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Ethics, organization and policy

Section edited by Jan Schildmann

This section considers submissions that focus on the development, outcomes or discussion of ethical issues and policies within the practice of palliative care and medicine.

Page 1 of 2

  2. Content type: Study protocol

    Since 2007, the German statutory health insurance covers Specialized Outpatient Palliative Care (SAPV). SAPV offers team-based home care for patients with advanced and progressive disease, complex symptoms and...

    Authors: Antje Freytag, Markus Krause, Anna Bauer, Bianka Ditscheid, Maximiliane Jansky, Sabine Krauss, Thomas Lehmann, Ursula Marschall, Friedemann Nauck, Werner Schneider, Kathleen Stichling, Horst Christian Vollmar, Ulrich Wedding and Winfried Meißner

    Citation: BMC Palliative Care 2019 18:12

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  3. Content type: Research article

    Despite access to quality care at the end-of-life (EOL) being considered a human right, it is not equitable, with many facing significant barriers. Most research examines access to EOL care for homogenous ‘nor...

    Authors: K. I. Stajduhar, A. Mollison, M. Giesbrecht, R. McNeil, B. Pauly, S. Reimer-Kirkham, N. Dosani, B. Wallace, G. Showler, C. Meagher, K. Kvakic, D. Gleave, T. Teal, C. Rose, C. Showler and K. Rounds

    Citation: BMC Palliative Care 2019 18:11

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  4. Content type: Research article

    Migrants seem to be underrepresented in palliative care in Germany. Access barriers and challenges in care remain unclear. We aimed to provide a comprehensive insight into palliative care for migrants, using e...

    Authors: Maximiliane Jansky, Sonja Owusu-Boakye and Friedemann Nauck

    Citation: BMC Palliative Care 2019 18:8

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  5. Content type: Case report

    For the year 2018, the French government plans a revision of bioethics laws, including certainly the recent Claeys-Leonetti law introducing the right to deep and continuous sedation at the request of palliativ...

    Authors: Claire Vitale, Alexandre de Nonneville, Marie Fichaux and Sebastien Salas

    Citation: BMC Palliative Care 2019 18:2

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  6. Content type: Research article

    Rapid effective responsiveness to patient needs is pivotal to high quality palliative care. Aboriginal and Torres Strait Islander (Indigenous) people are susceptible to life-limiting illnesses at younger ages ...

    Authors: John A. Woods, Claire E. Johnson, Hanh T. Ngo, Judith M. Katzenellenbogen, Kevin Murray and Sandra C. Thompson

    Citation: BMC Palliative Care 2018 17:130

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  7. Content type: Study protocol

    In Germany, patients suffering from life-limiting conditions are eligible for specialized outpatient palliative care (SOPC). Evaluation of the quality of this service lacks currently integration of patient-rel...

    Authors: Katrin Kuss, Hannah Seipp, Dorothée Becker, Stefan Bösner, Antje Erler, Dania Gruber, Michaela Hach, Lisa R Ulrich and Jörg Haasenritter

    Citation: BMC Palliative Care 2018 17:111

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  8. Content type: Research article

    Norway has one of the lowest home death rates in Europe. However, it is the health authorities´ ambition to increase this by facilitating palliative care at home. The aim of this study was to achieve more insi...

    Authors: Britt Viola Danielsen, Anne Marit Sand, Jan Henrik Rosland and Oddvar Førland

    Citation: BMC Palliative Care 2018 17:95

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  9. Content type: Research article

    Advance care planning (ACP) is a continuous, dynamic process of reflection and dialogue between an individual, those close to them and their healthcare professionals, concerning the individual’s preferences an...

    Authors: Ruth Piers, Gwenda Albers, Joni Gilissen, Jan De Lepeleire, Jan Steyaert, Wouter Van Mechelen, Els Steeman, Let Dillen, Paul Vanden Berghe and Lieve Van den Block

    Citation: BMC Palliative Care 2018 17:88

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  10. Content type: Research article

    Home is a preferred place of death for many people; however, access to a home death may not be equitable. The impact of socioeconomic status on one’s ability to die at home has been documented, yet there remai...

    Authors: Joshua Wales, Allison M. Kurahashi and Amna Husain

    Citation: BMC Palliative Care 2018 17:87

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  11. Content type: Research article

    ACP involving a facilitated conversation with a health or care professional is more effective than document completion alone. In policy, there is an expectation that health and care professionals will provide ...

