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Palliative care in other conditions

Section edited by Claudia Bausewein

This broad section considers submissions relevant to pain and symptom management in human disorders, including studies related to rehabilitation, quality of life, and end of life care. We will consider quantitative and qualitative research, including clinical trials of pain or symptom control therapies, and health services studies evaluating the outcomes of diverse therapeutic models.

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  1. Grieving relatives can suffer from numerous consequences like anxiety, depression, post-traumatic stress disorder (PTSD) symptoms, and prolonged grief. This study aims to assess the psychological consequences ...

    Authors: Maité Garrouste-Orgeas, Cécile Flahault, Edith Poulain, Adrien Evin, Frédéric Guirimand, Virginie Fossez-Diaz, Ségolène Perruchio, Catherine Verlaine, Anne Vanbésien, Willeme Kaczmarek, Laurence Birkui de Francqueville, Emmanuel De Larivière, Guillaume Bouquet, Laure Copel, Virginie Verliac, Véronique Marché…

    Citation: BMC Palliative Care 2019 18:111

    Content type: Study protocol

    Published on:

  2. Limited access to, understanding of, and trust in paper-based patient information is a key factor influencing paramedic decisions to transfer patients nearing end-of-life to hospital. Practical solutions to th...

    Authors: Rebecca Patterson, Holly Standing, Mark Lee, Sonia Dalkin, Monique Lhussier, Catherine Exley and Katie Brittain

    Citation: BMC Palliative Care 2019 18:108

    Content type: Research article

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  3. The burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and descri...

    Authors: Shakiba Zahed, Maryam Emami, Shahrzad Bazargan-Hejazi, Ahmad Ali Eslami, Majid Barekatain and Fereshteh Zamani-Alavijeh

    Citation: BMC Palliative Care 2019 18:105

    Content type: Research article

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  4. Timely identification of people who are at risk of dying is an important first component of end-of-life care. Clinicians often fail to identify such patients, thus trigger tools have been developed to assist i...

    Authors: Peter J. Raubenheimer, Cascia Day, Faried Abdullah, Katherine Manning, Clint Cupido and Jonny Peter

    Citation: BMC Palliative Care 2019 18:101

    Content type: Research article

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  5. Hospice care is designed for persons in the final phase of a terminal illness. However, hospice care is not used appropriately. Some persons who do not meet the hospice eligibility receive hospice care, while ...

    Authors: Beibei Xiong, Shannon Freeman, Davina Banner and Lina Spirgiene

    Citation: BMC Palliative Care 2019 18:100

    Content type: Research article

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  6. Patients with palliative care needs, require support with their physical needs, but also with their emotional, spiritual and social needs. Patient-Centred Care (PCC) may help organizations to support these pat...

    Authors: Milanne M. J. Galekop, Hanna M. van Dijk, Job van Exel and Jane M. Cramm

    Citation: BMC Palliative Care 2019 18:97

    Content type: Research article

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  7. Research in Taiwan has indicated that advance care planning is rarely undertaken in long-term care facilities. The purpose of this study was to develop an advance care planning interview guideline and care mod...

    Authors: Hsin-Tzu Sophie Lee, Ting-Ru Chen, Chia-Ling Yang, Tai-Yuan Chiu and Wen-Yu Hu

    Citation: BMC Palliative Care 2019 18:95

    Content type: Research article

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  8. Internationally there is an increasing concern about the quality of end-of-life care (EoLC) provided in acute hospitals. More people are cared for at end of life and die in acute hospitals than in any other he...

    Authors: Diarmuid Ó Coimín, Geraldine Prizeman, Bettina Korn, Sarah Donnelly and Geralyn Hynes

    Citation: BMC Palliative Care 2019 18:91

    Content type: Research article

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  9. General Practitioners (GPs) often play an important role in caring for people at the end of life. While some international studies suggest that GPs experience a number of barriers to providing palliative care,...

