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Palliative care in other conditions

Section edited by Claudia Bausewein

This broad section considers submissions relevant to pain and symptom management in human disorders, including studies related to rehabilitation, quality of life, and end of life care. We will consider quantitative and qualitative research, including clinical trials of pain or symptom control therapies, and health services studies evaluating the outcomes of diverse therapeutic models.

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  1. Content type: Research article

    Increasing the quality of life with short interventions for vulnerable patients is one of the objectives of palliative care. Biographical approaches are used in a range of different interventions which may req...

    Authors: Michaela Hesse, Simon Forstmeier, Henning Cuhls and Lukas Radbruch

    Citation: BMC Palliative Care 2019 18:79

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  2. Content type: Research article

    Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitaliza...

    Authors: Falk Hoffmann, Anke Strautmann and Katharina Allers

    Citation: BMC Palliative Care 2019 18:77

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  3. Content type: Research article

    In long-term care facilities often many care providers are involved, which could make it difficult to reach consensus in care. This may harm the relation between care providers and can complicate care. This st...

    Authors: M. ten Koppel, H. R. W. Pasman, J. T. van der Steen, H. P. J. van Hout, M. Kylänen, L. Van den Block, T. Smets, L. Deliens, G. Gambassi, K. Froggatt, K. Szczerbińska and B. D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2019 18:73

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  4. Content type: Research article

    Caring for someone with dementia can be physically and emotionally difficult. Acting as a caregiver can make it difficult to access sources of support, particularly in the later stages of dementia. This paper ...

    Authors: Nathan Davies, Jenny Hopwood, Nina Walker, Jamie Ross, Steve Iliffe, Kate Walters and Greta Rait

    Citation: BMC Palliative Care 2019 18:71

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  5. Content type: Research article

    Patients with end-stage kidney disease (ESKD) on hemodialysis have limited life expectancy, yet their palliative care needs often go unmet. The aim of this study was to identify barriers and facilitators for i...

    Authors: Sarah L. Goff, Mark L. Unruh, Jamie Klingensmith, Nwamaka D. Eneanya, Casey Garvey, Michael J. Germain and Lewis M. Cohen

    Citation: BMC Palliative Care 2019 18:64

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  6. Content type: Research article

    Systematic research into palliative care (PC) for people with substance use disorder (SUD) and multiple problems is scarce. The existing literature shows problems in the organizational structure of this care, ...

    Authors: Anne Ebenau, Boukje Dijkstra, Chantal ter Huurne, Jeroen Hasselaar, Kris Vissers and Marieke Groot

    Citation: BMC Palliative Care 2019 18:56

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  7. Content type: Research article

    Parkinson’s disease (PD) is a chronic and neurodegenerative disease associated with a wide variety of symptoms. The risk of complications increases with progression of the disease. These complications have a t...

    Authors: Herma Lennaerts, Maxime Steppe, Marten Munneke, Marjan J. Meinders, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Bastiaan R. Bloem and Marieke Groot

    Citation: BMC Palliative Care 2019 18:53

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  8. Content type: Research article

    Unregulated care providers (UCPs) are at the forefront of direct client care in the community. Their services are required to meet the demand for home-based palliative care from a growing older population, yet...

    Authors: Christine J. McPherson, Judy Etele, Viviane Chou-Yin Ta and Angelina Raghubir

    Citation: BMC Palliative Care 2019 18:52

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  9. Content type: Research article

    There is increasing awareness of the need for an integrated palliative care approach in chronic progressive neurological diseases. Advance care planning (ACP) is an integral part of this approach. As a systema...

    Authors: Antje A. Seeber, A. Jeannette Pols, Albert Hijdra, Hepke F. Grupstra, Dick L. Willems and Marianne de Visser

    Citation: BMC Palliative Care 2019 18:50

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  10. Content type: Research article

    The needs of care based on palliative principles are stressed for all people with progressive and/or life-limiting conditions, regardless of age and the place in which care is provided. Person-centred palliati...

