Table 1 Characteristics of participants according to the trajectories of burden (n = 17)
# | Number of interviews | Gender | Age | Education | Employment | Sector | Work a | Care a | Care recipient | Type of illness | Contact frequency | (One of) Care recipient(s) died during study |
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Trajectory: Persistent moderate level of burden | ||||||||||||
3 | 3 | Female | 40–45 | Middle | Employed | Health and social care | 36 | 5 | Parents (in-law) | Cancer / dementia | Daily | Yes |
11 | 3 | Male | 65–70 | High | Employed & | Business + FMCG | 12 | 28 | Partner / | Stroke / organ failure | Lives in same house | No |
Self-employed | Parent (in-law) | |||||||||||
14 | 3 | Female | 35–40 | High | Employed | Health and social care | 24 | 50 | Child | Cancer | Lives in same house | No |
16 | 3 | Female | 50–55 | Middle | Employed | Health and social care | 20 | 10 | Parents (in-law) | Progressive neurodegenerative disorder / other | Daily | Yes |
Trajectory: Persistent high level of burden d | ||||||||||||
1 | 3 | Female | 50–55 | Middle | Employed | Health and social care | 36 | 15 | Parents (in-law) | Dementia / cancer, other b | Weekly | No |
4 | 3 | Female | 50–55 | Middle | Employed | Health and social care | 24 | 25 | Partner | Progressive neurodegenerative disorder | Lives in same house | No |
5 | 3 | Female | 55–60 | High | Employed | Business | 39 | 14 | Parents (in-law) | Dementia, stroke, other / organ failure, other | Daily | No |
7 | 4 | Female | 60–65 | Middle | Employed | Public services | 18 | 90 | Partner | Progressive neurodegenerative disorder; organ failure | Lives in same house | No |
8 | 4 | Female | 55–60 | Middle | Employed | Health and social care | 32 | 8 | Parent (in-law) | Dementia; cancer | Daily | Yes |
13 | 3 | Female | 55–60 | High | Employed | Education | 24 | 10 | Parent (in-law) / other family member | Cancer / dementia | Weekly | No |
17 | 4 | Male | 30–35 | High | Employed | Public services | 36 | 12 | Parent (in-law) | Cancer | Daily | Yes |
Trajectory: Increasing level of burden d | ||||||||||||
2 | 3 | Female | 35–40 | Middle | Employed | Health and social care | 16 | 12 | Partner | Cancer | Lives in same house | Yes |
6 | 3 | Male | 50–55 | Middle | Employed | Health and social care | 20 | 30 | Partner | Organ failure; dementia; other | Lives in same house | No |
10 | 3 | Female | 40–45 | Low | Self-employed | Creative arts | 40 | 15 | Parents (in-law) | Dementia / stroke | Daily | No |
12 | 4 | Male | 40–45 | High | Employed | Education | 40 | 16 | Parent (in-law) | Cancer | Daily | No |
15 | 3 | Female | 50–55 | High | Employed | Public services | 28 | 25 | Partner | Progressive neurodegenerative disorder | Lives in same house | Yes |
18 | 1 c | Male | 30–35 | High | Employed | Public services | 36 | 15 | Partner | Cancer | Lives in same house | Yes |