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Palliative care in other conditions

Section edited by Claudia Bausewein

This broad section considers submissions relevant to pain and symptom management in human disorders, including studies related to rehabilitation, quality of life, and end of life care. We will consider quantitative and qualitative research, including clinical trials of pain or symptom control therapies, and health services studies evaluating the outcomes of diverse therapeutic models.

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  1. It is recommended that patients with progressive neurological disease (PND) receive general and specialized palliative care. The purpose of this study was to determine the effect of neuropalliative care on qua...

    Authors: Radka Bužgová, Radka Kozáková and Michal Bar

    Citation: BMC Palliative Care 2020 19:143

    Content type: Research article

    Published on:

  2. Hospitalisation of patients with advanced dementia is generally regarded as less preferable compared to care at home or in a nursing home. For patients with other diagnoses, young age has been associated with ...

    Authors: Lisa Martinsson, Staffan Lundström and Johan Sundelöf

    Citation: BMC Palliative Care 2020 19:135

    Content type: Research article

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  3. Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income ...

    Authors: Catherine Sarfo-Walters and Edward Appiah Boateng

    Citation: BMC Palliative Care 2020 19:133

    Content type: Research article

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  4. End-of-life care is provided in a variety of healthcare settings, not just palliative care hospitals. This is one reason why it is very important to assess all barriers to end-of-life care and to provide safe ...

    Authors: Aurelija Blaževičienė, Lina Laurs and Jamesetta A. Newland

    Citation: BMC Palliative Care 2020 19:131

    Content type: Research article

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  5. When a patient is approaching death in the intensive care unit (ICU), patients’ relatives must make a rapid transition from focusing on their beloved one’s recovery to preparation for their unavoidable death. ...

    Authors: Margo M. C. van Mol, Sebastian Wagener, Jos M. Latour, Paul A. Boelen, Peter E. Spronk, Corstiaan A. den Uil and Judith A. C. Rietjens

    Citation: BMC Palliative Care 2020 19:130

    Content type: Study protocol

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  6. The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve pallia...

    Authors: Rosemary Frey, Sophia Barham, Deborah Balmer, Michal Boyd, Jackie Robinson and Merryn Gott

    Citation: BMC Palliative Care 2020 19:127

    Content type: Research article

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  7. When death ends a life, the impact of caring for person who suffered a period of illness or disease continues for significant others who are left to grieve. They should be offered support to avoid complicated ...

    Authors: Ulla Näppä and Kerstin Björkman-Randström

    Citation: BMC Palliative Care 2020 19:124

    Content type: Research article

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  8. Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face an...

    Authors: Nicholas Jennings, Kenneth Chambaere, Cheryl Cox Macpherson, Karen L. Cox, Luc Deliens and Joachim Cohen

    Citation: BMC Palliative Care 2020 19:123

    Content type: Research article

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  9. Difficulties in prognostication are common deterrents to palliative care among dementia patients. This study aimed to evaluate the effectiveness of palliative care in reducing the extent of utilization of medi...

    Authors: Chih-Pang Chu, Cho-Yin Huang, Chian-Jue Kuo, Ying-Yeh Chen, Chun-Tse Chen, Tien-Wei Yang and Hsing-Cheng Liu

    Citation: BMC Palliative Care 2020 19:122

    Content type: Research article

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  10. Mothers and fathers are severely challenged when providing care for their terminally ill child at end of life. Caregiving needs have been studied predominantly in mothers. Differences in caregiving needs betwe...

    Authors: Tanja Leemann, Eva Bergstraesser, Eva Cignacco and Karin Zimmermann

    Citation: BMC Palliative Care 2020 19:118

    Content type: Research article

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  11. A large number of the hospice patients have been reported to be with symptoms of pain. Thus, managing the patient’s pain is one aspect of hospice care provision. The delivery of pain care services could be fac...