    Authors: Anne Herrmann, Mariko L. Carey, Alison C. Zucca, Lucy A. P. Boyd and Bernadette J. Roberts

    Citation: BMC Palliative Care 2019 18:90

    Content type: Research article

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  10. Despite complex illness trajectories and a high symptom burden, palliative care has been sub-optimal for patients with end-stage kidney disease and hemodialysis treatment who have a high rate of hospitalizatio...

    Authors: Lena Axelsson, Eva Benzein, Jenny Lindberg and Carina Persson

    Citation: BMC Palliative Care 2019 18:89

    Content type: Research article

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  11. Keeping people living with advanced dementia in their usual place of residence is becoming a key governmental goal but to achieve this, family carers and health care professionals must negotiate how to provide...

    Authors: Nuriye Kupeli, Elizabeth L. Sampson, Gerard Leavey, Jane Harrington, Sarah Davis, Bridget Candy, Michael King, Irwin Nazareth, Louise Jones and Kirsten Moore

    Citation: BMC Palliative Care 2019 18:87

    Content type: Research article

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  12. Many people with advanced dementia live in residential aged care homes. Care home staff need the knowledge and skills to provide high-quality end-of-life (EOL) dementia care. However, several studies have foun...

    Authors: Joanne Tropea, Christina E. Johnson, Debra Nestel, Sanjoy K. Paul, Caroline A. Brand, Anastasia F. Hutchinson, Ross Bicknell and Wen Kwang Lim

    Citation: BMC Palliative Care 2019 18:86

    Content type: Study protocol

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  13. Cachexia is a complex and multifactorial syndrome defined as severe weight loss and muscle wasting which frequently goes unrecognised in clinical practice [1]. It is a debilitating syndrome, resulting in patients...

    Authors: Matthew A. Carson, Joanne Reid, Loreena Hill, Lana Dixon, Patrick Donnelly, Paul Slater, Alyson Hill and Donna Fitzsimons

    Citation: BMC Palliative Care 2019 18:82

    Content type: Study protocol

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  14. Increasing the quality of life with short interventions for vulnerable patients is one of the objectives of palliative care. Biographical approaches are used in a range of different interventions which may req...

    Authors: Michaela Hesse, Simon Forstmeier, Henning Cuhls and Lukas Radbruch

    Citation: BMC Palliative Care 2019 18:79

    Content type: Research article

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  15. Half of nursing home residents (NHR) suffer from dementia. End-of-life hospitalizations are often burdensome in residents with dementia. A systematic review was conducted to study the occurrence of hospitaliza...

    Authors: Falk Hoffmann, Anke Strautmann and Katharina Allers

    Citation: BMC Palliative Care 2019 18:77

    Content type: Research article

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  16. In long-term care facilities often many care providers are involved, which could make it difficult to reach consensus in care. This may harm the relation between care providers and can complicate care. This st...

    Authors: M. ten Koppel, H. R. W. Pasman, J. T. van der Steen, H. P. J. van Hout, M. Kylänen, L. Van den Block, T. Smets, L. Deliens, G. Gambassi, K. Froggatt, K. Szczerbińska and B. D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2019 18:73

    Content type: Research article

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  17. Caring for someone with dementia can be physically and emotionally difficult. Acting as a caregiver can make it difficult to access sources of support, particularly in the later stages of dementia. This paper ...

    Authors: Nathan Davies, Jenny Hopwood, Nina Walker, Jamie Ross, Steve Iliffe, Kate Walters and Greta Rait

    Citation: BMC Palliative Care 2019 18:71

    Content type: Research article

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  18. Patients with end-stage kidney disease (ESKD) on hemodialysis have limited life expectancy, yet their palliative care needs often go unmet. The aim of this study was to identify barriers and facilitators for i...

    Authors: Sarah L. Goff, Mark L. Unruh, Jamie Klingensmith, Nwamaka D. Eneanya, Casey Garvey, Michael J. Germain and Lewis M. Cohen

    Citation: BMC Palliative Care 2019 18:64

    Content type: Research article

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  19. Systematic research into palliative care (PC) for people with substance use disorder (SUD) and multiple problems is scarce. The existing literature shows problems in the organizational structure of this care, ...

