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Palliative care in other conditions

Section edited by Claudia Bausewein

This broad section considers submissions relevant to pain and symptom management in human disorders, including studies related to rehabilitation, quality of life, and end of life care. We will consider quantitative and qualitative research, including clinical trials of pain or symptom control therapies, and health services studies evaluating the outcomes of diverse therapeutic models.

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  1. Health-related quality of life is recognized as a key outcome in chronic disease management, including kidney disease. With no national healthcare coverage for hemodialysis, Ugandan patients struggle to pay fo...

    Authors: Peace Bagasha, Elizabeth Namukwaya, Mhoira Leng, Robert Kalyesubula, Edrisa Mutebi, Ronald Naitala, Elly Katabira and Mila Petrova

    Citation: BMC Palliative Care 2021 20:52

    Content type: Research article

    Published on:

  2. ‘PACE Steps to Success’ is a multicomponent training program aiming to integrate generalist and non-disease-specific palliative care in nursing homes. This program did not improve residents’ comfort in the las...

    Authors: Rose Miranda, Tinne Smets, Nele Van Den Noortgate, Jenny T. van der Steen, Luc Deliens, Sheila Payne, Katarzyna Szczerbińska, Sophie Pautex, Liesbeth Van Humbeeck, Giovanni Gambassi, Marika Kylänen and Lieve Van den Block

    Citation: BMC Palliative Care 2021 20:39

    Content type: Research article

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  3. Identification of patients who might benefit from palliative care among countries with different socioeconomic and medical contexts is challenging. The Supportive and Palliative Care Indicators Tool for a Low-...

    Authors: Supakorn Sripaew, Orapan Fumaneeshoat and Thammasin Ingviya

    Citation: BMC Palliative Care 2021 20:35

    Content type: Research article

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  4. The children’s agency and that exercised by parents and health professionals in palliative care, along with structural limitations imposed by the conditions of inequality, will provide a new perspective from m...

    Authors: Martina Fay, Jessica Guadarrama, Tirsa Colmenares-Roa, Iraís Moreno-Licona, Ana Gabriela Cruz-Martin and Ingris Peláez-Ballestas

    Citation: BMC Palliative Care 2021 20:27

    Content type: Research article

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  5. A key aim of palliative care is to improve the quality of life of patients and their families. To help ensure quality of life for the families of patients with migrant backgrounds, this study sought insights i...

    Authors: X. de Voogd, D. L. Willems, M. Torensma, B. D. Onwuteaka-Philipsen and J. L. Suurmond

    Citation: BMC Palliative Care 2021 20:26

    Content type: Research article

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  6. Globally, different age groups in the elderly population have experienced major shifts over time. Human life expectancy doubled from the 19th to the twentieth century and has increased to 80 years in the twent...

    Authors: Tzu-Yin Lee, Henny Dwi Susanti, Kuo-Chen Hung, Su-Yueh Yang, Hui-Fen Fang, Jia-Ruey Tsai, Jeng-Fong Chiou and Min-Huey Chung

    Citation: BMC Palliative Care 2021 20:21

    Content type: Research article

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  7. Many children with serious illnesses are receiving palliative and end-of-life care from pediatric palliative and hospice care teams at home (PPHC@Home). Despite the growth in PPHC@Home, no standardized measure...

    Authors: Jackelyn Y. Boyden, Chris Feudtner, Janet A. Deatrick, Kimberley Widger, Gwenn LaRagione, Blyth Lord and Mary Ersek

    Citation: BMC Palliative Care 2021 20:17

    Content type: Research article

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  8. Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care pla...

    Authors: Marina R. Ekkel, Marja F. I. A. Depla, Els M. L. Verschuur, Ruth B. Veenhuizen, Cees M. P. M. Hertogh and Bregje D. Onwuteaka-Philipsen

    Citation: BMC Palliative Care 2021 20:12

    Content type: Research article

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  9. Those who survive critical illness only to become chronically critically ill (CCI) experience a high symptom burden, repeat episodes of illness exacerbation, communication barriers, and poor health outcomes. Y...

    Authors: A. Fuchsia Howard, Sarah Crowe, Laura Choroszewski, Joe Kovatch, Adrianne Jansen Haynes, Joan Ford, Scott Beck and Gregory J. Haljan

    Citation: BMC Palliative Care 2021 20:3

    Content type: Research article

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  10. The COVID-19 pandemic has caused more than 462,417 deaths worldwide. A large number of patients with severe COVID-19 face death in hospital. Hospice care is truly a philosophy of care that delivers patient-cen...

