Table 3 Timing of advance care planning (ACP) initiation and types of care professionals who were involved in the conversation
Of the 155 loved ones who initiated ACP | N (%) |
|---|---|
Timing | |
Upon receiving a clinical diagnosis of dementia | 77 (49.7) |
When being newly accredited for a long-term care insurance benefit | 31 (20.0) |
Began ACP before dementia diagnosis | 18 (11.6) |
Upon experiencing increased difficulty managing own property or daily life | 13 (8.4) |
Upon admittance to an acute hospital for treatment of a physical illness | 7 (4.5) |
Upon worsening physical health of relatives | 6 (3.9) |
Upon learning about ACP from peers or family caregivers | 2 (1.3) |
Upon learning of ACP through the media | 1 (0.6) |
Individuals involved in the ACP conversation | |
No one other than relatives were involved | 67 (43.2) |
Care professionals (agencies) | 88 (56.8) |
Care manager of an in-home care service | 53 (34.2) |
Staff of a day-care centre | 43 (27.7) |
Care manager of a residential care service | 39 (25.2) |
Community General Support Centrea | 27 (17.4) |
The doctor who provided the clinical diagnosis of dementia | 26 (16.8) |
Peer with dementia | 13 (8.4) |
Staff of a dementia café or other meeting centres | 11 (7.1) |
Initial-phase Intensive Support Team for Dementiab | 8 (5.2) |
Doctor other than the one who provided the dementia diagnosis | 3 (1.9) |