    Authors: Josie Dixon and Martin Knapp

    Citation: BMC Palliative Care 2018 17:78

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  12. Content type: Research article

    Only limited data are available concerning the diseases managed before death and hospital palliative care (HPC) use according to place of death in France. We therefore conducted an observational study based on...

    Authors: Claire Poulalhon, Laureen Rotelli-Bihet, Sébastien Moine, Anne Fagot-Campagna, Régis Aubry and Philippe Tuppin

    Citation: BMC Palliative Care 2018 17:75

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  13. Content type: Research article

    Health service administrators make decisions regarding how to best use limited resources to have the most significant impact. Service siting models are tools that can help in this capacity. Here we build on ou...

    Authors: V. A. Crooks, M. Giesbrecht, H. Castleden, N. Schuurman, M. Skinner and A. Williams

    Citation: BMC Palliative Care 2018 17:59

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  14. Content type: Research article

    Hospital costs and cost drivers in palliative care are poorly analysed. It remains unknown whether current German Diagnosis-Related Groups, mainly relying on main diagnosis or procedure, reproduce costs adequa...

    Authors: Matthias Vogl, Eva Schildmann, Reiner Leidl, Farina Hodiamont, Helen Kalies, Bernd Oliver Maier, Marcus Schlemmer, Susanne Roller and Claudia Bausewein

    Citation: BMC Palliative Care 2018 17:58

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  15. Content type: Research article

    On February 6th, 2015, the Supreme Court of Canada ruled that competent adults suffering intolerably from a grievous and irremediable medical condition have the right to the assistance of a physician in ending...

    Authors: Patricia Hizo-Abes, Lauren Siegel and Gil Schreier

    Citation: BMC Palliative Care 2018 17:56

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  19. Content type: Research article

    Family carers manage a wide range of responsibilities in the lives and care of patients receiving palliative care. They fulfil multiple roles and perform activities within different settings. This has immediat...

    Authors: Gülay Ateş, Anne Frederieke Ebenau, Csilla Busa, Ágnes Csikos, Jeroen Hasselaar, Birgit Jaspers, Johan Menten, Sheila Payne, Karen Van Beek, Sandra Varey, Marieke Groot and Lukas Radbruch

    Citation: BMC Palliative Care 2018 17:39

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  20. Content type: Research article

    Family members are important companions of severely ill patients with cancer. However, studies about the desirability and difficulties of integrating relatives in the decision-making process are rare in oncolo...

    Authors: Katsiaryna Laryionava, Timo A. Pfeil, Mareike Dietrich, Stella Reiter-Theil, Wolfgang Hiddemann and Eva C. Winkler

    Citation: BMC Palliative Care 2018 17:29

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  21. Content type: Study protocol

    The focus of this project is on improving the provision of primary palliative care (PC) by general practitioners (GPs). While approximately 10–15% of the incurable, seriously ill or dying people will be in nee...

    Authors: Helen Ewertowski, Fabian Tetzlaff, Stephanie Stiel, Nils Schneider and Saskia Jünger

    Citation: BMC Palliative Care 2018 17:21

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  22. Content type: Research article

    In France, advance directives are favourably perceived by most of the population, although the drafting rate is low. This ambivalence is challenging because advance directives are meant to promote the autonomy...

    Authors: S. Trarieux-Signol, D. Bordessoule, J. Ceccaldi, S. Malak, A. Polomeni, J. B. Fargeas, N. Signol, H. Pauliat and S. Moreau

    Citation: BMC Palliative Care 2018 17:10

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  23. Content type: Debate

    Healthcare legislation in European countries is similar in many respects. Most importantly, the framework of informed consent determines that physicians have the duty to provide detailed information about avai...

    Authors: Christian Weber, Barbara Fijalkowska, Katarzyna Ciecwierska, Anna Lindblad, Gisela Badura-Lotter, Peter M. Andersen, Magdalena Kuźma-Kozakiewicz, Albert C. Ludolph, Dorothée Lulé, Tomasz Pasierski and Niels Lynöe

    Citation: BMC Palliative Care 2017 16:80

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  24. Content type: Research article

    Little is known about the combination of person- and organization- related conditions and the relationships with patients’ perspectives of care quality. Such a combination could contribute knowledge reflecting...

    Authors: Tuva Sandsdalen, Sevald Høye, Ingrid Rystedt, Vigdis Abrahamsen Grøndahl, Reidun Hov and Bodil Wilde-Larsson

    Citation: BMC Palliative Care 2017 16:66

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  25. Content type: Research article

    Law purports to regulate end-of-life care but its role in decision-making by doctors is not clear. This paper, which is part of a three-year study into the role of law in medical practice at the end of life, i...