    Authors: Christina Bökberg, Lina Behm, Birgitta Wallerstedt and Gerd Ahlström

    Citation: BMC Palliative Care 2019 18:44

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  11. Content type: Research article

    Home-based care networks differ in size and composition, but little is known about the characteristics of care networks for those nearing the end of their lives. This study aimed to identify different types of...

    Authors: Femmy M. Bijnsdorp, H. Roeline W. Pasman, Anneke L. Francke, Natalie Evans, Carel F. W. Peeters and Marjolein I. Broese van Groenou

    Citation: BMC Palliative Care 2019 18:41

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  12. Content type: Research article

    Internationally, it is widely accepted that holistic care is as an integral part of the care for people with motor neurone disease (MND), and their informal carers. However the optimal role of generalist and s...

    Authors: Clare Mc Veigh, Colette Donaghy, Briege Mc Laughlin, Alison Dick, Kiran Kaur, John Mc Conville and Max Watson

    Citation: BMC Palliative Care 2019 18:39

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  13. Content type: Research article

    Little is known of how to organize non-malign palliative care, and existing knowledge show that patients with COPD live with unmet palliative needs and low quality of life. With the intent to improve palliativ...

    Authors: D. G. Bove, M. O. Jellington, M. Lavesen, K. Marså and S. F. Herling

    Citation: BMC Palliative Care 2019 18:24

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  14. Content type: Research article

    Chronic lung diseases, such as COPD, are a growing health concern within the veteran population. Palliative care programs have mainly focused on the needs of people with malignant disease in the past, however ...

    Authors: Clare Mc Veigh, Joanne Reid and Paula Carvalho

    Citation: BMC Palliative Care 2019 18:22

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  15. Content type: Research article

    Home-based palliative care is an essential resource for many communities. We conducted a qualitative study to explore perceptions of a home-based palliative care programme in Kerala, India, from the perspectiv...

    Authors: Rekha Rachel Philip, Emilie Venables, Abdulla Manima, Jaya Prasad Tripathy and Sairu Philip

    Citation: BMC Palliative Care 2019 18:16

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  16. Content type: Research article

    An essential aspect of palliative care nursing is to conserve the dignity of the patient. A Dignity Care Intervention (DCI) has been developed in Scotland to facilitate this role for nurses. The DCI is now bei...

    Authors: Ulrika Östlund, Karin Blomberg, Annika Söderman and Carina Werkander Harstäde

    Citation: BMC Palliative Care 2019 18:10

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  17. Content type: Research article

    Lay family caregivers of patients receiving palliative care often confront stressful situations in the care of their loved ones. This is particularly true for families in the home-based palliative care setting...

    Authors: Michael Galatsch, Holly G. Prigerson, Wilfried Schnepp, Friederike zu Sayn-Wittgenstein and Jian Li

    Citation: BMC Palliative Care 2019 18:9

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  18. Content type: Research article

    The Advanced Lung Disease Service is a unique, new model of integrated respiratory and palliative care, which aims to address the unmet needs of patients with advanced, non-malignant, respiratory diseases. Thi...

    Authors: Natasha Smallwood, Thomas Moran, Michelle Thompson, Peter Eastman, Brian Le and Jennifer Philip

    Citation: BMC Palliative Care 2019 18:7

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  19. Content type: Research article

    There is considerable uncertainty surrounding the medications used to delay the progression of dementia, especially their long-term efficacy and when to withdraw treatment with these agents. Current research r...

    Authors: Carole Parsons and Sarah Gamble

    Citation: BMC Palliative Care 2019 18:6

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  20. Content type: Research article

    Currently, there are no formalized measures for the quality of home based palliative care in Ontario. This study developed a set of potential quality indicators for seriously ill home care clients using a stan...

