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Table 3 Descriptive statistics for quantitative assessments at baseline and after six months

From: The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study

CONTROL GROUP
People with ALS (N = 14)
  Time 1 (baseline) Time 2 (after six months)
Assessment N Mean St Dev Range N Mean St Dev Range
ALSFRS-R 13 34.2 6.6 23–44 8 26.1 8.5 12–37
ECAS 12 104.1 12.6 82–120 5 114.4 7.5 108–127
GAD-7 13 3.3 5.1 0–15 8 2.3 4.1 0–11
MQOL-R 13 6.2 0.7 5.2–7.8 8 5.8 0.6 4.6–6.6
PHQ-9 13 6.5 3.9 0–12 8 5.4 4.3 1–15
Care Partners (N = 14)
  Time 1 (baseline) Time 2 (after six months)
Assessment N Mean St Dev Range N Mean St Dev Range
Adapted SSLI 13 14.7 3.8 10–23 9 15.3 2.4 12–19
ECAS – Section B 13 1.4 1.5 0–5 9 1.1 1.5 0–4
GAD-7 12 6.6 5.3 0–18 10 6.5 4.4 1–15
PHQ-9 13 6.8 6.0 0–19 10 7.6 6.1 1–19
QOLLTI-F v2 13 5.6 1.1 3.9–7.6 10 6.0 0.5 4.7–6.6
Relationship Closeness Scale 13 16.0 2.2 13–19 10 16.5 1.8 13–19
ZBI 13 34.6 16.3 9–56 10 33.4 14.0 7–51
RESPITE CARE GROUP
People with ALS (N = 17)
  Time 1 (baseline) Time 2 (after six months)
Assessment N Mean St Dev Range N Mean St Dev Range
ALSFRS-R 17 29.5 6.9 8–37 12 26.0 9.5 11–41
ECAS 16 99.2 16.4 61–121 8 104.6 12.2 79–118
GAD-7 17 5.1 5.8 0–19 12 3.3 2.9 0–9
MQOL-R 17 6.4 1.3 4.5–9.1 12 6.5 0.8 5.2–7.7
PHQ-9 17 6.5 6.4 0–20 12 5.3 4.1 0–14
Care Partners (N = 17)
Assessment Time 1 (baseline) Time 2 (after 6 months)
  N Mean St Dev Range N Mean St Dev Range
Adapted SSLI 17 14.5 4.1 9–24 16 15.5 5.2 6–24
ECAS – Section B 17 1.2 1.1 0–4 16 1.1 1.0 0–3
GAD-7 17 8.7 5.7 0–21 16 6.6 4.2 0–15
PHQ-9 17 10.2 5.9 11–24 16 8.9 5.8 2–21
QOLLTI-F v2 17 5.8 0.8 4.5–7.0 15 5.8 0.7 4.6–5.8
Relationship Closeness Scale 17 16.4 2.0 13–20 16 17.1 2.1 14–20
ZBI 17 41.5 13.4 23–70 16 38.6 12.3 24–60
  1. ALSFRS-R Revised Amyotrophic Lateral Sclerosis Functional Rating Scale, ECAS Edinburgh Cognitive and Behavioural Amyotrophic Lateral Sclerosis Screen, GAD-7 Generalized Anxiety Disorder 7-Item, MQOL-R McGill Quality of Life Questionnaire-Revised, PHQ-9 Patient Health Questionnaire-9, QOLLTI-F v2 Quality of Life in Life-Threatening Illness-Family Carer Version 2, SSLI Social Support List of Interactions, ZBI Zarit Burden Interview