    Authors: Anne Ebenau, Boukje Dijkstra, Chantal ter Huurne, Jeroen Hasselaar, Kris Vissers and Marieke Groot

    Citation: BMC Palliative Care 2019 18:56

    Content type: Research article

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  20. Parkinson’s disease (PD) is a chronic and neurodegenerative disease associated with a wide variety of symptoms. The risk of complications increases with progression of the disease. These complications have a t...

    Authors: Herma Lennaerts, Maxime Steppe, Marten Munneke, Marjan J. Meinders, Jenny T. van der Steen, Marieke Van den Brand, Dorian van Amelsvoort, Kris Vissers, Bastiaan R. Bloem and Marieke Groot

    Citation: BMC Palliative Care 2019 18:53

    Content type: Research article

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  21. Unregulated care providers (UCPs) are at the forefront of direct client care in the community. Their services are required to meet the demand for home-based palliative care from a growing older population, yet...

    Authors: Christine J. McPherson, Judy Etele, Viviane Chou-Yin Ta and Angelina Raghubir

    Citation: BMC Palliative Care 2019 18:52

    Content type: Research article

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  22. There is increasing awareness of the need for an integrated palliative care approach in chronic progressive neurological diseases. Advance care planning (ACP) is an integral part of this approach. As a systema...

    Authors: Antje A. Seeber, A. Jeannette Pols, Albert Hijdra, Hepke F. Grupstra, Dick L. Willems and Marianne de Visser

    Citation: BMC Palliative Care 2019 18:50

    Content type: Research article

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  23. The needs of care based on palliative principles are stressed for all people with progressive and/or life-limiting conditions, regardless of age and the place in which care is provided. Person-centred palliati...

    Authors: Christina Bökberg, Lina Behm, Birgitta Wallerstedt and Gerd Ahlström

    Citation: BMC Palliative Care 2019 18:44

    Content type: Research article

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  24. Home-based care networks differ in size and composition, but little is known about the characteristics of care networks for those nearing the end of their lives. This study aimed to identify different types of...

    Authors: Femmy M. Bijnsdorp, H. Roeline W. Pasman, Anneke L. Francke, Natalie Evans, Carel F. W. Peeters and Marjolein I. Broese van Groenou

    Citation: BMC Palliative Care 2019 18:41

    Content type: Research article

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  25. Internationally, it is widely accepted that holistic care is as an integral part of the care for people with motor neurone disease (MND), and their informal carers. However the optimal role of generalist and s...

    Authors: Clare Mc Veigh, Colette Donaghy, Briege Mc Laughlin, Alison Dick, Kiran Kaur, John Mc Conville and Max Watson

    Citation: BMC Palliative Care 2019 18:39

    Content type: Research article

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  26. Little is known of how to organize non-malign palliative care, and existing knowledge show that patients with COPD live with unmet palliative needs and low quality of life. With the intent to improve palliativ...

    Authors: D. G. Bove, M. O. Jellington, M. Lavesen, K. Marså and S. F. Herling

    Citation: BMC Palliative Care 2019 18:24

    Content type: Research article

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  27. Chronic lung diseases, such as COPD, are a growing health concern within the veteran population. Palliative care programs have mainly focused on the needs of people with malignant disease in the past, however ...

    Authors: Clare Mc Veigh, Joanne Reid and Paula Carvalho

    Citation: BMC Palliative Care 2019 18:22

    Content type: Research article

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  28. Home-based palliative care is an essential resource for many communities. We conducted a qualitative study to explore perceptions of a home-based palliative care programme in Kerala, India, from the perspectiv...

    Authors: Rekha Rachel Philip, Emilie Venables, Abdulla Manima, Jaya Prasad Tripathy and Sairu Philip

    Citation: BMC Palliative Care 2019 18:16

    Content type: Research article

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  29. An essential aspect of palliative care nursing is to conserve the dignity of the patient. A Dignity Care Intervention (DCI) has been developed in Scotland to facilitate this role for nurses. The DCI is now bei...

    Authors: Ulrika Östlund, Karin Blomberg, Annika Söderman and Carina Werkander Harstäde

    Citation: BMC Palliative Care 2019 18:10

    Content type: Research article

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  30. Lay family caregivers of patients receiving palliative care often confront stressful situations in the care of their loved ones. This is particularly true for families in the home-based palliative care setting...