    Authors: Ze-hong Zheng, Zhong-chen Luo, You Zhang, Wallace Chi Ho Chan, Jian-qiong Li, Jin Pang, Yu-ling Jia and Jiao Tang

    Citation: BMC Palliative Care 2020 19:188

    Content type: Research article

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  11. The Liverpool care pathway for the dying patient (LCP) is a multidisciplinary tool developed for the dying phase for use in palliative care settings. The literature reports divergent experiences with its appli...

    Authors: Maartje S. Klapwijk, Natashe Lemos Dekker, Monique A. A. Caljouw, Wilco P. Achterberg and Jenny T. van der Steen

    Citation: BMC Palliative Care 2020 19:183

    Content type: Research article

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  12. Towards the end of life, use of opioid analgesics becomes more common in patients to control pain and improve quality of life. While pain medication may help manage pain, unwanted cognitive side effects are fr...

    Authors: Pete Wegier, Jaymie Varenbut, Mark Bernstein, Peter G. Lawlor and Sarina R. Isenberg

    Citation: BMC Palliative Care 2020 19:182

    Content type: Research article

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  13. Physicians experience high rates of burnout, which may negatively impact patient care. Palliative care is an emotionally demanding specialty with high burnout rates reported in previous studies from other coun...

    Authors: Cindy Wang, Pamela Grassau, Peter G. Lawlor, Colleen Webber, Shirley H. Bush, Bruno Gagnon, Monisha Kabir and Edward G. Spilg

    Citation: BMC Palliative Care 2020 19:169

    Content type: Research article

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  14. End-of-life (EOL) conversations are highly important for patients living with life-threatening diseases and for their relatives. Talking about the EOL is associated with reduced costs and better quality of car...

    Authors: Heidi Bergenholtz, Malene Missel and Helle Timm

    Citation: BMC Palliative Care 2020 19:168

    Content type: Research article

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  15. The predictive value of the prognostic tool for patients with advanced cancer is uncertain in mainland China, especially in the home-based palliative care (HPC) setting. This study aimed to compare the accurac...

    Authors: Jun Zhou, Sitao Xu, Ziye Cao, Jing Tang, Xiang Fang, Ling Qin, Fangping Zhou, Yuzhen He, Xueren Zhong, Mingcai Hu, Yan Wang, Fengjuan Lu, Yongzheng Bao, Xiangheng Dai and Qiang Wu

    Citation: BMC Palliative Care 2020 19:167

    Content type: Research article

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  16. The main goal of pediatric palliative care (PPC) is to improve or maintain the best possible quality of life (QoL) for the child and their family. PPC can be provided in community health centres, within the sp...

    Authors: Anette Winger, Lisbeth Gravdal Kvarme, Borghild Løyland, Camilla Kristiansen, Sølvi Helseth and Ingrid H. Ravn

    Citation: BMC Palliative Care 2020 19:165

    Content type: Research article

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  17. The aim of this study was to optimize a Question Prompt List which is designed to improve communication about the heart failure trajectory among patients, family members, and health care professionals.

    Authors: Lisa Hjelmfors, Martje H. L. van der Wal, Maria Friedrichsen, Anna Milberg, Jan Mårtensson, Anna Sandgren, Anna Strömberg and Tiny Jaarsma

    Citation: BMC Palliative Care 2020 19:161

    Content type: Research article

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  18. Despite the urgent need for palliative care for patients with advanced chronic obstructive pulmonary disease (COPD), it is not yet daily practice. Important factors influencing the provision of palliative care...

    Authors: Johanna M. C. Broese, Rianne M. J. J. van der Kleij, Huib A. M. Kerstjens, Els M. L. Verschuur, Yvonne Engels and Niels H. Chavannes

    Citation: BMC Palliative Care 2020 19:155

    Content type: Study protocol

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  19. Patient access to medicines at home during the last year of life is critical for symptom control, but is thought to be problematic. Little is known about healthcare professionals’ practices in supporting timel...

    Authors: Sue Latter, Natasha Campling, Jacqueline Birtwistle, Alison Richardson, Michael I. Bennett, Sean Ewings, David Meads and Miriam Santer

    Citation: BMC Palliative Care 2020 19:148

    Content type: Research article

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  20. The increase in the number of pediatric patients with complex health conditions necessitates the application of advance care planning for children. Earlier, withdrawal of life-sustaining treatment was taboo in...

    Authors: In Gyu Song, Sung Han Kang, Min Sun Kim, Cho Hee Kim, Yi Ji Moon and Jung Lee

    Citation: BMC Palliative Care 2020 19:145

    Content type: Research article

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  21. It is recommended that patients with progressive neurological disease (PND) receive general and specialized palliative care. The purpose of this study was to determine the effect of neuropalliative care on qua...