    Authors: Yijin Wu

    Citation: BMC Palliative Care 2020 19:116

    Content type: Research article

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  12. While a palliative approach is generally perceived to be an integral part of the intensive care unit (ICU), the provision of palliative care in this setting is challenging. This review aims to identify factors...

    Authors: Hanan Hamdan Alshehri, Sepideh Olausson, Joakim Öhlén and Axel Wolf

    Citation: BMC Palliative Care 2020 19:113

    Content type: Research article

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  13. Surrogate decision makers of stroke patients are often unprepared to make critical decisions on life-sustaining treatments. We describe the development process and key features for the Understanding Stroke web-ba...

    Authors: Emily P. Chen, Cynthia Arslanian-Engoren, William Newhouse, Diane Egleston, Savina Sahgal, Aneesha Yande, Angela Fagerlin and Darin B. Zahuranec

    Citation: BMC Palliative Care 2020 19:110

    Content type: Research article

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  14. Doctors, particularly general practitioners, play a significant role in assisting patients to create advance care plans. When medically indicated, these documents are important tools to promote congruence betw...

    Authors: Laura Panozzo, Pam Harvey, Meagan-Jane Adams, Dennis O’Connor and Bernadette Ward

    Citation: BMC Palliative Care 2020 19:108

    Content type: Research article

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  15. The interest in physiotherapy programs for individuals in hospice is increasing. The aim of our study was to assess the impact of a multi-component, individualized physiotherapy program on the functional and e...

    Authors: Agnieszka Ćwirlej-Sozańska, Agnieszka Wójcicka, Edyta Kluska, Anna Stachoń and Anna Żmuda

    Citation: BMC Palliative Care 2020 19:101

    Content type: Research article

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  16. While many Aotearoa/New Zealanders are receiving excellent palliative care the Pacific populations have limited access to available hospice and palliative care services. Little research has been conducted to i...

    Authors: Sunia Foliaki, Veisinia Pulu, Hayley Denison, Mark Weatherall and Jeroen Douwes

    Citation: BMC Palliative Care 2020 19:100

    Content type: Research article

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  17. The 3 Wishes Project (3WP) is an end-of-life program that honors the dignity of dying patients by fostering meaningful connections among patients, families, and clinicians. Since 2013, it has become embedded i...

    Authors: Meredith Vanstone, Thanh H. Neville, Marilyn E. Swinton, Marina Sadik, France J. Clarke, Allana LeBlanc, Benjamin Tam, Alyson Takaoka, Neala Hoad, Jennifer Hancock, Sarah McMullen, Brenda Reeve, William Dechert, Orla M. Smith, Gyan Sandhu, Julie Lockington…

    Citation: BMC Palliative Care 2020 19:93

    Content type: Research article

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  18. The association between palliative care and life-sustaining treatment following emergency department (ED) resuscitation is unclear. This study aims to analyze the usage of palliative care and life-sustaining t...

    Authors: Chih-Yuan Lin and Yue-Chune Lee

    Citation: BMC Palliative Care 2020 19:87

    Content type: Research article

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  19. It is important to understand the total burden of COPD and thereby be able to identify patients who need more intensive palliative care to avoid deteriorated quality of life. The aim of this study was to descr...

    Authors: D. G. Bove, M. Lavesen and B. Lindegaard

    Citation: BMC Palliative Care 2020 19:84

    Content type: Research article

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  20. Spirituality can give meaning to life, providing support and guidance in complex situations. Despite its importance in palliative care, the role of spirituality for family caregivers of patients under exclusiv...

    Authors: Paula Menis Vigna, Isac de Castro and Renata Rego Lins Fumis

    Citation: BMC Palliative Care 2020 19:77

    Content type: Research article

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  21. Symptom assessment is essential in palliative care, but holds challenges concerning implementation and relevance. This study aims to evaluate patients’ main symptoms and problems at admission to a specialist i...

