (38.4)

120 (45.1)

43 (32.8)

.019 ^a

29 (19.9)

20 (18.0)

9 (25.7)

.320 ^a

 Difficulties in continuing the usual activities

150 (35.2)

99 (37.8)

51 (38.1)

.958 ^a

28 (19.6)

17 (16.2)

11 (28.9)

.089 ^a

 Difficulty to give tasks out of hands

85 (20.0)

60 (22.0)

25 (18.8)

.460 ^a

12 (8.0)

6 (5.5)

6 (15.0)

.057 ^a

 Being dependent of others

123 (28.9)

85 (31.3)

38 (28.6)

.582 ^a

28 (19.7)

18 (17.4)

10 (26.3)

.232 ^a

 Experiencing loss of control over one’s life

114 (26.8)

78 (28.5)

36 (26.9)

.735 ^a

14 (9.7)

8 (7.6)

6 (15.4)

.162 ^a

 Problems in the relationship with life companion

38 (8.9)

29 (10.4)

9 (6.6)

.207 ^a

1 (0.6)

1 (0.8)

0 (0)

1.000 ^b

 Difficulties in talking about the disease with life companion

59 (13.9)

46 (19.0)

13 (10.9)

.051 ^a

2 (1.3)

1 (0.8)

1 (2.4)

.448 ^b

 Finding it difficult to talk about the disease, because of not wanting to burden others

96 (22.6)

72 (30.0)

24 (19.5)

.032 ^a

7 (4.6)

3 (2.7)

4 (9.8)

.083 ^b

 Finding others not receptive to talking about the disease

54 (12.7)

43 (17.9)

11 (9.3)

.033 ^a

4 (2.6)

2 (1.8)

2 (5.0)

.280 ^b

 Difficulties in finding someone to talk to

78 (18.4)

54 (22.4)

24 (20.3)

.655 ^a

3 (1.9)

1 (0.9)

2 (4.9)

.173 ^b

 Depressed mood

75 (17.6)

57 (23.2)

18 (15.1)

.075 ^a

5 (3.2)

4 (3.5)

1 (2.4)

1.000 ^b

 Difficulty coping with the unpredictability of the future

127 (29.9)

88 (35.8)

39 (30.5)

.304 ^a

20 (13.2)

12 (10.7)

8 (20.5)

.120

 Difficulties to show emotions

65 (15.3)

47 (19.3)

18 (14.0)

.199 ^a

7 (4.5)

4 (3.4)

3 (7.3)

.378 ^b

 Difficulties to be engaged usefully

78 (18.4)

59 (24.6)

19 (15.6)

.049 ^a

13 (9.0)

10 (9.3)

3 (8.1)

1.000 ^b

 Difficulties to be of avail of others

85 (20.0)

66 (28.0)

19 (15.6)

.009 ^a

17 (11.8)

10 (9.3)

7 (19.4)

.101 ^a

 Difficulties concerning the meaning of death

94 (22.1)

72 (30.4)

22 (18.6)

.018 ^a

16 (10.3)

10 (8.7)

6 (15.0)

.259 ^a

 Difficulties to accept the disease

105 (24.7)

88 (36.5)

17 (14.4)

<.001 ^a

15 (9.9)

8 (7.0)

7 (18.9)

.034 ^a

 Extra expenditures because of the disease

66 (15.5)

48 (21.0)

18 (14.8)

.156 ^a

9 (5.8)

5 (4.3)

4 (10.5)

.225 ^b

 Loss of income because of the disease

41 (9.6)

28 (12.1)

13 (10.8)

.732 ^a

9 (5.8)

6 (5.1)

3 (7.9)

.690 ^b

 Insufficient information, e.g. about the disease and its treatment, aids and agencies that can provide help, alternative healing methods.

116 (27.3)

90 (38.5)

26 (21.5)

.001 ^a

15 (9.6)

9 (7.6)

6 (15.8)

.133

Score “Extent of need for additional professional support” (0–22) M (SD)

6.4 (6.5)

4.2 (4.1)

<.001 ^c

1.7 (2.9)

3.2 (4.0)

.038 ^c