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Table 1 Quantitative assessments and measures

From: The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study

Administered to Quantitative assessment Measure(s)
People with ALS and Care Partners GAD- 7 [17] Worry and anxiety symptoms
PHQ- 9 [18] Major depressive symptoms
People with ALS ALSFRS-R [19] Functional impairment
ECAS [20] Cognitive and behavioural changes
MQOL-R Quality of life
Personal Information Screen Demographic information
Care Partners Adapted SSLI Support satisfaction and interactions
ECAS – Section B [20] Behavioural abnormalities in ALS patient
Familial Information Screen Demographic information
QOLLTI-F v2 [21] Quality of life
Relationship Closeness Scale [22] Closeness of patient-caregiver relationship
ZBI [23] Caregiver burden
  1. ALSFRS-R Revised Amyotrophic Lateral Sclerosis Functional Rating Scale, ECAS Edinburgh Cognitive and Behavioural Amyotrophic Lateral Sclerosis Screen, GAD-7 Generalized Anxiety Disorder 7-Item, MQOL-R McGill Quality of Life Questionnaire-Revised, PHQ-9 Patient Health Questionnaire-9, QOLLTI-F v2 Quality of Life in Life-Threatening Illness-Family Carer Version 2, SSLI Social Support List of Interactions, ZBI Zarit Burden Interview