The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study

Table 1 Quantitative assessments and measures

Administered to	Quantitative assessment	Measure(s)
People with ALS and Care Partners	GAD- 7 [17]	Worry and anxiety symptoms
People with ALS and Care Partners	PHQ- 9 [18]	Major depressive symptoms
People with ALS	ALSFRS-R [19]	Functional impairment
	ECAS [20]	Cognitive and behavioural changes
	MQOL-R	Quality of life
	Personal Information Screen	Demographic information
Care Partners	Adapted SSLI	Support satisfaction and interactions
	ECAS – Section B [20]	Behavioural abnormalities in ALS patient
	Familial Information Screen	Demographic information
	QOLLTI-F v2 [21]	Quality of life
	Relationship Closeness Scale [22]	Closeness of patient-caregiver relationship
	ZBI [23]	Caregiver burden

ALSFRS-R Revised Amyotrophic Lateral Sclerosis Functional Rating Scale, ECAS Edinburgh Cognitive and Behavioural Amyotrophic Lateral Sclerosis Screen, GAD-7 Generalized Anxiety Disorder 7-Item, MQOL-R McGill Quality of Life Questionnaire-Revised, PHQ-9 Patient Health Questionnaire-9, QOLLTI-F v2 Quality of Life in Life-Threatening Illness-Family Carer Version 2, SSLI Social Support List of Interactions, ZBI Zarit Burden Interview

ISSN: 1472-684X