    Authors: Lisa E. Harman, Dawn M. Guthrie, Joachim Cohen, Anja Declercq, Kathryn Fisher, Donna Goodridge, John P. Hirdes and Hsien Seow

    Citation: BMC Palliative Care 2019 18:3

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  21. Content type: Research article

    Sleep disturbance is a significant issue, particularly for patients with advanced terminal illness. Currently, there are no practice-based recommended approaches for managing sleep and circadian disruptions in...

    Authors: Rana Sagha Zadeh, Elizabeth Capezuti, Paul Eshelman, Nicole Woody, Jennifer Tiffany and Ana C. Krieger

    Citation: BMC Palliative Care 2018 17:131

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  22. Content type: Research article

    The treatment of Multidrug-Resistant Tuberculosis represents one of the most significant challenges to global health. Despite guidance on improving treatment outcomes, there is little focus on how to support i...

    Authors: Joseph M. Sawyer, Rahul Asgr, Florence N. Todd Fordham and John D.H. Porter

    Citation: BMC Palliative Care 2018 17:120

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  23. Content type: Research article

    People experiencing homelessness often encounter progressive incurable somatic diseases in combination with psychiatric and psychosocial problems, and many need palliative care at the end of their lives. Littl...

    Authors: Anke J E de Veer, Barbara Stringer, Berno van Meijel, Renate Verkaik and Anneke L Francke

    Citation: BMC Palliative Care 2018 17:119

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  24. Content type: Research article

    End-of-life care (EoLC) is an experience that touches the lives of everyone. Dying in an acute hospital is a common occurrence in developed countries across the world. Previous studies have shown that there is...

    Authors: Sarah Donnelly, Geraldine Prizeman, Diarmuid Ó Coimín, Bettina Korn and Geralyn Hynes

    Citation: BMC Palliative Care 2018 17:117

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  25. Content type: Research article

    To improve the care of patients with advanced COPD and be able to address their palliative needs a new outpatient organization (CAPTAIN) was developed and implemented. CAPTAIN was inspired by best practice and...

    Authors: Dorthe Gaby Bove, Marie Lavesen, Maria Omel Jellington, Kristoffer Bastrup-Madsen Marsaa and Suzanne Forsyth Herling

    Citation: BMC Palliative Care 2018 17:113

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  26. Content type: Research article

    Professional societies call for integration of end-of-life discussions early in the trajectory of heart failure, yet it remains unclear where current practices stand in relation to these recommendations. We so...

    Authors: Fiona Ecarnot, Nicolas Meunier-Beillard, Marie-France Seronde, Romain Chopard, François Schiele, Jean-Pierre Quenot and Nicolas Meneveau

    Citation: BMC Palliative Care 2018 17:112

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  27. Content type: Research article

    Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care rese...

    Authors: Sonja McIlfatrick, Deborah H. L. Muldrew, Felicity Hasson and Sheila Payne

    Citation: BMC Palliative Care 2018 17:109

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  28. Content type: Research article

    A lack of evidence and psychometrically sound measures of compassion necessitated the development of the first known, empirically derived, theoretical Patient Compassion Model (PCM) generated from qualitative ...

    Authors: Shane Sinclair, Priya Jaggi, Thomas F. Hack, Susan E. McClement, Shelley Raffin-Bouchal and Pavneet Singh

    Citation: BMC Palliative Care 2018 17:108

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  29. Content type: Study protocol

    Death rattle (DR), caused by mucus in the respiratory tract, occurs in about half of patients who are in the dying phase. Relatives often experience DR as distressing. Anticholinergics are recommended to treat...

    Authors: Harriëtte J. van Esch, Lia van Zuylen, Esther Oomen–de Hoop, Agnes van der Heide and Carin C. D. van der Rijt

    Citation: BMC Palliative Care 2018 17:105

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  30. Content type: Research article

    Patients with Chronic Heart Failure (CHF) and patients with Chronic Obstructive Pulmonary Disease (COPD) share similar symptom burden with cancer patients, however, they are unlikely to receive palliative care...