    Authors: Michael Galatsch, Holly G. Prigerson, Wilfried Schnepp, Friederike zu Sayn-Wittgenstein and Jian Li

    Citation: BMC Palliative Care 2019 18:9

    Content type: Research article

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  31. The Advanced Lung Disease Service is a unique, new model of integrated respiratory and palliative care, which aims to address the unmet needs of patients with advanced, non-malignant, respiratory diseases. Thi...

    Authors: Natasha Smallwood, Thomas Moran, Michelle Thompson, Peter Eastman, Brian Le and Jennifer Philip

    Citation: BMC Palliative Care 2019 18:7

    Content type: Research article

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  32. There is considerable uncertainty surrounding the medications used to delay the progression of dementia, especially their long-term efficacy and when to withdraw treatment with these agents. Current research r...

    Authors: Carole Parsons and Sarah Gamble

    Citation: BMC Palliative Care 2019 18:6

    Content type: Research article

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  33. Currently, there are no formalized measures for the quality of home based palliative care in Ontario. This study developed a set of potential quality indicators for seriously ill home care clients using a stan...

    Authors: Lisa E. Harman, Dawn M. Guthrie, Joachim Cohen, Anja Declercq, Kathryn Fisher, Donna Goodridge, John P. Hirdes and Hsien Seow

    Citation: BMC Palliative Care 2019 18:3

    Content type: Research article

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  34. Sleep disturbance is a significant issue, particularly for patients with advanced terminal illness. Currently, there are no practice-based recommended approaches for managing sleep and circadian disruptions in...

    Authors: Rana Sagha Zadeh, Elizabeth Capezuti, Paul Eshelman, Nicole Woody, Jennifer Tiffany and Ana C. Krieger

    Citation: BMC Palliative Care 2018 17:131

    Content type: Research article

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  35. The treatment of Multidrug-Resistant Tuberculosis represents one of the most significant challenges to global health. Despite guidance on improving treatment outcomes, there is little focus on how to support i...

    Authors: Joseph M. Sawyer, Rahul Asgr, Florence N. Todd Fordham and John D.H. Porter

    Citation: BMC Palliative Care 2018 17:120

    Content type: Research article

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  36. People experiencing homelessness often encounter progressive incurable somatic diseases in combination with psychiatric and psychosocial problems, and many need palliative care at the end of their lives. Littl...

    Authors: Anke J E de Veer, Barbara Stringer, Berno van Meijel, Renate Verkaik and Anneke L Francke

    Citation: BMC Palliative Care 2018 17:119

    Content type: Research article

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  37. End-of-life care (EoLC) is an experience that touches the lives of everyone. Dying in an acute hospital is a common occurrence in developed countries across the world. Previous studies have shown that there is...

    Authors: Sarah Donnelly, Geraldine Prizeman, Diarmuid Ó Coimín, Bettina Korn and Geralyn Hynes

    Citation: BMC Palliative Care 2018 17:117

    Content type: Research article

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  38. To improve the care of patients with advanced COPD and be able to address their palliative needs a new outpatient organization (CAPTAIN) was developed and implemented. CAPTAIN was inspired by best practice and...

    Authors: Dorthe Gaby Bove, Marie Lavesen, Maria Omel Jellington, Kristoffer Bastrup-Madsen Marsaa and Suzanne Forsyth Herling

    Citation: BMC Palliative Care 2018 17:113

    Content type: Research article

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  39. Professional societies call for integration of end-of-life discussions early in the trajectory of heart failure, yet it remains unclear where current practices stand in relation to these recommendations. We so...

    Authors: Fiona Ecarnot, Nicolas Meunier-Beillard, Marie-France Seronde, Romain Chopard, François Schiele, Jean-Pierre Quenot and Nicolas Meneveau

    Citation: BMC Palliative Care 2018 17:112

    Content type: Research article

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  40. Globally the state of palliative care research remains uncertain. Questions remain regarding impact, funding, and research priorities. Building upon previous research, this review examines palliative care rese...