    Authors: Anja Coym, Anneke Ullrich, Lisa Kathrin Hackspiel, Mareike Ahrenholz, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2020 19:75

    Content type: Research article

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  22. The purpose of this paper is to describe how end-of-life care is managed when life-support limitation is decided in a Pediatric Intensive Care Unit and to analyze the influence of the further development of th...

    Authors: Sara Bobillo-Perez, Susana Segura, Monica Girona-Alarcon, Aida Felipe, Monica Balaguer, Lluisa Hernandez-Platero, Anna Sole-Ribalta, Carmina Guitart, Iolanda Jordan and Francisco Jose Cambra

    Citation: BMC Palliative Care 2020 19:74

    Content type: Research article

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  23. Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly out...

    Authors: Maria João Cardoso Teixeira, Wilson Abreu, Nilza Costa and Matthew Maddocks

    Citation: BMC Palliative Care 2020 19:73

    Content type: Research article

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  24. The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and...

    Authors: Eleanor Wilson, Glenys Caswell, Asam Latif, Claire Anderson, Christina Faull and Kristian Pollock

    Citation: BMC Palliative Care 2020 19:66

    Content type: Research article

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  25. Chronic breathlessness is a recognized clinical syndrome that severely impacts patients and carers, who become increasingly restricted in their daily activities. Often, patients become reliant on their carers,...

    Authors: Diana H. Ferreira, Slavica Kochovska, Aaron Honson, Jane L. Phillips and David C. Currow

    Citation: BMC Palliative Care 2020 19:64

    Content type: Research article

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  26. Pain is a prevalent symptom at the end of life and negatively impacts quality of life. Despite this, little population level data exist that describe pain frequency and associated factors at the end of life. T...

    Authors: A. Meaghen Hagarty, Shirley H. Bush, Robert Talarico, Julie Lapenskie and Peter Tanuseputro

    Citation: BMC Palliative Care 2020 19:60

    Content type: Research article

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  27. Despite a broad consensus and recommendations, numerous international reports or studies have shown the difficulties of implementing palliative care within healthcare services. The objective of this study was ...

    Authors: Agnès Oude Engberink, Maryse Mailly, Valerie Marco, Daniele Bourrie, Jean-Pierre Benezech, Josyane Chevallier, Sandrine Vanderhoeven, Remy Crosnier, Gérard Bourrel and Béatrice Lognos

    Citation: BMC Palliative Care 2020 19:34

    Content type: Research article

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  28. To improve the quality of advance care planning (ACP) in primary care, it is important to understand the frequency of and topics involved in the ACP discussion between patients and their family physicians (FPs).

    Authors: Jun Hamano, Ai Oishi, Tatsuya Morita and Yoshiyuki Kizawa

    Citation: BMC Palliative Care 2020 19:32

    Content type: Research article

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  29. Nursing home residents with early-onset neurodegenerative diseases are often younger in comparison with other residents, and need different, often more complex care. Accordingly, the measurements currently use...

    Authors: Joyce C. F. Heffels, Irma H. J. Everink, Mayke Oosterloo, Raymund A. C. Roos and Jos M. G. A. Schols

    Citation: BMC Palliative Care 2020 19:25

    Content type: Research article

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  30. While the populations of children who can benefit from paediatric palliative care (PPC) have been broadly defined, identifying individual patients to receive PPC has been problematic in practice. The Paediatri...

    Authors: Poh Heng Chong, Janice Soo, Zhi Zheng Yeo, Raymond Qishun Ang and Celene Ting

    Citation: BMC Palliative Care 2020 19:18

    Content type: Research article

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  31. There is little information about how healthcare professionals feel about providing palliative care for patients with a substance use disorder (SUD). Therefore, this study aims to explore: 1) the problems and ...

    Authors: Anne Ebenau, Boukje Dijkstra, Chantal ter Huurne, Jeroen Hasselaar, Kris Vissers and Marieke Groot

    Citation: BMC Palliative Care 2020 19:8

    Content type: Research article

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  32. As palliative care increasingly takes place in patients’ homes, perceptions of security among patients in the late palliative phase and their relatives are important.