    Authors: N. Siouta, P. Clement, B. Aertgeerts, K. Van Beek and J. Menten

    Citation: BMC Palliative Care 2018 17:103

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  31. Content type: Study protocol

    The specific palliative care needs and problems of patients with a substance use disorder and multiple problems, and those of their proxies, are under recognized Besides, the organization of palliative care, i...

    Authors: Anne Ebenau, Boukje Dijkstra, Marianne Stal-Klapwijk, Chantal ter Huurne, Ans Blom, Kris Vissers and Marieke Groot

    Citation: BMC Palliative Care 2018 17:97

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  32. Content type: Research article

    The implementation of standardised, valid and reliable measurements in palliative care is subject to practical and methodological challenges. One aspect of ongoing discussion is the value of systematic proxy-b...

    Authors: Katharina Fetz, Hendrik Vogt, Thomas Ostermann, Andrea Schmitz and Christian Schulz-Quach

    Citation: BMC Palliative Care 2018 17:92

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  33. Content type: Research article

    The aim of this paper was to describe the development of an intervention that is developed to improve communication about the heart failure (HF) trajectory and end-of-life care. We also present data that provi...

    Authors: Lisa Hjelmfors, Anna Strömberg, Maria Friedrichsen, Anna Sandgren, Jan Mårtensson and Tiny Jaarsma

    Citation: BMC Palliative Care 2018 17:85

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  34. Content type: Research article

    Due to increasing life expectancy, more and more older people are suffering from dementia and comorbidities. To date, little information is available on place of death for dementia patients in Germany. In addi...

    Authors: Burkhard Dasch, Claudia Bausewein and Berend Feddersen

    Citation: BMC Palliative Care 2018 17:80

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  35. Content type: Research article

    Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it’s implementation is challenging. In Belgium, five paediatric liaison teams (PLTs)...

    Authors: Marie Friedel, Bénédicte Brichard, Christine Fonteyne, Marleen Renard, Jean-Paul Misson, Els Vandecruys, Corinne Tonon, Françoise Verfaillie, Georgette Hendrijckx, Nathalie Andersson, Ilse Ruysseveldt, Katrien Moens, Jean-Marie Degryse and Isabelle Aujoulat

    Citation: BMC Palliative Care 2018 17:77

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  36. Content type: Research article

    Neonatal deaths are often associated with the complex decision to limit or withdraw life-sustaining interventions (LSIs) rather than therapeutic impasses. Despite the existence of a law, significant disparitie...

    Authors: G. Sorin, R. Vialet and B. Tosello

    Citation: BMC Palliative Care 2018 17:76

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  37. Content type: Research article

    There is little research on number of planned home deaths. We need information about factors associated with home deaths, but also differences between planned and unplanned home deaths to improve end-of-life-c...

    Authors: Camilla Kjellstadli, Bettina Sandgathe Husebø, Hogne Sandvik, Elisabeth Flo and Steinar Hunskaar

    Citation: BMC Palliative Care 2018 17:69

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  38. Content type: Research article

    Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocia...

    Authors: Hanna T. Klop, Anke J.E. de Veer, Sophie I. van Dongen, Anneke L. Francke, Judith A.C. Rietjens and Bregje D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2018 17:67

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  39. Content type: Study protocol

    In case of untreatable suffering at the end of life, palliative sedation may be chosen to assure comfort by reducing the patient’s level of consciousness. An important question here is whether such sedated pat...

    Authors: Stefaan Six, Steven Laureys, Jan Poelaert, Johan Bilsen, Peter Theuns and Reginald Deschepper

    Citation: BMC Palliative Care 2018 17:62

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  40. Content type: Research article

    Symptom management is an essential aspect of palliative and end-of-life care, but evidence suggests that patients’ symptoms may not always be relieved, causing significant harm to patients and magnifying their...