    Authors: Sonja McIlfatrick, Deborah H. L. Muldrew, Felicity Hasson and Sheila Payne

    Citation: BMC Palliative Care 2018 17:109

    Content type: Research article

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  41. A lack of evidence and psychometrically sound measures of compassion necessitated the development of the first known, empirically derived, theoretical Patient Compassion Model (PCM) generated from qualitative ...

    Authors: Shane Sinclair, Priya Jaggi, Thomas F. Hack, Susan E. McClement, Shelley Raffin-Bouchal and Pavneet Singh

    Citation: BMC Palliative Care 2018 17:108

    Content type: Research article

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  42. Death rattle (DR), caused by mucus in the respiratory tract, occurs in about half of patients who are in the dying phase. Relatives often experience DR as distressing. Anticholinergics are recommended to treat...

    Authors: Harriëtte J. van Esch, Lia van Zuylen, Esther Oomen–de Hoop, Agnes van der Heide and Carin C. D. van der Rijt

    Citation: BMC Palliative Care 2018 17:105

    Content type: Study protocol

    Published on:

  43. Patients with Chronic Heart Failure (CHF) and patients with Chronic Obstructive Pulmonary Disease (COPD) share similar symptom burden with cancer patients, however, they are unlikely to receive palliative care...

    Authors: N. Siouta, P. Clement, B. Aertgeerts, K. Van Beek and J. Menten

    Citation: BMC Palliative Care 2018 17:103

    Content type: Research article

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  44. The specific palliative care needs and problems of patients with a substance use disorder and multiple problems, and those of their proxies, are under recognized Besides, the organization of palliative care, i...

    Authors: Anne Ebenau, Boukje Dijkstra, Marianne Stal-Klapwijk, Chantal ter Huurne, Ans Blom, Kris Vissers and Marieke Groot

    Citation: BMC Palliative Care 2018 17:97

    Content type: Study protocol

    Published on:

  45. The implementation of standardised, valid and reliable measurements in palliative care is subject to practical and methodological challenges. One aspect of ongoing discussion is the value of systematic proxy-b...

    Authors: Katharina Fetz, Hendrik Vogt, Thomas Ostermann, Andrea Schmitz and Christian Schulz-Quach

    Citation: BMC Palliative Care 2018 17:92

    Content type: Research article

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  46. The aim of this paper was to describe the development of an intervention that is developed to improve communication about the heart failure (HF) trajectory and end-of-life care. We also present data that provi...

    Authors: Lisa Hjelmfors, Anna Strömberg, Maria Friedrichsen, Anna Sandgren, Jan Mårtensson and Tiny Jaarsma

    Citation: BMC Palliative Care 2018 17:85

    Content type: Research article

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  47. Due to increasing life expectancy, more and more older people are suffering from dementia and comorbidities. To date, little information is available on place of death for dementia patients in Germany. In addi...

    Authors: Burkhard Dasch, Claudia Bausewein and Berend Feddersen

    Citation: BMC Palliative Care 2018 17:80

    Content type: Research article

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  48. Although continuity of care in paediatric palliative care (PPC) is considered to be an essential element of quality of care, it’s implementation is challenging. In Belgium, five paediatric liaison teams (PLTs)...

    Authors: Marie Friedel, Bénédicte Brichard, Christine Fonteyne, Marleen Renard, Jean-Paul Misson, Els Vandecruys, Corinne Tonon, Françoise Verfaillie, Georgette Hendrijckx, Nathalie Andersson, Ilse Ruysseveldt, Katrien Moens, Jean-Marie Degryse and Isabelle Aujoulat

    Citation: BMC Palliative Care 2018 17:77

    Content type: Research article

    Published on:

2018 Journal Metrics

  • Citation Impact
    2.922 - 2-year Impact Factor
    3.141 - 5-year Impact Factor
    1.347 - Source Normalized Impact per Paper (SNIP)
    1.195 - SCImago Journal Rank (SJR)

    Usage 
    356,530 Downloads

    Social Media Impact
    1361 Mentions

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