    Authors: Ben P. White, Lindy Willmott, Colleen Cartwright, Malcolm Parker, Gail Williams and Juliet Davis

    Citation: BMC Palliative Care 2017 16:63

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  26. Content type: Research article

    Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model sug...

    Authors: Sheila Payne, Rachael Eastham, Sean Hughes, Sandra Varey, Jeroen Hasselaar and Nancy Preston

    Citation: BMC Palliative Care 2017 16:64

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  27. Content type: Research article

    There are limited respite services for palliative care patients and their families in the Northern Territory (NT). The high prevalence of complex chronic diseases, limited access to primary care services, and ...

    Authors: Timothy A. Carey, Mick Arundell, Kellie Schouten, John S. Humphreys, Fred Miegel, Simon Murphy and John Wakerman

    Citation: BMC Palliative Care 2017 16:54

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  28. Content type: Research article

    Completion of Advance Directives (ADs), being financial and healthcare proxy or instructional documents, is relatively uncommon in Australia. Efforts to increase completion rates include online education and p...

    Authors: Sandra L. Bradley, Jennifer J. Tieman, Richard J. Woodman and Paddy A. Phillips

    Citation: BMC Palliative Care 2017 16:43

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  29. Content type: Study protocol

    The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in h...

    Authors: Joan Llobera, Noemí Sansó, Amador Ruiz, Merce Llagostera, Estefania Serratusell, Carlos Serrano, María Luisa Martín Roselló, Enric Benito, Eusebio J. Castaño and Alfonso Leiva

    Citation: BMC Palliative Care 2017 17:4

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    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  30. Content type: Research article

    There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use...

    Authors: Rebecca Reeve, Preeyaporn Srasuebkul, Julia M. Langton, Marion Haas, Rosalie Viney and Sallie-Anne Pearson

    Citation: BMC Palliative Care 2017 17:1

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    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  31. Content type: Research article

    Hospital-based Palliative Care Consultation Teams (PCCTs) have a consulting role to specialist services at their request. Referral of patients is often late. Early palliative care in oncology has shown its eff...

    Authors: Pascale Vinant, Ingrid Joffin, Laure Serresse, Sophie Grabar, Hélène Jaulmes, Malika Daoud, Gabriel Abitbol, Pascale Fouassier, Isabelle Triol, Sylvie Rostaing, Marie-Dominique Brette and Isabelle Colombet

    Citation: BMC Palliative Care 2017 16:36

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  32. Content type: Research article

    Despite recent advances in palliative medicine, sedating a terminally ill patient is regarded as an indispensable treatment to manage unbearable suffering. With the prospect of widespread use of palliative sed...

    Authors: Danièle Leboul, Régis Aubry, Jean-Michel Peter, Victor Royer, Jean-François Richard and Frédéric Guirimand

    Citation: BMC Palliative Care 2017 16:25

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  34. Content type: Research article

    Geographical accessibility is important in accessing healthcare services. Measuring it has evolved alongside technological and data analysis advances. High correlations between different methods have been dete...

    Authors: Clare Pearson, Julia Verne, Claudia Wells, Giovanna M. Polato, Irene J Higginson and Wei Gao

    Citation: BMC Palliative Care 2017 16:14

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  35. Content type: Research article

    Limiting treatment forms part of practice in many fields of medicine. There is a scarcity of robust data from Germany. Therefore, in this paper, we report results of a survey among German physicians with a foc...

    Authors: Birte Malena Dahmen, Jochen Vollmann, Stephan Nadolny and Jan Schildmann

    Citation: BMC Palliative Care 2017 16:3

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  36. Content type: Research article

    Providing end of life care in rural areas is challenging. We evaluated in a pilot whether nurse practitioner (NP)-led care, including clinical care plans negotiated with involved health professionals including...

    Authors: Geoffrey Keith Mitchell, Hugh Edgar Senior, Michael Peter Bibo, Blessing Makoni, Sharleen Nicole Young, John Patrick Rosenberg and Patsy Yates

    Citation: BMC Palliative Care 2016 15:93

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  38. Content type: Research article

    The use of full-population databases is under-explored to study the use, quality and costs of end-of-life care. Using the case of Belgium, we explored: (1) which full-population databases provide valid informa...

