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Table 3 Distress levels, marking of unexpected information in IPOS: psychosocial and practical problems

From: Feasibility, use and benefits of patient-reported outcome measures in palliative care units: a multicentre observational study

Reported distress

Patient report (IPOS)

n (% column)

Marked unexpected

n (% row)

Association distress level & marking unexpected

Chi2-test (two-sided)*

Anxious/worried about illness/treatment

(n = 136)

not at all/occasionally**

24 (17.6)

6 (25.0)

Chi2 (4) = 21.2

p < .001

sometimes

46 (33.8)

1 (2.2)

most of the time/always

66 (48.5)

15 (22.7)

overall

136 (100.0)

22 (16.2)

Family/friends anxious/worried about you

(n = 134)

not at all/occasionally

4 (2.9)

1 (25.0)

Chi2 (4) = 9.1

p = .027

sometimes

24 (17.6)

0 (0.0)

most of the time/always

106 (77.9)

5 (4.7)

overall

134 (100.0)

6 (4.5)

Feeling depressed

(n = 134)

not at all/occasionally

40 (29.4)

3 (7.5)

Chi2 (4) = 22.6

p < .001

sometimes

51 (37.5)

0 (0.0)

most of the time/always

43 (31.6)

12 (27.9)

overall

134 (100.0)

15 (11.2)

Feeling at peace

(n = 133)

always/most of the time

90 (66.2)

3 (3.3)

Chi2 (4) = 10.6

p = .031

sometimes

22 (16.2)

2 (9.1)

occasionally/not at all

21 (15.4)

4 (19.0)

overall

133 (100.0)

9 (6.8)

Can share feelings as much as you want

(n = 134)

always/most of the time

110 (80.9)

1 (0.9)

Chi2 (4) = 37.6

p < .001

sometimes

10 (7.4)

1 (10.0)

occasionally/not at all

14 (10.3)

3 (21.4)

overall

134 (100.0)

5 (3.7)

As much information as wanted

(n = 134)

always/most of the time

113 (83.1)

2 (1.8)

Chi2 (4) = 40.4

p < .001

sometimes

13 (9.6)

6 (46.2)

occasionally/not at all

8 (5.9)

1 (12.5)

overall

134 (100.0)

9 (6.7)

Practical problems addressed

(n = 132)

none or addressed/mostly addressed

96 (70.6)

2 (2.1)

Chi2 (4) = 17.1

p = .002

partly addressed

24 (17.6)

0 (0.0)

hardly/not addressed

12 (8.8)

3 (25.0)

overall

132 (100.0)

5 (3.8)

  1. * The Chi2-test was calculated for the five-point Likert scale without data reduction to the three-point format shown here; this is solely for the sake of clearer presentation
  2. ** For a more concise presentation of some results, levels of distress of specific symptoms are not presented as the original five-point scale but reduced to three categories