    Authors: Reidun Hov, Bente Bjørsland, Bente Ødegård Kjøs and Bodil Wilde-Larsson

    Citation: BMC Palliative Care 2020 19:7

    Content type: Research article

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  33. Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at sup...

    Authors: Joni Gilissen, Lara Pivodic, Annelien Wendrich-van Dael, Chris Gastmans, Robert Vander Stichele, Yvonne Engels, Myrra Vernooij-Dassen, Luc Deliens and Lieve Van den Block

    Citation: BMC Palliative Care 2020 19:5

    Content type: Study protocol

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  34. Austria has recently been embroiled in the complex debate on the legalization of measures to end life prematurely. Empirical data on end-of-life decisions made by Austrian physicians barely exists. This study ...

    Authors: D. Jahn-Kuch, A. Domke, S. Bitsche, H. Stöger, A. Avian, K. Jeitler, N. Posch and A. Siebenhofer

    Citation: BMC Palliative Care 2020 19:4

    Content type: Research article

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  35. Nursing homes are becoming more important for end-of-life care. Within the industrialised world, Germany is among the countries with the most end-of-life hospitalizations in nursing home residents. To improve ...

    Authors: Anke Strautmann, Katharina Allers, Alexander Maximilian Fassmer and Falk Hoffmann

    Citation: BMC Palliative Care 2020 19:2

    Content type: Research article

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  36. Heart failure (HF) afflicts 6.5 million Americans with devastating consequences to patients and their family caregivers. Families are rarely prepared for worsening HF and are not informed about end-of-life and...

    Authors: Ubolrat Piamjariyakul, Trisha Petitte, Angel Smothers, Sijin Wen, Elizabeth Morrissey, Stephanie Young, George Sokos, Alvin H. Moss and Carol E. Smith

    Citation: BMC Palliative Care 2019 18:119

    Content type: Study protocol

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  37. Early identification of palliative patients is challenging. The Surprise Question (SQ1; Would I be surprised if this patient were to die within 12 months?) is widely used to identify palliative patients. Howev...

    Authors: C. M. M. Veldhoven, N. Nutma, W. De Graaf, H. Schers, C. A. H. H. V. M. Verhagen, K. C. P. Vissers and Y. Engels

    Citation: BMC Palliative Care 2019 18:118

    Content type: Research article

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  38. Barriers to palliative care still exist in long-term care settings for older people, which can mean that people with advanced dementia may not receive of adequate palliative care in the last days of their life...

    Authors: Franco Toscani, Silvia Finetti, Fabrizio Giunco, Ines Basso, Debora Rosa, Francesca Pettenati, Alessandro Bussotti, Daniele Villani, Simona Gentile, Lorenzo Boncinelli, Massimo Monti, Sandro Spinsanti, Massimo Piazza, Lorena Charrier and Paola Di Giulio

    Citation: BMC Palliative Care 2019 18:117

    Content type: Research article

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  39. Effective communication is integral to the delivery of goal-concordant care for older adults and their family caregivers, and yet, it is uncommon in people with serious illness. This study explores the challen...

    Authors: Jennifer Im, Susanna Mak, Ross Upshur, Leah Steinberg and Kerry Kuluski

    Citation: BMC Palliative Care 2019 18:113

    Content type: Research article

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  40. Grieving relatives can suffer from numerous consequences like anxiety, depression, post-traumatic stress disorder (PTSD) symptoms, and prolonged grief. This study aims to assess the psychological consequences ...