    Authors: Arno Maetens, Robrecht De Schreye, Kristof Faes, Dirk Houttekier, Luc Deliens, Birgit Gielen, Cindy De Gendt, Patrick Lusyne, Lieven Annemans and Joachim Cohen

    Citation: BMC Palliative Care 2016 15:86

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  39. Content type: Research article

    Institutional deaths (hospitals and nursing homes) are an important issue because they are often at odds with patient preference and associated with high healthcare costs. The aim of this study was to examine ...

    Authors: Xhyljeta Luta, Radoslaw Panczak, Maud Maessen, Matthias Egger, David C. Goodman, Marcel Zwahlen, Andreas E. Stuck and Kerri Clough - Gorr

    Citation: BMC Palliative Care 2016 15:83

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  40. Content type: Research article

    Medical errors have been recognized as a relevant public health concern and research efforts to improve patient safety have increased. In palliative care, however, studies on errors are rare and mainly focus o...

    Authors: Isabel Kiesewetter, Christian Schulz, Claudia Bausewein, Rita Fountain and Andrea Schmitz

    Citation: BMC Palliative Care 2016 15:75

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  41. Content type: Research article

    Regionalization promotes planning and coordination of services across settings and providers to meet population needs. Despite the potential advantages of regionalization, no regional hospice palliative care p...

    Authors: José Pereira, Jocelyne Contant, Gwen Barton and Christopher Klinger

    Citation: BMC Palliative Care 2016 15:65

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  42. Content type: Research article

    Government policy is a fundamental component of initiating change to improve the provision of palliative care at a national level. The World Health Organisation’s recognition of palliative care as a basic huma...

    Authors: Jackie Robinson, Merryn Gott, Clare Gardiner and Christine Ingleton

    Citation: BMC Palliative Care 2016 15:64

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  43. Content type: Study protocol

    Compassionate support at the end of life should not be the responsibility of health and social care professionals alone and requires a response from the wider community. Volunteers, as community members, are a...

    Authors: Catherine Walshe, Guillermo Perez Algorta, Steven Dodd, Matthew Hill, Nick Ockenden, Sheila Payne and Nancy Preston

    Citation: BMC Palliative Care 2016 15:60

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    The Erratum to this article has been published in BMC Palliative Care 2016 15:98

  44. Content type: Research article

    Sedation is used to an increasing extent in end-of-life care. Definitions and indications in this field are based on expert opinions and case series. Little is known about this practice at palliative care unit...

    Authors: Sophie Schur, Dietmar Weixler, Christoph Gabl, Gudrun Kreye, Rudolf Likar, Eva Katharina Masel, Michael Mayrhofer, Franz Reiner, Barbara Schmidmayr, Kathrin Kirchheiner and Herbert Hans Watzke

    Citation: BMC Palliative Care 2016 15:50

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  45. Content type: Research article

    End-of-life integrated care plans are used as structuring tools for the care of the dying. A widely adopted example is the Liverpool Care Pathway for the Dying Patient (LCP). Recently, several concerns were ra...

    Authors: Christian Schulz, Daniel Schlieper, Christiane Altreuther, Manuela Schallenburger, Katharina Fetz and Andrea Schmitz

    Citation: BMC Palliative Care 2015 14:72

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  48. Content type: Research article

    The interRAI Palliative Care (interRAI PC) assessment instrument provides a standardized, comprehensive means to identify person-specific need and supports clinicians to address important factors such as aspec...

    Authors: Shannon Freeman, John P Hirdes, Paul Stolee, John Garcia, Trevor Frise Smith, Knight Steel and John N Morris

    Citation: BMC Palliative Care 2014 13:58

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  49. Content type: Research article

    During the last few decades, patients’ rights have been reinforced in many countries by acts of law. Measures now include health care proxies to uphold the doctor-patient relationship and advance directives fo...

    Authors: Sophie Trarieux-Signol, Stéphane Moreau, Marie-Pierre Gourin, Amélie Penot, Geoffroy Edoux de Lafont, Pierre-Marie Preux and Dominique Bordessoule

    Citation: BMC Palliative Care 2014 13:57

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  50. Content type: Research article

    In the current public debate in France about end-of-life and legalization of euthanasia, palliative care is considered as a suitable answer or an alternative or even a supplement to euthanasia. The debate is b...

    Authors: Frédéric Guirimand, Etienne Dubois, Lucy Laporte, Jean-François Richard and Danièle Leboul

    Citation: BMC Palliative Care 2014 13:53

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