Table 1 Quality of Life themes spontaneously identified in verbal material of 7 patients and 9 parents confronted with pediatric advanced cancer

Physical

Pain management

●

●

Physical symptoms related to management of the disease

●

●

Energy level

●

●

Satisfaction of basic needs

●

●

Psychological

Mood management

●

●

Stress management

–

●

Social

Maintaining contact with friends and family

●

●

Relationship with caregivers

●

●

Autonomy/independence

Independence

–

●

Physical autonomy (e.g. walking alone)

●

●

Pleasure

Do an activity that the child loves

●

●

Having pleasure eating

●

●

Achievements

Going on with activities they were doing before the illness or maintaining activities similar to other children of the same age

–

●

Pursuit of achievement

–

●

Making a dream come true

–

●

Going to school

●

●