    Authors: Maité Garrouste-Orgeas, Cécile Flahault, Edith Poulain, Adrien Evin, Frédéric Guirimand, Virginie Fossez-Diaz, Ségolène Perruchio, Catherine Verlaine, Anne Vanbésien, Willeme Kaczmarek, Laurence Birkui de Francqueville, Emmanuel De Larivière, Guillaume Bouquet, Laure Copel, Virginie Verliac, Véronique Marché…

    Citation: BMC Palliative Care 2019 18:111

    Content type: Study protocol

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  41. Limited access to, understanding of, and trust in paper-based patient information is a key factor influencing paramedic decisions to transfer patients nearing end-of-life to hospital. Practical solutions to th...

    Authors: Rebecca Patterson, Holly Standing, Mark Lee, Sonia Dalkin, Monique Lhussier, Catherine Exley and Katie Brittain

    Citation: BMC Palliative Care 2019 18:108

    Content type: Research article

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  42. The burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and descri...

    Authors: Shakiba Zahed, Maryam Emami, Shahrzad Bazargan-Hejazi, Ahmad Ali Eslami, Majid Barekatain and Fereshteh Zamani-Alavijeh

    Citation: BMC Palliative Care 2019 18:105

    Content type: Research article

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  43. Timely identification of people who are at risk of dying is an important first component of end-of-life care. Clinicians often fail to identify such patients, thus trigger tools have been developed to assist i...

    Authors: Peter J. Raubenheimer, Cascia Day, Faried Abdullah, Katherine Manning, Clint Cupido and Jonny Peter

    Citation: BMC Palliative Care 2019 18:101

    Content type: Research article

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  44. Hospice care is designed for persons in the final phase of a terminal illness. However, hospice care is not used appropriately. Some persons who do not meet the hospice eligibility receive hospice care, while ...

    Authors: Beibei Xiong, Shannon Freeman, Davina Banner and Lina Spirgiene

    Citation: BMC Palliative Care 2019 18:100

    Content type: Research article

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  45. Patients with palliative care needs, require support with their physical needs, but also with their emotional, spiritual and social needs. Patient-Centred Care (PCC) may help organizations to support these pat...

    Authors: Milanne M. J. Galekop, Hanna M. van Dijk, Job van Exel and Jane M. Cramm

    Citation: BMC Palliative Care 2019 18:97

    Content type: Research article

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  46. Research in Taiwan has indicated that advance care planning is rarely undertaken in long-term care facilities. The purpose of this study was to develop an advance care planning interview guideline and care mod...

    Authors: Hsin-Tzu Sophie Lee, Ting-Ru Chen, Chia-Ling Yang, Tai-Yuan Chiu and Wen-Yu Hu

    Citation: BMC Palliative Care 2019 18:95

    Content type: Research article

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  47. Internationally there is an increasing concern about the quality of end-of-life care (EoLC) provided in acute hospitals. More people are cared for at end of life and die in acute hospitals than in any other he...

    Authors: Diarmuid Ó Coimín, Geraldine Prizeman, Bettina Korn, Sarah Donnelly and Geralyn Hynes

    Citation: BMC Palliative Care 2019 18:91

    Content type: Research article

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  48. General Practitioners (GPs) often play an important role in caring for people at the end of life. While some international studies suggest that GPs experience a number of barriers to providing palliative care,...

    Authors: Anne Herrmann, Mariko L. Carey, Alison C. Zucca, Lucy A. P. Boyd and Bernadette J. Roberts

    Citation: BMC Palliative Care 2019 18:90

    Content type: Research article

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  49. Despite complex illness trajectories and a high symptom burden, palliative care has been sub-optimal for patients with end-stage kidney disease and hemodialysis treatment who have a high rate of hospitalizatio...

    Authors: Lena Axelsson, Eva Benzein, Jenny Lindberg and Carina Persson

    Citation: BMC Palliative Care 2019 18:89

    Content type: Research article

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2019 Journal Metrics

  • Citation Impact
    2.015 - 2-year Impact Factor
    2.65 - 5-year Impact Factor
    1.407 - Source Normalized Impact per Paper (SNIP)
    1.056 - SCImago Journal Rank (SJR)
     

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