    Authors: Radka Bužgová, Radka Kozáková and Michal Bar

    Citation: BMC Palliative Care 2020 19:143

    Content type: Research article

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  22. Hospitalisation of patients with advanced dementia is generally regarded as less preferable compared to care at home or in a nursing home. For patients with other diagnoses, young age has been associated with ...

    Authors: Lisa Martinsson, Staffan Lundström and Johan Sundelöf

    Citation: BMC Palliative Care 2020 19:135

    Content type: Research article

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  23. Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income ...

    Authors: Catherine Sarfo-Walters and Edward Appiah Boateng

    Citation: BMC Palliative Care 2020 19:133

    Content type: Research article

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  24. End-of-life care is provided in a variety of healthcare settings, not just palliative care hospitals. This is one reason why it is very important to assess all barriers to end-of-life care and to provide safe ...

    Authors: Aurelija Blaževičienė, Lina Laurs and Jamesetta A. Newland

    Citation: BMC Palliative Care 2020 19:131

    Content type: Research article

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  25. When a patient is approaching death in the intensive care unit (ICU), patients’ relatives must make a rapid transition from focusing on their beloved one’s recovery to preparation for their unavoidable death. ...

    Authors: Margo M. C. van Mol, Sebastian Wagener, Jos M. Latour, Paul A. Boelen, Peter E. Spronk, Corstiaan A. den Uil and Judith A. C. Rietjens

    Citation: BMC Palliative Care 2020 19:130

    Content type: Study protocol

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  26. The supportive hospice aged residential exchange (SHARE) is a new model of palliative care education that has been designed for residential aged care. The goal of SHARE is to help clinical staff improve pallia...

    Authors: Rosemary Frey, Sophia Barham, Deborah Balmer, Michal Boyd, Jackie Robinson and Merryn Gott

    Citation: BMC Palliative Care 2020 19:127

    Content type: Research article

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  27. When death ends a life, the impact of caring for person who suffered a period of illness or disease continues for significant others who are left to grieve. They should be offered support to avoid complicated ...

    Authors: Ulla Näppä and Kerstin Björkman-Randström

    Citation: BMC Palliative Care 2020 19:124

    Content type: Research article

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  28. Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries. Our aims were to develop and obtain face an...

    Authors: Nicholas Jennings, Kenneth Chambaere, Cheryl Cox Macpherson, Karen L. Cox, Luc Deliens and Joachim Cohen

    Citation: BMC Palliative Care 2020 19:123

    Content type: Research article

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  29. Difficulties in prognostication are common deterrents to palliative care among dementia patients. This study aimed to evaluate the effectiveness of palliative care in reducing the extent of utilization of medi...

    Authors: Chih-Pang Chu, Cho-Yin Huang, Chian-Jue Kuo, Ying-Yeh Chen, Chun-Tse Chen, Tien-Wei Yang and Hsing-Cheng Liu

    Citation: BMC Palliative Care 2020 19:122

    Content type: Research article

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  30. Mothers and fathers are severely challenged when providing care for their terminally ill child at end of life. Caregiving needs have been studied predominantly in mothers. Differences in caregiving needs betwe...

    Authors: Tanja Leemann, Eva Bergstraesser, Eva Cignacco and Karin Zimmermann

    Citation: BMC Palliative Care 2020 19:118

    Content type: Research article

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  31. A large number of the hospice patients have been reported to be with symptoms of pain. Thus, managing the patient’s pain is one aspect of hospice care provision. The delivery of pain care services could be fac...

    Authors: Yijin Wu

    Citation: BMC Palliative Care 2020 19:116

    Content type: Research article

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  32. While a palliative approach is generally perceived to be an integral part of the intensive care unit (ICU), the provision of palliative care in this setting is challenging. This review aims to identify factors...

    Authors: Hanan Hamdan Alshehri, Sepideh Olausson, Joakim Öhlén and Axel Wolf

    Citation: BMC Palliative Care 2020 19:113

    Content type: Research article

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  33. Surrogate decision makers of stroke patients are often unprepared to make critical decisions on life-sustaining treatments. We describe the development process and key features for the Understanding Stroke web-ba...

    Authors: Emily P. Chen, Cynthia Arslanian-Engoren, William Newhouse, Diane Egleston, Savina Sahgal, Aneesha Yande, Angela Fagerlin and Darin B. Zahuranec

    Citation: BMC Palliative Care 2020 19:110

    Content type: Research article

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  34. Doctors, particularly general practitioners, play a significant role in assisting patients to create advance care plans. When medically indicated, these documents are important tools to promote congruence betw...

    Authors: Laura Panozzo, Pam Harvey, Meagan-Jane Adams, Dennis O’Connor and Bernadette Ward

    Citation: BMC Palliative Care 2020 19:108

    Content type: Research article

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  35. The interest in physiotherapy programs for individuals in hospice is increasing. The aim of our study was to assess the impact of a multi-component, individualized physiotherapy program on the functional and e...