    Authors: Jessica Baillie, Despina Anagnostou, Stephanie Sivell, Jordan Van Godwin, Anthony Byrne and Annmarie Nelson

    Citation: BMC Palliative Care 2018 17:60

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  41. Content type: Research article

    Chronic kidney disease (CKD) is a growing global problem affecting around 10% of many countries’ populations. Providing appropriate palliative care services (PCS) to those with advanced kidney disease is becom...

    Authors: Shirley Chambers, Helen Healy, Wendy E. Hoy, Adrian Kark, Sharad Ratanjee, Geoffrey Mitchell, Carol Douglas, Patsy Yates and Ann Bonner

    Citation: BMC Palliative Care 2018 17:57

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  42. Content type: Research article

    People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are li...

    Authors: Beverley McNamara, Anne Same, Lorna Rosenwax and Brian Kelly

    Citation: BMC Palliative Care 2018 17:53

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  43. Content type: Study protocol

    Several studies have highlighted the need for improvement in palliative care delivered to older people long-term care facilities. However, the available evidence on how to improve palliative care in these sett...

    Authors: Tinne Smets, Bregje B. D. Onwuteaka-Philipsen, Rose Miranda, Lara Pivodic, Marc Tanghe, Hein van Hout, Roeline H. R. W. Pasman, Mariska Oosterveld-Vlug, Ruth Piers, Nele Van Den Noortgate, Anne B. Wichmann, Yvonne Engels, Myrra Vernooij-Dassen, Jo Hockley, Katherine Froggatt, Sheila Payne…

    Citation: BMC Palliative Care 2018 17:47

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  44. Content type: Research article

    Heart failure is an emerging challenge for Sub Saharan Africa. However, research on patients’ needs and experiences of care is scarce with little evidence available to support and develop services. We aimed to...

    Authors: Kellen N. Kimani, Scott A. Murray and Liz Grant

    Citation: BMC Palliative Care 2018 17:28

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  45. Content type: Research article

    The well lauded community-based palliative care programme of Kerala, India provides medical and social support, through home-based care, for patients with terminal illness and diseases requiring long-term supp...

    Authors: Rekha Rachel Philip, Sairu Philip, Jaya Prasad Tripathy, Abdulla Manima and Emilie Venables

    Citation: BMC Palliative Care 2018 17:26

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  46. Content type: Research article

    People dying with dementia have significant healthcare needs, and palliative care, with its focus on comfort and quality of life, should be made available to these patients. The aim of this study was to explor...

    Authors: May Helen Midtbust, Rigmor Einang Alnes, Eva Gjengedal and Else Lykkeslet

    Citation: BMC Palliative Care 2018 17:25

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  47. Content type: Research article

    In 2009, the Taiwanese national health insurance system substantially expanded hospice coverage for terminal cancer patients to include patients with end-stage brain, dementia, heart, lung, liver, and kidney d...

    Authors: Tzu-Chien Shih, Hsiao-Ting Chang, Ming-Hwai Lin, Chun-Ku Chen, Tzeng-Ji Chen and Shinn-Jang Hwang

    Citation: BMC Palliative Care 2018 17:18

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  48. Content type: Study protocol

    In 2007, the European Association of Palliative Care (EAPC) provided a comprehensive set of recommendations and standards for the provision of adequate pediatric palliative care. A number of studies have shown...

    Authors: Lisa-R. Ulrich, Dania Gruber, Michaela Hach, Stefan Boesner, Joerg Haasenritter, Katrin Kuss, Hannah Seipp, Ferdinand M. Gerlach and Antje Erler

    Citation: BMC Palliative Care 2018 17:14

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2018 Journal Metrics

  • Citation Impact
    2.922 - 2-year Impact Factor
    3.141 - 5-year Impact Factor
    1.347 - Source Normalized Impact per Paper (SNIP)
    1.195 - SCImago Journal Rank (SJR)


    Social Media Impact
    1361 Mentions