    Authors: Agnieszka Ćwirlej-Sozańska, Agnieszka Wójcicka, Edyta Kluska, Anna Stachoń and Anna Żmuda

    Citation: BMC Palliative Care 2020 19:101

    Content type: Research article

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  36. While many Aotearoa/New Zealanders are receiving excellent palliative care the Pacific populations have limited access to available hospice and palliative care services. Little research has been conducted to i...

    Authors: Sunia Foliaki, Veisinia Pulu, Hayley Denison, Mark Weatherall and Jeroen Douwes

    Citation: BMC Palliative Care 2020 19:100

    Content type: Research article

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  37. The 3 Wishes Project (3WP) is an end-of-life program that honors the dignity of dying patients by fostering meaningful connections among patients, families, and clinicians. Since 2013, it has become embedded i...

    Authors: Meredith Vanstone, Thanh H. Neville, Marilyn E. Swinton, Marina Sadik, France J. Clarke, Allana LeBlanc, Benjamin Tam, Alyson Takaoka, Neala Hoad, Jennifer Hancock, Sarah McMullen, Brenda Reeve, William Dechert, Orla M. Smith, Gyan Sandhu, Julie Lockington…

    Citation: BMC Palliative Care 2020 19:93

    Content type: Research article

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  38. The association between palliative care and life-sustaining treatment following emergency department (ED) resuscitation is unclear. This study aims to analyze the usage of palliative care and life-sustaining t...

    Authors: Chih-Yuan Lin and Yue-Chune Lee

    Citation: BMC Palliative Care 2020 19:87

    Content type: Research article

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  39. It is important to understand the total burden of COPD and thereby be able to identify patients who need more intensive palliative care to avoid deteriorated quality of life. The aim of this study was to descr...

    Authors: D. G. Bove, M. Lavesen and B. Lindegaard

    Citation: BMC Palliative Care 2020 19:84

    Content type: Research article

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  40. Spirituality can give meaning to life, providing support and guidance in complex situations. Despite its importance in palliative care, the role of spirituality for family caregivers of patients under exclusiv...

    Authors: Paula Menis Vigna, Isac de Castro and Renata Rego Lins Fumis

    Citation: BMC Palliative Care 2020 19:77

    Content type: Research article

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  41. Symptom assessment is essential in palliative care, but holds challenges concerning implementation and relevance. This study aims to evaluate patients’ main symptoms and problems at admission to a specialist i...

    Authors: Anja Coym, Anneke Ullrich, Lisa Kathrin Hackspiel, Mareike Ahrenholz, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2020 19:75

    Content type: Research article

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  42. The purpose of this paper is to describe how end-of-life care is managed when life-support limitation is decided in a Pediatric Intensive Care Unit and to analyze the influence of the further development of th...

    Authors: Sara Bobillo-Perez, Susana Segura, Monica Girona-Alarcon, Aida Felipe, Monica Balaguer, Lluisa Hernandez-Platero, Anna Sole-Ribalta, Carmina Guitart, Iolanda Jordan and Francisco Jose Cambra

    Citation: BMC Palliative Care 2020 19:74

    Content type: Research article

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  43. Family caregivers play an important role supporting their relatives with advanced progressive disease to live at home. There is limited research to understand family caregiver needs over time, particularly out...

    Authors: Maria João Cardoso Teixeira, Wilson Abreu, Nilza Costa and Matthew Maddocks

    Citation: BMC Palliative Care 2020 19:73

    Content type: Research article

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  44. The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and...

    Authors: Eleanor Wilson, Glenys Caswell, Asam Latif, Claire Anderson, Christina Faull and Kristian Pollock

    Citation: BMC Palliative Care 2020 19:66

    Content type: Research article

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  45. Chronic breathlessness is a recognized clinical syndrome that severely impacts patients and carers, who become increasingly restricted in their daily activities. Often, patients become reliant on their carers,...

    Authors: Diana H. Ferreira, Slavica Kochovska, Aaron Honson, Jane L. Phillips and David C. Currow

    Citation: BMC Palliative Care 2020 19:64

    Content type: Research article

    Published on:

Annual Journal Metrics

  • Speed
    83 days to first decision for reviewed manuscripts only
    57 days to first decision for all manuscripts
    203 days from submission to acceptance
    14 days from acceptance to publication

    Citation Impact
    2.015 - 2-year Impact Factor
    2.65 - 5-year Impact Factor
    1.407 - Source Normalized Impact per Paper (SNIP)
    1.056 - SCImago Journal Rank (SJR)

    Usage 
    923,431 Downloads
    1,681 Altmetric mentions

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